CVS and NTS tests

kaynix21 · October 2014

Are you doing them?

Why/why not?

LexiSophie55 · October 2014

Nope. I wouldn't change anything with the results I was given.

They are not 100% and can cause worry. The tests are not necessary in my mind.

chetasu · October 2014

I opted out. Some of the tests (not sure if it's the two you specified) can increase risk to the baby. I also don't think my insurance covered them.

[Deleted User] · October 2014

The user and all related content has been deleted.

KER9171 · October 2014

I am doing the non invasive blood test and sequential screening ultrasound

buckeyesmuckeye · October 2014

LexiSophie55 said:

Nope. I wouldn't change anything with the results I was given.

They are not 100% and can cause worry. The tests are not necessary in my mind.

This exactly.

heathersf11 · October 2014

I am doing only tests that pose no risk to the fetus. I did a blood panel today, and will do the NT scan soon. I wavered on getting any tests done at all, but because I'm 34 and DH had cancer treatment a few years ago I felt like it is something that I should do.

kaynix21 · October 2014

Thanks for the responses.

I agree with @lexiesophie55 it doesn't change anything for me. I would continue with this no matter what...so I'm not sure the benefit.

23Tez23 · October 2014

I'm going to be the terrible person who admits to not wanting to have a child who is going to be disadvantaged from the get go. Those of you who don't want to know because it wouldn't change anything are angels and the world is a better place for it, but I know my limits. I'm not telling anyone I'm pregnant until we have a normal chromosome count.

kaynix21 · October 2014

23Tez23 said:

I'm going to be the terrible person who admits to not wanting to have a child who is going to be disadvantaged from the get go. Those of you who don't want to know because it wouldn't change anything are angels and the world is a better place for it, but I know my limits. I'm not telling anyone I'm pregnant until we have a normal chromosome count.

I understand this 100% and felt that way too. But then I had a miscarriage in January....and that changed everything. I have no idea how I would handle a child that had special needs, I don't think I have the patience for it....but I would be completely incapable of terminating a pregnancy on my own free will after having one taken from me.

rivers714 · October 2014

23Tez23 said:
I'm going to be the terrible person who admits to not wanting to have a child who is going to be disadvantaged from the get go. Those of you who don't want to know because it wouldn't change anything are angels and the world is a better place for it, but I know my limits. I'm not telling anyone I'm pregnant until we have a normal chromosome count.

This was what I talked wit my mjdwife about- I know the dad won't be around and I know I'd be ok if the baby was " normAl"... But I am not sure i could hAndle doing it alone with a child with disabilities and work and take cAre of my son

Pintobean39 · October 2014

23Tez23 said:
I'm going to be the terrible person who admits to not wanting to have a child who is going to be disadvantaged from the get go. Those of you who don't want to know because it wouldn't change anything are angels and the world is a better place for it, but I know my limits. I'm not telling anyone I'm pregnant until we have a normal chromosome count.

I don't think you are a horrible person, it's a personal decision that you have to make.

23Tez23 · October 2014

Pintobean39 said:

I don't think you are a horrible person, it's a personal decision that you have to make.

Thank you to all who said this. I wrote my post knowing that it was the opposite of what the others had written, and was bracing myself for some blow back. I don't feel like a terrible person, and I was pretty sure I wasn't the only one, which is why I posted. The incidence of DS dropped dramatically after these types of tests became available so I just can't be the only one.

Pintobean39 · October 2014

23Tez23 said:

Pintobean39 said:

I don't think you are a horrible person, it's a personal decision that you have to make.
Thank you to all who said this. I wrote my post knowing that it was the opposite of what the others had written, and was bracing myself for some blow back. I don't feel like a terrible person, and I was pretty sure I wasn't the only one, which is why I posted. The incidence of DS dropped dramatically after these types of tests became available so I just can't be the only one.

I did genetic testing with IVF so I didn't put a genetically abnormal embryo back in me. My situation isn't the same because I kept getting pregnant but miscarrying because of extra chromosomes. I had a friend make me feel horrible because I was "choosing" the best and didn't want those that would not be perfect. I was torn about a DS embryo because I could carry it to full term but it's not common they would put one back in you. My husband is a MD and he told me he didn't want to put a DS back in because he sees the struggles they go through. Luckily we never had to make that decision.

Personally I doubt I'd terminate a pregnancy for a chromosomal problems. I understand they do come with their share of difficulties, and I can't rightfully judge someone if they chose to terminate because they can't take care of one of those children.

LexiSophie55 · October 2014

@23Tez23 - I understand what you are saying completely. I have a cousin who has a severely disabled 3 year old (at a 3 month old mentally). Somedays I just look at him and think that a person shouldn't have to live like that - that isn't a life at all. It's so sad. I completely get where you are coming from.

Even if I was given a bad result at 12 weeks - I would want more testing and probably wait until the anatomy scan. The results just aren't 100% accurate at that point.

I did have a bad anatomy scan with my DS. Our birth plans changed drastsically with that test and we were prepared for anything, including OHS when he was born. But the 20 weeks worth of worry - I wish on no one. If you wouldn't change anything - why not find out at 20 weeks...those extra 8 of "prep" are going to be h*ll. IMO.

annerz22 · October 2014

I'll be having the NT Scan because if there is something wrong, I would like to be as prepared as possible before baby got here.

Also, as someone else said, the anatomy scan is for abnormalities too; that is the sole purpose of that test. A little story- my sister skipped the NT scan when she was pregnant with #1, she was 20 years old and it was something her and my mom didn't think was necessary. At her 20 week scan it showed her son had a herniated diaghphragm, an omphalacele (all of his intestines were being formed on the outside of his body) and his heart is in the right side of his chest. So for those of you who would rather not know something, chances are you will find out at some point in your pregnancy regardless.

And in case you are wondering, my nephew is now completely healthy (5 surgeries in his 9 year life) and has no lasting issues.

LexiSophie55 · October 2014

@annerz22 - I was also one of those people who found out an abnormality at my 20 week - and I am still opting out earlier.

Had I been told at 12 weeks - "we think we see something wrong, we're not sure, it could be something, it could be nothing. We'll see at 20 weeks." All it would have done is stressed me out completely until 20 weeks. I am afraid I wouldn't have been able to function.

Unfortunately - even the anatomy scan misses things, so there is that too. It is all just a waiting game.

icajesica82 · October 2014

I choose not to get the tests done. Like others it will not change my decision and knowing one of the tests is only 60% accurate. I know the 20 week u/s will show if there is anything and that is what I will relay on. Besides, I'm not sure out insurance will cover and that's not an expense we need to add on.

ambarnett1 · October 2014

Haven't decided if we're going to do the NT scan or not. We didn't do it with my son and the results wouldn't change our mind. We will probably skip it, just because I don't want another reason to worry. Fortunately my husband and I are young and have no risk factors, so that puts my mind at ease.

mlbrooks619 · October 2014

I'm not sure if this is the same thing you are referring to but I am doing the Counsyl Test which checks to see if DH and I are carries of some of the most common genetic disorders, this is just a blood test. I am also most likely doing the FirstTrimesterScreen that my OB offers it is first a finger prick blood test followed by an ultrasound that confirms age and measures fluid behind babys neck. It tests for Down Syndrome, Trisomy 18, Trisomy 13. Luckily my insurance covers 90% of the FirstTrimesterScreen and the Counsyl test is $99. Results won't change anything for us but I would like the peace of mind and to accept any results we receive early on rather than later.

Jerni7Deanna · October 2014

I don't feel like any of us should be made to feel bad or ashamed of the decisions that we make regarding our pregnancy's. These are big decisions and I know we don't go into them lightly. This is just one of many tough decisions that we will make as parents. For those who rather not know, that's great and for those that want to make an informed decision, that's great as well. But this is just my opinion.

creativerae · October 2014

Since I'm high risk for multiple reasons, I've decided to put unwavering faith in my OB. He's one of the 10 best high risk OB's in the country. If he thinks I should do a test, I'm doing it. If he thinks a test is unnecessary, we won't do it. I know that's sort of reductionist thinking, but he's been to this rodeo way more times than I have.

michiejeet · October 2014

No. I believe everything happens for a reason. Plus those tests have high false positive results. Would be very stressful thinking something is wrong when all is good. To each their own. Xo

queenhoneybee · October 2014

I had the non invasive tests-NT scan and quad screening (not amino), during my first pregnancy and am will have them during this one as well. I'm AMA, so considered high risk. I'm not saying the results would change the outcome of my pregnancy, but as a planner by nature, I'd like to know.

JojoK1990 · October 2014

My sister eat told her Son has DS biased on the genetics blood test but he doesnt. So I won't be doing the test. If something is wrong I'll find out on a normal u/s

Pintobean39 · October 2014

JojoK1990 said:
My sister eat told her Son has DS biased on the genetics blood test but he doesnt. So I won't be doing the test. If something is wrong I'll find out on a normal u/s

Was it the harmony or the Materni21?

marijaa333 · October 2014

I'm leaning toward doing the CVS. The risk of having any one serious abnormality is higher than the risk posed by the test, especially if you go to an experienced provider. It's scary but I would like the peace of mind or the ability to make decisions as early as possible.

brose1117 · October 2014

We have decided to do the NTS. We talked about what we would do if it came back showing abnormalities and decided to put that conversation off until the test comes back with abnormalities. My main reason for wanting to get the scan is so we are prepared. I want the day our baby enters this world to be filled with joy. I would imagine finding out our baby has DS the moment it enters this world would take away from that joy. I'm not saying, at all, that we would love that baby less. I'm saying I want us to be prepared so that we won't be surprised. So that we can embrace this child for what the child is and has and love them the way we would a healthy baby. I think that is what our baby deserves.

dj99 · October 2014

I decided to go with the cell free fetal DNA testing, it was offered to me since I will be 35 at DD and it's pretty accurate . It's so great how everyone keeps telling me that 35 is considered advanced maternal age and therefore I qualify for such tests, and here I thought I was still young

So now it's the waiting game for results , 1-2 weeks !!

bluewavegirl · October 2014

I'll be 40 on EDD. If there is a test, I'm going to do it (if my doc thinks I should, of course). High risk with age and all that. I want to know and the results will likely affect our decision going forward.

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