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April 2014 Moms
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Any Other Babies in Physical Therapy?

CalinAZCalinAZ member
in April 2014 Moms
I figured my boy can't be the only one in physical therapy, and thought it could be nice to all share how it's going with your little one :). What is your child in therapy for? How long do you think they'll be in therapy? Successes? Challenges? How are you feeling about everything?

My little boy is in therapy for torticollis (tight neck muscle on the left) and overall "high tone," meaning high muscle tone in his shoulders and back. He has trouble resting weight on his right side when he's in tummy time, and resists reaching with his left on his tummy and on his back. When he does tummy time, he often is up on straight arms and has a lot of trouble relaxing. He'll need therapy until he starts walking, but hopefully we'll "graduate" to just check ins once a month at some point. He's made progress turning his head in and looking in both directions, and can do some relaxing in tummy time, but it still feels like we have a long way to go. I feel overwhelmed trying to fit in all the stretches/exercises we have every day, and it makes me sad when I see him with other babies, and can really tell how "different" he is. I think it's actually harder (emotionally) to see him playing differently than other babies than to just see him in his helmet, which I've really gotten used to. We love our therapist, though, and she's confident we can "fix" everything with work :). 

So, what about you? Please share!
TTC #1 since August 2012 |  BFP August 17th, 2013  |    EDD April 25th, 2014
Living with Vestibulodynia (Chronic pelvic pain)


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Re: Any Other Babies in Physical Therapy?

  • katiedidthatkatiedidthat member
    Ben sees a PT twice a month and an OT twice a month.  We were referred for him being a preemie and on oxygen, but now they're treating him for general delays and possible mild cerebral palsy- which they won't diagnose officially until 2.   Our PT is currently working on rolling both back to belly and belly to back over his right arm (he only goes left), reaching with his left arm, and getting him to sit on his own without support.  Our OT is working on picking things up with his whole hand and passing items from one hand to the other.  We're starting to work on his bottle feeding as well since its still taking him 35-40 minutes to finish a 6 oz bottle. 
     We just recently managed to get him to reach with his right hand and to bring things to his mouth. 
    We're looking at being in therapy at least until he's 2, possibly longer.  It was really hard for me at first, but now I'm just rejoicing in his milestones on his time, and don't even look at the developmental charts. 

    Mom of 2 little gentlemen and one more on the way

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  • ashcole28ashcole28 member
    DD is not in therapy but DS is (2 years old) he has speech therapy for now butafter hhis full evaluation the end of this month they may add more.
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  • Laroo0220Laroo0220 member
    Dd is in pt for torticollis. It has basically been resolved and she wanted to exit her last wk but I asked to keep her in for now since at 6 months she is still not rolling. I don't know why she won't roll but its stressful. The pt isn't concerned about any developmental issues but I'm starting to be. She also doesn't grab her feet which is odd
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  • Mustardseed2007Mustardseed2007 member

    DD is in PT for torticollis, the muscles on her left side are tight. At first I was very reluctant to put her in (I posted about it on here) b/c her brother was in PT for not crawling and I didn't think we got much out of it (though he did eventually crawl I felt like PT didn't cause him to crawl any faster).

    However, now that DD is doing more tummy time I see the head tilt more. It's actually improved over what it was according to the measurements they've been doing but I see it more. She's also tends to only roll one direction and is generally weaker on her left side. When she does roll counter clockwise, it takes forever for her to get her body around and she drags her head.

    Unfortunately we have reached a stage where she seems to be working around it rather than improving, even with the PT and exercises.

    I have to admit it's HARD since she's in DC. I don't know how much they really work with her or if they are doing it right.




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  • LizChad09LizChad09 member
    DD is in PT for torticollis as well. My sister is a DPT so I have been able to talk her therapies through with her which helps. We've been going to PT for a month now. She has already made great progress with her turning, she still drops into her tilt at night when she goes to bed. We were hopeful that PT would help us avoid a helmet, however that wasn't the case. We got measured for our helmet last week. I will definitely need y'all's support coming to terms with having that.
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  • CalinAZCalinAZ member
    edited October 2014
    @LizChad09 - I really haven't found the helmet to be that bad. LO looks weird to us when he's not wearing it now! And we've seen huge progress already, so it feels worth it :). It was super stressful going into it, though, so I definitely know what you're feeling. 
    TTC #1 since August 2012 |  BFP August 17th, 2013  |    EDD April 25th, 2014
    Living with Vestibulodynia (Chronic pelvic pain)


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  • Laroo0220Laroo0220 member
    @LizChad09‌ dd got her helmet last week. I have had a harder time with it but am slowly coming to terms with it. I felt awful on Sunday bc we took it off And her poor face was bright red wear the helmet had been. We kept it off and took her back in. Her head has just grown a bunch so she got it readjusted and they remeasured her flat spot. It's gone down from a difference of 1.3 cm to 1 cm in a week! That at least gave me hope that these next few months will be worth it
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  • LizChad09LizChad09 member
    @CalinAZ‌ and @Laroo0220‌ Thanks for the encouraging words. It's been pretty hard for me to come to terms with bc she was also born with clubbed feet and had casts and braces. We finally just switched to nights only with the braces so it feels like we are trying one orthopedic apparatus for another one.
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