adenomyosis anyone?

sailorgal · September 2014

This diagnosis is new news to me...it came up on my chart copy I received but I was never made aware of it.

And googling it, the symptoms are exactly why I went to my family doctor a few years ago in the first place before this infertility journey. I was having severe cramps and bleeding which would last up to 18 days of my cycle. The resident who treated me basically said "your menstrual cycle may simply be different after childbirth." I still pushed further with my doctor and it eventually got me the RE referral plus a diagnosis of fibroids and I'm reading misdiagnosis of adenomyosis as fibroids is common.

Anyways not sure what I'm looking for exactly...just I guess someone to commiserate with

GraceyandTroy · September 2014

I've never heard of it. What all does it entail and what causes it? Is it something that can be treated now that they know what it is?

sailorgal · September 2014

Apparently many women with endometriosis also have this so thought maybe someone may. Can't remember if it is ladies on this board or the other forum I go on that have that diagnosis. It's something about thickening of the uterine walls.

Causes are unknown but theories are that it could be related to previous pregnancies. Some things seem to say maybe due to increased levels of estrogen (I know that my estrogen/progesterone balance was way off).

Often it's asymptomatic but heavy, long periods, mid-cycle bleeding, abdominal pressure and pain, etc. The uterus can double or triple in size.

Treatment options are more to treat the symptoms. Only "cure" is a hysterectomy.

There is mixed opinion on whether this can impact fertility. With the medicated cycles, my cycles seem to be "normal". I had been thinking that low progesterone had been one of my problems this whole time but now I wonder if the progesterone wasn't as much an issue as this adenomyosis which has been treated by the progesterone. Anyhow, I have an appointment coming up to discuss this all in detail but of course I'm crazy for as much info as possible in advance of that.

wells2010 · September 2014

My mom had this. She would bleed really heavily and be doubled over in pain every month. From what she's told me, she said that it was like endometriosis, but that it's mainly just in the uterus. Because of this, they only took her uterus during her hysterectomy and not her tubes and ovaries too. She also had a few miscarriages before all of this. She attributes this to the reason why.

sailorgal · October 2014

Yup that's me every month. It sucks. I literally skip work for 1-2 days each month and am especially pissed if it's on a weekend where I actually have to function as a family member. Thankfully I have the most flexible job in the world so know one notices. Except I don't make money if I don't work so that part sucks.

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adenomyosis anyone?

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