March 2015 Moms

Cord Blood Registry

I have gotten a lot of advertisements for cord blood registries. Now being a FTM I am not too educated on this subject. I suppose I understand the concept and what it is for but all of the literature I have received and even research I have done online doesn't explain things too well. Does anyone have any info on this? Have you done this? How much does it cost? Is anyone strongly against this for any reason? Anything else you have to add would be great. Help!!
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For @suzyq0525 and all of our other M15 loss moms

Re: Cord Blood Registry

  • From the reading I've done it seems like the for-profit cord blood banks are a total scam. We did not bank cord blood for DS and will not for this LO either. I would suggest looking into public blood banks where you can donate and/or delayed cord clamping.
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  • Total waste of money. And if you contact them just to find out more they will hound you. I'm talking several phone calls a week up until you deliver.
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  • When I was pregnant with DD I thought for sure we'd bite the bullet and do it despite the cost. After doing a ton of research I realized it wouldn't be worth it for us. We have no family history of any diseases that would be cured by using cord blood, and if DD had been born with something she couldn't use her own cord blood because it would be tainted anyway and unusable.

    It's a personal decision so I wouldn't want to tell anyone to not do it if they think it's worth it, but I'd say if you have no family history of diseases they could use the cord blood to cure, or if you're only planning on one child, it's pretty pointless.

    That said, if you're able to donate it you should do that so that someone out there might be able to use it.

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  • Everything @MissyCee just said. It is a LOT of money (depends on the bank used but several thousand was what I kept seeing), so definitely do a TON of research before you make a choice on this. 
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  • We are donating to a public bank.
  • Thank you for asking this question, I was also having a hard time finding out information online about cord blood banking besides vague info about how wonderful it is. I just looked up how to donate to our public bank and will be doing that instead.
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  • We did with dd because my husband was adamant that we do it. After many discussions, my explaining why I felt it wasn't necessary (medical background included) he still felt a glimmer of "what if there's a one in a trillion chance" which I guess is possible albeit not probable
    Anywho it was something like $2000 but if it's worth it in his eyes for peace of mind I'll bite the bullet this time around too


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  • edited September 2014
    *googling delayed clamping*

    ETA: here's what I found. I think I'll pull some additional articles from PubMed, rather than newsy-stuff, but interesting so far and maybe something to consider/talk to doctor about.
    Science blog

    American Congress of OB/GYNs

    NY Times
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  • aylacbw I just read about delayed cord clamping and it sounds like a much better benefit to the child unless they/ or another child in the family have a specific need for the cord blood. I know we are definitley considering the delayed cord clamping instead of the banking.
  • We went with donation for C and will again this time. Our hospital makes donation super easy. And that way you know the blood is helping someone. If you don't go donation I second delayed clamping. Hubby and I are just regular blood donors so donation seemed right for us. Bonus they sent us a cute little shirt for C that said 'on the day I was born I saved a life!' Made hormonal me tear up then (and now). :)
  • I looked into storing when our first was born almost 9 years ago and couldn't believe the expense many charge an initial fee and then a monthly storage fee, also there was a cost to donate, so we didn't. Now with this one our hospital as a donation relationship with a bank and we will be donating at the time of delivery just have to let them know when we are checked in.
  • We decided to donate when DD was born.  The woman who was signing us up told us that not everybody has enough cord blood to actually donate and she would be back with additional papers for us to sign if we had enough.  We never saw her again which means there wasn't enough.

    She also told us that professional companies will not tell you if there isn't enough usable blood and just bill you.  Which means if you end up needing it down the road you won't be able to even though you spent so much money.
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  • I'm also in the delayed cord clamping camp - seemed like too good a thing to pass up up!
  • We opted to delay.  I thought about donating but there wasn't a program set up in my hospital and if there's not a program set up it seems really difficult to do.  Delaying can give them a lot of benefits from the get-go so it seemed like a good idea.  My hospital didn't practice this regularly, but were willing to do it for us.

    I never considered banking.  It's extremely pricey, the child can't use their own cord blood so it can only be used by future children (which we weren't sure we'd be able to have), and the chances of that child using the cord blood is slim.  These banks are largely for profit and the number of families that can actually benefit from banking is extremely small.

    B born 7/15/13, C born 3/2/15, #3 on the way May '17


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