Community› The Bump Message Boards› High-Risk Pregnancy
High-Risk Pregnancy
New Discussion

Cleft Lip Repair

bmg101985bmg101985 member
in High-Risk Pregnancy
I've known about my baby's cleft lip since I was around 30 weeks. I went through the stages of grief but with the Lord's support and my family, I've come to look toward the future and what lies ahead for both of us. I guess being my first daughter after three boys, I wanted her to be perfect. I didn't realize when I first found out that she will be. My question is for mothers who have had babies born with cl/cp. How early did the surgeries start and how many did/has your baby had?
Report Reply to Post

Re: Cleft Lip Repair

  • ashley0227ashley0227 member
    Hello. My daughter was born with a cleft lip and palate. She is now 10 years old and doing great. She has had several surgeries, however she also had clearing of her palate. She has only had 2-3 for the lip. Depending on which doctor you choose to send her to determends when they will start her surgeries. I believe my daughter was 3 months.
    Report Reply
  • Loading the player...
  • ashley0227ashley0227 member
    edited September 2014
    Not clearing.... Clefting... And not "determends".... Auto correct. Sorry.
    Report Reply
  • bmg101985bmg101985 member
    Thank you so much. it's been difficult to find someone who had been through this with their child and the anxiety is killing me! I've been shopping around for a surgeon and craniofacial team but it's overwhelming. thank you for the response.
    Report Reply
  • ashley0227ashley0227 member
    What state are you in? I was alone when I was going through all of it also. When I found out about my daughter, I had to have several ultrasounds. We didn't know the severity until she was born. She always had her entire arm and hand covering her face.
    Report Reply
  • Knottie01055312Knottie01055312 member
    I'm a little late to this thread, but I was born with a hemangioma birthmark on my forehead. My surgeon was amazing. I actually didn't start having surgeries until a little later in life, but the earlier the better as it's easier to heal. Where are you located? I highly, highly recommend Boston's Children Hospital.
    Report Reply
This discussion has been closed.
Choose Another Board
Search Boards
"
"