I don't have a Facebook but I think I need one. DDs condition has a Facebook page (support group) kind of thing but I need to know if I make a page what will people see? If people search my name will they be able to find it?
You can set it so people can only see what you want them to. Mine is set so ONLY friends can see my posts and pictures, nobody can search for me by name/email/phone number, only friends can message me and only friends of friends can add me as a friend. Locked down and top secret haha
MMC 01/26/12
MC 12/25/12, D&C 01/05/13
BFP 03/05/13, EDD 11/12/13. HB 175 @ 9w2d. Its a Girl!
Madeline Lorraine H. Born 11/12/13 @9:10pm, 7lb6oz
DX with EA/TEF Type C & Tracheomalaysia MC @ 13wks 01/15/15
DX Septate Uterus - surgery recommended
BFP 3/18/16, EDD 11/13/16 It's a boy! Clint Kiszonas H. Born 11/21/16 @10:38pm, 9lb11oz
Okay great thank you so much ladies. I onkh plan to join that one group but I really don't want a bunch of people trying to friend me and getting ignored
I have friend that has only her nickname listed. Her H has a crazy stalker ex and they both set their profiles to private, only friends, don't use their photos as their profile pic and don't use names she would know of.
But if she is trying to connect with others as a support group this may not be the best approach; good for creeping not for support.
I don't necessarily disagree but you don't need to know someone's name to connect with them. Case in point is this board, even though I've shared my first name I doubt most remember it, and I only know the first name of maybe 10 of the ladies here.
Re: TTMA facebook
MMC 01/26/12
MC 12/25/12, D&C 01/05/13
BFP 03/05/13, EDD 11/12/13. HB 175 @ 9w2d. Its a Girl!
DX with EA/TEF Type C & Tracheomalaysia
MC @ 13wks 01/15/15
BFP 1/11/18, EDD 9/21/18
MMC 01/26/12
MC 12/25/12, D&C 01/05/13
BFP 03/05/13, EDD 11/12/13. HB 175 @ 9w2d. Its a Girl!
DX with EA/TEF Type C & Tracheomalaysia
MC @ 13wks 01/15/15
BFP 1/11/18, EDD 9/21/18
MMC 01/26/12
MC 12/25/12, D&C 01/05/13
BFP 03/05/13, EDD 11/12/13. HB 175 @ 9w2d. Its a Girl!
DX with EA/TEF Type C & Tracheomalaysia
MC @ 13wks 01/15/15
BFP 1/11/18, EDD 9/21/18
I don't necessarily disagree but you don't need to know someone's name to connect with them. Case in point is this board, even though I've shared my first name I doubt most remember it, and I only know the first name of maybe 10 of the ladies here.