July 2013 Moms
gutsymama
member
A Lucas Mini-Update
gutsymama
member
We had a fantastic appointment this morning!
He was up a whopping 1lb3oz since our last appointment two weeks ago! Part of that is due to the fact that by our 10:30 appointment he had already eaten a yogurt, 3/4 of a rice bowl, a large slice of toast, 10oz of milk, and was munching on some inner peas in the waiting room.... But still, he's definitely gaining. He got down around 16lb at his lowest point in late July, and even more recently at 17 lb he was looking awfully skinny, and he has clearly filled out now - this NP who had only seen him one time before even noticed that.
She is very happy with how much he's eating, and we are adding in some more vitamins to try to work on some of his deficiencies. In particular, we need to work on iron intake because the iron supplement made him sick last week, so if anyone has some suggestions for picky-toddler-friendly foods that involve hidden meats, suggestions would be greatly appreciated
She also gave me the green light to give him up to 32 ounces of milk per day. I have been stressing about that because I don't know how else to keep hydrated without giving him fluids that don't have calories and that's not ideal for us, and it's really exciting that he wants to drink so much and I don't want to take that away from him. So now we don't have to.
There was nothing remarkable about his barium study, which is a huge relief <:-P
They are going to try to get our insurance to cover Synagis this winter too, which is also a huge relief <:-P
We are going to discontinue a couple of his meds because she thinks he doesn't need them anymore <:-P
And, she reconfirmed that there is no known reason to think that we are at higher risk of recurrence with future pregnancies. We're not going to be TTC until at least April and probably actually later than that, but it's really nice to hear that as many times as possible.
Luke just clearly feels fantastic and I am absolutely thrilled with where we're at, especially as the anniversary of his reconnection surgery approaches. Healthy, happy
He was up a whopping 1lb3oz since our last appointment two weeks ago! Part of that is due to the fact that by our 10:30 appointment he had already eaten a yogurt, 3/4 of a rice bowl, a large slice of toast, 10oz of milk, and was munching on some inner peas in the waiting room.... But still, he's definitely gaining. He got down around 16lb at his lowest point in late July, and even more recently at 17 lb he was looking awfully skinny, and he has clearly filled out now - this NP who had only seen him one time before even noticed that.
She is very happy with how much he's eating, and we are adding in some more vitamins to try to work on some of his deficiencies. In particular, we need to work on iron intake because the iron supplement made him sick last week, so if anyone has some suggestions for picky-toddler-friendly foods that involve hidden meats, suggestions would be greatly appreciated
She also gave me the green light to give him up to 32 ounces of milk per day. I have been stressing about that because I don't know how else to keep hydrated without giving him fluids that don't have calories and that's not ideal for us, and it's really exciting that he wants to drink so much and I don't want to take that away from him. So now we don't have to.
There was nothing remarkable about his barium study, which is a huge relief <:-P
They are going to try to get our insurance to cover Synagis this winter too, which is also a huge relief <:-P
We are going to discontinue a couple of his meds because she thinks he doesn't need them anymore <:-P
And, she reconfirmed that there is no known reason to think that we are at higher risk of recurrence with future pregnancies. We're not going to be TTC until at least April and probably actually later than that, but it's really nice to hear that as many times as possible.
Luke just clearly feels fantastic and I am absolutely thrilled with where we're at, especially as the anniversary of his reconnection surgery approaches. Healthy, happy
FKA mimi4347: diaper rash magician and unofficial expert on excrement
This kid may not have a lot of bowel, but he has plenty of guts!
DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
We are impatiently awaiting the day we can say goodbye to his girlfriend Ivy for good.
This discussion has been closed.
Re: A Lucas Mini-Update
I lost my angels 07/2010, 04/2017, 10/2017
Meimsx no more
My little love was born July 20th, 2013!
BFP 11.11.12
TTC #1 Since March 2012
LFAF Summer 2016 Awards:
DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
Baby boy 7.10.13
L: 7/12/13
C: 5/11/15
E: 3/7/17
Due 11/10/18
DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
re: iron, if you can't sneak in enough meat, could you do lots of egg yolks? Maybe as pudding/custard? Or if he likes to dip food in sauces, make sauce with the juices from meat?
Also, people already mentioned smoothies, but try ones that have both leafy greens and OJ or lemon juice in them (the vitamin C makes the iron more easily absorbed), along with whatever else he likes to make it taste good (maybe try banana, OJ, spinach, frozen pineapple chunks?). Try to space out milk/dairy consumption from iron consumption, I think, because the calcium can interfere with the body's iron absorption (just thinking if he's drinking those 32oz of milk per day, have the non-dairy smoothie sometime when he's taking a break from milk).