Finger flicking and other odd behaviors in 12 mo old

Re: Finger flicking and other odd behaviors in 12 mo old

• Micelle78 member

  September 2014

  I think that your concerns are valid.  My son is 4 years old with a speech delay, mild hypotonia and vision problems.  The floppiness you describe sounds more severe than my DS's was, but I remember how odd he sat and that he never looked stable.  However, my son had a boatload of different expressions and still does.  He is very animated and social although with his list of flags he is still at risk for autism.  We have not done a formal eval but he has received services since 2 (speech, OT and recently vision therapy).
  
  Does mom have concerns or is it just you at this point?  I see you referenced nephew, but is it your sister or DH's sister?  It can be a huge relationship breaker if his mom is not on the same page and you go back and tell her you think there is a problem-- even if its super obvious to everyone. 
  
  I am not much help on the advice, but if he is the way you described, I think it he needs to have an eval.  Does his mom take him to regular check-ups?  They test for head control and manipulate their joints during their well checks to look for issues.  I would think these issues would jump out to the doctor without her even needing to know they were going on.  My DS is my first, but I knew in my gut a lot of things he did were just not quite right.  I wish you luck if you do talk to her about it, just be very careful. 
  
  The moderator on this board has a ton of experience and advice.  I would look for a response from her.  Her name is -Auntie-
  

  
   

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• hopecounts member

  September 2014

  the hypotonia would have me concerned as would the flat affect (lack of facial expression)  

  The flicking at 12 months could go either way, could be mischevious (did it once and got a reaction and now does it to push buttons/get a reaction) or could be a repetitive action. 

  I would tread carefully as sometimes a parent is not ready to see that their child is different and will 'kill the messenger' at 12 months there is time to wait and see and as long as he is getting regular ped. appointments let a professional handle it. 

  things will get clearer/more obvious in the next 6ish months as language and social development gets more advanced. 

  Also sometimes parents in the early stages of evaluation keep the information to themselves until they know more or are ready to share so depending on the relationship there may be more going on quietly that you don't know about. 

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• jschmidt6 member

  September 2014

  Thank your for your advice/opinions. It's actually my brother's son. I feel that if there was a legitimate concern my sister in law would probably be in denial and brush it under the rug anyway. She very much tries to put on a perfect mom/perfect family facade. I will not say anything to them because I don't want to jeopardize our relationship but I'm a little worried they are going to rush into having another baby when they are not very financially stable as it is (my parents help them out a lot) and there is a chance they have a little guy that needs special services, etc. They do take him regularly to the pediatrician so hopefully a professional will give a proper evaluation. Another thing I forgot to mention is that he is always very stiff and tense. For example he was sitting on my lap and I tried to move his arms together to clap his hands and there was a lot of resistance as if he was purposely holding his arms down. When you pick him up and grab him under his arm pits he just feels very stiff and tense and you notice it immediately. Is that a concern? Surely their pedi would pick that up if it was....right?

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• thefuturemrskudla member

  September 2014

  Unfortunately, not all pediatricians are thorough, or proactive. I agree that the issues you're describing are concerning, but other than talking to your brother privately about your concerns, there is nothing you can do.

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• bellapup member

  September 2014

  kitchencolors said:

  It's possible that they've identified these concerns (with or without input of their pedi) and haven't chosen to share the follow up or next steps with anyone.  Not everyone shares that kind of info.  

  This! My dd is develowntally delayed and we are selective in what we decide to share at this point. Once we get more answers, we will be more willing to share. Sharing that your child has special needs is not quite an easy thing to discuss.
  
  

  

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