Trouble TTC

Sweet baby Jesus, I'm so happy! (Not a BFP but just as exciting ...for me)

wanderlust508wanderlust508 member
edited August 2014 in Trouble TTC
I posted a few days ago about how anxious I've been about my upcoming surgery.  I met with the OB-gyn/surgeon on Friday and she thinks she probably won't be able to complete my fibroid surgery laparoscopically.  She's willing to try to complete it laparoscopically but thinks she'll probably need to convert it to a laparotomy.  And she thinks it would probably have to be a vertical incision laparotomy (from my navel down to the pubic bone).  If there was no other alternative, I would accept that it was just what I had to do to get my BFP eventually.  But I wasn't ready  to accept that.  

There's a Dr that I used to work with at my previous job ....I've always known her to be pretty well connected.  I shot her an email and expressed my anxiety over my upcoming surgery and what my current Dr has planned for me.  She suggested I contact a friend of hers, a Dr in Oakland who routinely does laparoscopic myomectomy on large fibroids.  Oakland (a city 30 miles away from me) is not within my service area but I could still see her with a referral.  I contacted this Dr by email.  Got an auto email response - "I will be out of the office until Jan 2nd 2015.  Please contact my colleague _____ who will be taking over all my patients."  F*ck!  I felt pretty hopeless and was on the verge of a panic attack thinking of my (sure to be) laparotomy on 8/29.  Anyways, the Oakland Dr responded to me and told me she was on Maternity leave but to call her on her cell phone.  After work, I called her.  She was so sweet.  I said "Thanks for being willing to talk to me about this when you're on maternity leave, Dr. Z!"  She said "Please, call me Ella."  She had been going over my electronic chart.  After asking me a bunch of questions, she said that she felt fairly confident that she could complete my surgery by laparoscopic or robotic means.  Say what?!  I was in shock.  BUT ...she's on maternity leave.  My heart sank.  She offered an alternative.  Her colleague, Dr. Y has trained with her for years and also does myomectomy on very large fibroids.  "She's great.  Honestly, she's better than me," Dr Z humbly said.  She sent a text to Dr Y with all my info.  Told me to text her if I didn't hear from Dr Y by the next afternoon.  Dr Z confided in me that it was awkward to be "stealing" a patient case away from a colleague that she respected (my Dr who is scheduled to do the myomectomy).  But, she said "Not every Dr is comfortable removing a 15cm fibroid laparoscopically.  I've done quite a few of them and so has Dr Y.  I am fairly sure she can do it."  

Within an HOUR, I got an email from Dr Y.  She said "I was referred your case by Dr Z.  I am fellowship trained in advanced minimally invasive gynecologic surgery as Dr Z is, and my focus areas are fertility sparing myomectomy as well as endometriosis. I also agree that your surgery is very feasible to complete either laparoscopic or robotic."  She went on to say that she would like to prescribe me a medication called Lupron to shrink the fibroids and ideally do the myomectomy in 2 months (which she said would lessen the total surgery time as well as improve my recovery).  

You guys ....I think I want to jump ship and go with Dr Y!!  My current Dr has been great in terms of responding to my emails promptly and showing that she really cares about me having a good outcome.  But she made it very clear she probably can't complete my surgery laparoscopically.  Dr Y. seems pretty sure she CAN.  This would mean delaying my surgery by 2 months.  And taking Lupron which is supposed to cause horrible menopause like symptoms.  But it seems worth it to avoid laparotomy!  This will be a bit complicated/messy because I'll have to cancel my application for medical leave.  Ask my boss to put me back on the schedule for work (I hope she won't be difficult about it).  And I'll have to let my current Dr scheduled to do my surgery know that I've decided to go with a different Dr I got a 2nd opinion from.

I am so happy.  I know it's not a done deal as I haven't cancelled my surgery and rescheduled with Dr Y just yet.  But I feel really good about it.  It looks like I have a good chance of sparing myself a laparotomy here.  Earlier I was literally jumping up and down in the kitchen and squealing.  And thinking that I was probably just as happy as I would be someday if I got a BFP (Is that crazy?).  
**Formerly EastBayBride508**

Me 34   Him 33

Me - Left salpingo-oophorectomy at 19 due to large cyst/torsion  and 2 large uterine fibroids found at age 30
Him - Borderline low sperm count (correcting through Fertility Blend supplement)

Married 8/20/2011
TTC #1 since Jan 2013
First appointment with RE 10/2013.  
April 2014 - Clomid 100mg CD3-7.  HCG shot CD10 IUI #1 done on 4/12/14 (CD12) ....BFN
May 2014 - Break cycle to repeat saline sonogram and re-group.  Travel to Kauai 5/7-5/12 (Yay!!)
June 2014 - Clomid 150mg CD4-8.  HCG shot CD14.  IUI#2 done on 6/9 and 6/10 (CD15-16) w/ Prometrium suppositories during TWW .... BFN
July 2014 - Clomid 150mg CD3-7.  Ultrasound CD12 - 4 mature follies! HCG trigger shot CD12 AM.  IUI#3 on CD13 w/ Prometrium suppositories during TWW ....BFN
July 2014 - Repeat ultrasound done to measure size of fibroid - 8x9cm (the size of a grapefruit!) Surgery referral made.
August 2014 - MRI done which revealed 2 fibroids: a 13x15cm fibroid as well as an 8x7cm one.  Super freak out mode over surgery plan.  OB-GYN/surgeon said surgery would most likely have to be a laparotomy (open abdominal surgery)
August 2014 - After a 2nd opinion, plan to take Lupron x 2 months to shrink fibroids then laparoscopic/robotic myomectomy.  Surgery date is set for Nov 21st!  
November 2014 - Robotic myomectomy done (2 large fibroids removed, mild endo found).  Benched x 3 months

PAIF/SAIF welcome

Re: Sweet baby Jesus, I'm so happy! (Not a BFP but just as exciting ...for me)

  • That's wonderful news! I'm so happy!
    Love 2010 | Marriage 2011 | TTC #1 since 2012
    PCOS | Anovulatory | Metformin + Letrozole
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  • What a relief for you! I'm glad you decided to get a second opinion. Good luck.

    Me-36
    DH -35
    Married in 2008
    Started TTC in 2011
    Began testing May 2014
    Test Results
    HSG- clear
    Hysteroscopy- clear
    SA- 11 mil count
    45% motility
    Diagnosis: MFI
    July 2014: Femera 5mg CD 4-8, Trigger, IUI = BFN
    August 2015: Femera 5mg CD 4-8, Trigger, IUI = BFN
    September 2015: Femera 5mg CD 4-8, Trigger, IUI = BFN
    May 2018 after long period of not trying, starting adoption process with family friend's newborn
    November 2018 Adoption complete!


  • Great news! And may I just say I wish I could email my RE! I've never heard of emailing doctors directly around where I live!
    TTC since 2013 (grad of 3T)
    EDD: May 24, 2015
  • Wow, that's the best news ever!!

    We women tend to be so afraid of hurting others' feelings, but if we think about it, how unreasonable if your current doctor did not to want you to receive the best care and avoid a huge vertical scar and recovery from open abdominal surgery! 

    Perhaps your boss will be more amenable to the last-minute changes if you explain the purpose is to make your surgery way simpler with a quicker recovery time overall by taking some meds first.... :)

    I couldn't imagine a more beautiful opportunity for you at this time. No wonder you are thrilled. Hope the Lupron doesn't bother you too much with side effects. Many IVFers use Lupron before their cycle so perhaps they can share their experience?


    January 3T Siggy Challenge - New Year's Resolutions
    image
    imageimage

    Me (29), DH (30) TTC actively 54 55+ cycles | All BFNs
    MFI (low everything) | Endo Stage 1 & Stenotic Cervix (treated) | PCO
    Married - July 2008 | Started TTC - Jan 2009RE Visit #1 - Mar 2014 
    IUI #1 ICI #1 - June | IUI #1.1 Laparoscopy - Aug
    IUIs #1.2, 2, 3 - Sept, Oct, Nov (Letrozole) - BFNs 
    IUI #4 - Dec (Bravelle) | IUI #5 - Dec/Jan (Bravelle) - 5 follies + TI - BFNs
    IUI #5.1 - Jan (Bravelle) Cancelled 
    Planning to start IVF in March!
    ***All Welcome***
  • Way to go taking ownership of your own care and seeking second opinions!  Good luck!
    Me: 31 (PCOS) possible right tube issues DH: 36 (SA normal) 
    Started dating in 2006, Married 2012 
    TTC since November 2013 
    First RE visit due to irregular periods: June 2014
    Lap/Hysto to remove polyps, cyst and tube blockage 11/6
    Cycle 1 (Dec. 2014) TI with Clomid, Trigger, & Progesterone CX due to no response
    Impatiently Waiting CD1 to try again with Fermara Back on the bench due to giant cyst,
    who know I'd ovulate on my own after a cancelled cycle and end up with a mega cyst :(
    All Welcome
     
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  • What great news!! I hope it all works out with your job and all. Surgery plans change all the time, so hopefully your boss will roll with it. Besides, a laparoscopic surgery will be less recovery time, so you may miss less work in the long run.

    As far as your current doc, she'll probably understand why you'd switch docs to someone who is comfortable doing it laparoscopically. This is about your body; it's nothing personal.

    Me: 28  MH:35

    Married September 2012. TTC since September 2013

    June 2014 - Dx w/ significant PCOS and referred to RE.

    July/August 2014 - Testing complete: Testosterone & AMH very high, FSH slightly high, Vitamin D low, tubes and lining all lovely. DH SA: A+

    Cycle 1 (Nov 2014): 2.5 mg Letrozole/Ovidrel/TI = BFN

    Cycle 2 (Dec 2014): 5 mg Letrozole/Ovidrel/TI - BFN

    Cycle 3 (Jan 2015): 5mg Letrozole/Ovidrel/TI - BFN

    WTF consult scheduled for 1/29

  • That is great news!  A second opinon is always worth it.


    Me 33, DH 37 -- TTC since Jan'12 -- Low AMH (0.78) & endo, SA w/ low motility
    IUI's 1-3 = BFN, IVF converted to IUI 4/13 = BFN
    IVF 1.2: 8R 6M 4F -- 2 blastocysts frozen, FET 8/15 = BFP!!
    Beta #s = 445;1,098; 9,545  -- EDD 5/2 -- Team Pink!
    Camila Josephine arrived 4/30 :)
  • This is awesome news!  I'm so glad you went forward and got a second opinion!

    Me (29): Hashimoto's, CD3/7DPO bloodwork & ultrasound normal, HSG & SHG(x2) all clear
    DH (29): SA Perfect
    TTC Since Jan '13, First RE Appt Jan '14
    DX: Unspecified Ovarian Dysfunction, Long Cycles
    May '13 BFP, C/P 4w3d
    Apr '14:  50mg clomid + ovidrel + B2B IUI #1=BFP,  Natural M/C 6.5wks
    Aug '14: 50mg clomid + ovidrel + B2B IUI #2=BFN
    Oct '14: 100mg clomid + ovidrel + IUI#3 =BFN
    Nov 14: 100mg clomid + ovidrel + B2B IUI#4=slow response, bad lining, cancelled
    FU with RE, more bloodwork: Anticardiolipin +
    Dec 14: 5mg Letrozole+baby aspirin +ovidrel + B2B IUI#4.1=BFFN
    Jan '15: 5mg Letrozole +baby aspirin + ovidrel +B2B IUI #5= BFP!! 
    Beta #1 210  Beta #2 546


  • That's awesome news!!!

    Don't feel bad for seeking out another Dr. Not all Dr are the best at every case, you have to do what is best for your particular case. I saw 8 ENT's for my Ménière's and it wasn't until I saw my 8th one did he come up with a plan that would actually help. You have to be your own advocate for you health.

    Good luck!
    Fucking bump!!!!
  • Good for you! I'm impressed with you taking charge like that! Good luck with everything!!

    Me (29) DH (37)

    Married 7/11

    Actively TTC 3/12

    DX: PCOS

    Current treatment: Break from IUIs until after the holidays

    -----All Welcome----

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    ~~~January 3T Siggy Challenge: New Year's Resolutions~~~

    (I don't do resolutions...so I stole T-Rex's)

    image



      


  • Second opinions are important, good luck, glad to hear good news!!


    TTC #1

    Me: AMA, DH: MFI

    Official DX - MFI due to Hemochromatosis

    IVF #1 Nov. 2014 - ER 11/10 (10R 6M 6F) - ET 11/13 

    3DT of 3 embies - no frosties - CP = BFFN!!!!

    ****All Welcome****

    imageimage



  • Don't feel bad, something in your gut told you to get a second opinion, and you did.  Nothing wrong in that.  

    ****SIGGY WARNING****


     Hashimoto's with irregular cycles  DH- 37 Severe oligoasthenoteratozoospermia

    TTC since May 2012

    HSG- all clear

    March 2014 - RE appt. 
    April 2014- Saline sono all's good, terrible SA results - 8 sperm found all abnormal
    May 2014- Fert Urology- Bilateral varicoceles, recommend Donor Sperm
    12/2014-  Surprise natural BFP  EDD 7/31/15 Plan:  Starting foster to adoption, natural cycles




  • That is wonderful news! I'm soo happy you found a doc who'll be able to help you do the surgery in a less invasive way! You're allowed to be as happy as you want!
    *** If you want to know where I (and soo many others) have gone, click here ***
  • Great news!  It's such a good feeling when you and your Dr. can be on the same page.  Hopefully Dr. Y will ease your anxeity and the surgery will go off without a hitch.
  • That's great news! I just posted today that I was informed that I have a "pelvic mass" that showed up on an ultrasound. Your post gave me hope that something can be done about it! I hope everything works out for you and you can finally get out of this message board!
  • Good for you for getting a 2nd opinion! And  you were so resourceful about it! That's so great. It's always awesome to see people taking control of their own patient care. Too often we let our physicians run our patient care, when we should really be in charge. I really hope this all works out for you and in 2 months you will be getting a surgery with itty, bitty, lap scars ;)

    ***Signature/Ticker Warning***

    March 2008 - DD born - no issues conceiving (surprise). Limited issues during pregnancy/delivery.
    June 2011 - Married DH.
    June 2013 - Diagnosis of Endometriosis and PCOS (approximate).
    December 2013 - First cycle of Clomid - Positive OPK. BFN
    January 2014 - 2nd Cycle of Clomid - Positive OPK. BFN
    February 2014 - 3rd Cycle of Clomid - Positive OPK. BFN
    March 2014 - Took month off to prep for surgery
    April 2014 - Laporoscopy for endo. Unable to remove endo due to too close of proximity to ureter. HSG done as well. Fillopian tubes open.
    May 2014 - 1st round of Femara. Positive OPK. BFN.
    June 2014 - 2nd round of Femara. Moved to RE to have CD10 Follicular U/S. No Follies in left ovary. 5 follies in right. Largest follie 8mm, 1 7mm, 2 3mm, 1 2mm. Positive OPK on day of U/S. BFN. DH has SA done at this time - All results within normal limits.
    July 2014 - 3rd round of Femara. CD10 Follicular U/S. No follies in left ovary. 7 follies in right. 1 20mm, 1 12mm, 1 10mm, 4 <5mm. Scheduled for IUI. Canceled due to low estrogen level of 145. TI this month. Prepping for Injectables next month. BFN.
    August 2014 - CD3 BW Normal. Injectables not happening because of stupid miscommunication about "required injectables class." Taking class this month. No medication. TI for the month. SIS scheduled for 8/7/14. SIS results - "I have a beautiful uterus." Huzzah!
    September 2014 - Cycle cancelled due to stupid AF coming early and making my IUI run in to DH's business trip. Try again next month.
    October 2014 - Injects with IUI cycle. 75U 5 days. Estrogen at 36. Bumped up to 125 for 4 days. Estrogen 105. Bumped up to 225. Ganirelix for 2 days. 4 mature follies. Triggered 10/9. IUI 10/10.
    BFP 10/24/2014. Beta #1 - 178   Beta #2 - 398.   U/S 11/7/14- TWINS!!!!

    image

     

    Baby Birthday Ticker Ticker

     Pregnancy Ticker

  • Wow! That's great news! I think even if it delays your surgery for 2 months you'll probably just about make up the time difference in recovery time. I'm so glad you got a second opinion!
    **siggy warning**  **everyone welcome**

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    DS- 11.07.02
    DSS- 6.26.04
    Married- 6.29.13
    TTC Again- Sept. 2013
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Test Results/Diagnosis- HSG & SA totally normal
    DX: 3/2014 Prolactinoma/Hyperprolactinemia- Started cabergoline 2/2014
    5/2014 Possible mild PCOS in addition to hyperprolactinemia??
    7/2014 Adding probable tubal factor to the diagnosis list
    9/2014 And now adding hypothyroid to the list- Started synthroid 9/2014
    Cycles 1-4 - Sept.-March- All Anovulatory 
    IUI #1 March/April-  Clomid 50mg + Clomid 100mg +Trigger + IUI #1 = BFN
     IUI #2 April/May-Clomid 100mg + Clomid 150mg + Trigger + IUI #2 + Endometrin=BFN
    IUI #3- June- Follistim 75iu + Trigger + IUI #3  Benched due to a 40 mm cyst. :-(
    IUI #3- July- Follistim 75iu + Trigger + IUI #3 + Endometrin = BFP! on 7/25/14
    Slowly rising betas - Ectopic suspected on 8/8/14 & confirmed on 8/11/14
    Methotrexate on 8/12/14 -HCG negative on 9/2/14
    IVF #1- November- Antagonist protocol: 11/1: start stims, 200iu of Follistim; 11/12 ER 17R/14M/14F; 11/17 5 day transfer of two blasts, 2 blasts and 2 expanding morulas frozen; 11/22 BFP!! (On FRER at 5dp5dt)
    Betas: 9dp5dt 205, 11dp5dt 497, 14dp5dt 1,709
    u/s at 5w0d- 1 sac; u/s at 6w0d 1 baby with heartbeat, another sac without a heartbeat
    image


  • Thank you so much ladies for sharing in my excitement over this!  :)  I woke up today and felt so much lighter than I did 2 days ago.  I thought "Life is good."  And then I sent the following email to my Dr who is scheduled to do the surgery 8/29.  I really do think she'll understand why I chose to reschedule with a different Dr.  I just felt the need to explain to her why I made the decision. - - - 

    "Hi Dr T,

    I have been feeling extremely anxious about the high probability of laparotomy with the surgery scheduled for 8/29. To cover all my bases, I contacted Dr Y at San Leandro for a 2nd opinion. She has some experience in dealing with extremely large fibroids like mine. Upon reviewing my MRI results, she feels confident that she can remove my fibroids by laparoscopic or robotic means. Her plan for me would involve 2 months treatment with Lupron to shrink the fibroids, then scheduling the surgery for late Oct/Nov. I've decided to cancel my surgery on 8/29 and reschedule with Dr Y. I will shred the triplicate you gave me for Percocet as I won't be needing it for now.

    I really appreciate you responding so promptly to all of my questions and keeping me well informed every step of the way. I'm especially grateful that you were so honest with me about how you saw the surgery going on 8/29. I know my case is quite challenging. Thank you so much for everything!"
    **Formerly EastBayBride508**

    Me 34   Him 33

    Me - Left salpingo-oophorectomy at 19 due to large cyst/torsion  and 2 large uterine fibroids found at age 30
    Him - Borderline low sperm count (correcting through Fertility Blend supplement)

    Married 8/20/2011
    TTC #1 since Jan 2013
    First appointment with RE 10/2013.  
    April 2014 - Clomid 100mg CD3-7.  HCG shot CD10 IUI #1 done on 4/12/14 (CD12) ....BFN
    May 2014 - Break cycle to repeat saline sonogram and re-group.  Travel to Kauai 5/7-5/12 (Yay!!)
    June 2014 - Clomid 150mg CD4-8.  HCG shot CD14.  IUI#2 done on 6/9 and 6/10 (CD15-16) w/ Prometrium suppositories during TWW .... BFN
    July 2014 - Clomid 150mg CD3-7.  Ultrasound CD12 - 4 mature follies! HCG trigger shot CD12 AM.  IUI#3 on CD13 w/ Prometrium suppositories during TWW ....BFN
    July 2014 - Repeat ultrasound done to measure size of fibroid - 8x9cm (the size of a grapefruit!) Surgery referral made.
    August 2014 - MRI done which revealed 2 fibroids: a 13x15cm fibroid as well as an 8x7cm one.  Super freak out mode over surgery plan.  OB-GYN/surgeon said surgery would most likely have to be a laparotomy (open abdominal surgery)
    August 2014 - After a 2nd opinion, plan to take Lupron x 2 months to shrink fibroids then laparoscopic/robotic myomectomy.  Surgery date is set for Nov 21st!  
    November 2014 - Robotic myomectomy done (2 large fibroids removed, mild endo found).  Benched x 3 months

    PAIF/SAIF welcome
  • Awesome news!!

    -----------------------------------SIGGY WARNING-------------------------------------


    Me: 31| DH: 36
    TTC #1 Since 07/2010
    DX: Unexplained Infertility
    TX: 
    IUI #1 on 7/3/14 100 mg Clomid + Ovidrel + IUI (44 million sperm, 1 dominant follie) = BFN
    IUI #2: on 7/28/14 100 mg Clomid + Ovidrel + IUI (23 million sperm, 2 dominant follies) = BFN

    IUI #3 on 8/22/2014 100 mg Clomid + Ovidrel + IUI (53 million sperm, 2 dominant follies)= BFP MMC @ 7weeks


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