High Risk Check In!

missnacholover · August 2014

I don't think we've done one of these for a while...

How far along are you/EDD?

What makes you high risk?

How are you managing (emotionally and physically?)

Any appointments you want to AW?

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be?

missnacholover · August 2014

How far along are you/EDD? 25w6d , 11/11

What makes you high risk? Type 1 diabetes, Hashimotos

How are you managing (emotionally and physically?) Pretty good emotionally - trying to roll with the punches. Sometimes I get a little anxious if my numbers are misbehaving, but that is bound to happen. Physically, good! My last a1c was 6.2 and they want me below 6.5! I've been having some problems with my feet hurting but I think that's normal pregnancy stuff.

Any appointments you want to AW? Not really! Go to my endocrinologist in next week and week later I have my 28 week ultrasound/appointment. Then it goes to every other week appointments and I feel like time is going to fly then!

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? Probably pasta. Or Mexican. Or beer?

Lilwatz · August 2014

How far along are you/EDD? 27 weeks, 11/3/14!

What makes you high risk? Super Blood Clotter and Hashimoto's!

How are you managing (emotionally and physically?) I am doing super fine with the pregnancy part. My thyroid levels have been AWESOME the whole time so far. Also, the injections for the blood thinners are not fun twice a day, but I am soooooooo used to them (been doing since since we started trying in January 2013).

I will say that emotionally I am becoming more and more anxious thinking about delivery. From what I can tell my options are a c-section or being induced. Both pose blood clotting risks and I don't really feel safe with either option. I keep telling myself that many women with my condition have safe births, but it's just daunting.

Any appointments you want to AW? Yes! I have a second anatomy scan on Wednesday and I am sooooo excited to see my little girl wiggling around again!!!!

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? I am not sure I can choose one, but donuts sounds good right now, so I'll say donuts.

ETA: GTKY! I skipped it when I posted! Oops!

PennyLane26 · August 2014

How far along are you/EDD? 23 weeks ish, EDD 11/26

What makes you high risk? hypertension, history of GD and PreE

How are you managing (emotionally and physically?) Physically - great! my BP is great on my meds still. I've been going for checkups every 2 weeks since 20 weeks. I passed my 1 hour GTT in first tri, but am scheduled to retake it in 4 weeks. Not very hopeful about passing, but last time it was diet controlled so I will take that at least!

Emotionally I'm starting to get anxious about developing PreE again now that I am getting closer to third tri. My HBP wasn't chronic with my last pregnancy but it is now, so I feel like I am already one step closer to experiencing it again. Trying to stay positive!

Any appointments you want to AW? A/S was great! Found out we are having a boy and he looks very healthy! So excited!

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? Anything chocolate - chocolate ice cream, candy, cookies… I'm a chocoholic.

PennyLane26 · August 2014

NinerGirl52 said:

How far along are you/EDD? 25 weeks (tomorrow)/Nov. 18

What makes you high risk? Multiple blood clotting disorders (Factor V, MTHFR, Protein A & C deficiencies and +ANA = Perfect storm of clotting disorders)

How are you managing (emotionally and physically?) So far so good.

Any appointments you want to AW? I have a Dr. appt this afternoon and am eager to see the little guy moving around. I've been feeling little "tremors" (for lack of a better term) and am afraid to google what that could mean. I started feeling them yesterday in between his kicking. We'll see what the Dr. says.

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? Chocolate, any and all forms of chocolate.

Hopefully it's just hiccups!

CariLS8 · August 2014

I'm not high risk, but I was reading through this and just wanted say you ladies rock! It's hard enough being pregnant, but I just wanna give you props for going through the worries and what not of high risk. I'm sure it's tough but you ladies are awesome

:-bd

sweetyq1984 · August 2014

How far along are you/EDD? 23 weeks 5 days/Nov 27th

What makes you high risk? Graves disease, PIH, short and slightly detached Right round ligament

How are you managing (emotionally and physically?) Ive been on bed rest since we found out I was pregnant due to the round ligament not being attached properly after having surgery two years ago. So, Im kinda over this whole feeling crappy thing. Ive been sick (N/V) since the first trimester. Im just ready for LO to be here!

Any appointments you want to AW? Appointment this morning. I was told that my PIH will most likely be preeclampsia because Ive had a kidney infection in the last year. Also, found out that having a thyroid disorder makes you more likely to have GD. So, I go in two weeks for my 3 hour glucose test

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? Ice Cream

kellyz86 · August 2014

How far along are you/EDD?
26 weeks tomorrow. Due 11/11

What makes you high risk?
Uterus dydelphis and previous mc

How are you managing (emotionally and physically?)
Pregnancy has been great, but back problems like I would not hav dreamed of. Found out I have had a herniated disc, spinal stenosis, and scoliosis (from scans from last year noone looked at for hose problems). My joints loosening has caused me extreme pain and I cannot stand straight (I hunch).
I will see pain managment again and if they can't hekp I will see nuerology.

Any appointments you want to AW?
Other then possibly seeing nuerology MFM does not think I need to be seen as often now,

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be?
Carbs!

Deardra77 · August 2014

How far along are you/EDD? 24 weeks 2 days EDD 11/23/14

What makes you high risk? insulin dependent GD (AMA too but obviously that itself isn't high risk)

How are you managing (emotionally and physically?) Emotionally this pregnancy has been a breeze! Last pregnancy was a total stress fest, started with being told we had a 7% chance of live birth after RISCI, the subchronic hematoma, the loss of the twin, the GD diagnosis, LOs heart decelerations in the last few week, low fluid etc. This pregnancy has been sooo much more boring, ISCI rather than RISCI removed a lot of the stress, we only did a sET and having had GD before I know the drill so it's not full of the terror of not knowing how ever piece of food you eat will effect your blood sugars and stressing about the damage the high numbers can cause. I feel in control of my numbers & know how my body reacts to different foods so can make the right choices.

Physically has been going really well too. Still tired a lot, never did have that fade after first trimester which is a bummer but if that's as bad as it gets I'll take it! Still having a lot of ongoing and stabbing pain in the progesterone injection sites (read both butt cheeks!). Last pregnancy there wasn't pain but one cheek was numb until I was 28 weeks. Perinatologist said the pain this time around may not stop until after I deliver due to the cumulative effect of all the injections (at this point 22 weeks of everyday 1.5 inch 22 gauge needles for 154 total. wow.) But yeah overall doing grand.

Any appointments you want to AW? Met with the perinatologist last week. Last pregnancy I had to be induced 3 weeks early due to my placenta degrading due to the GD and causing low fluid levels (got down to a 3!!!). She said that unlike with high fluid that it happening once before doesn't make it more likely to happen again (TG!). She said if it was to happen again we will try to push the induction further out so we avoid a NICU stay this time around. Drips will be my friend!

Have a plan from here out. Will be written out of work in the 35th week. Will be induced in the 39th week. Have my next appointment at 28 weeks and then every 2 weeks with the perinatologist. Starting at 32 weeks will have twice weekly NSTs and once (maybe twice depending on how things are holding up) a week ultrasounds. My big hope is to make it further along before having to be induced.

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? Chocolate, ice-cream, baked goods etc. But that is just cause I can't have any at all right now and finding it hard! When I don't have GD I think it would be Alaskan King crab legs in drawn butter. Yum.

missnacholover · August 2014

Deardra77 said:

How far along are you/EDD? 24 weeks 2 days EDD 11/23/14

What makes you high risk? insulin dependent GD (AMA too but obviously that itself isn't high risk)

How are you managing (emotionally and physically?) Emotionally this pregnancy has been a breeze! Last pregnancy was a total stress fest, started with being told we had a 7% chance of live birth after RISCI, the subchronic hematoma, the loss of the twin, the GD diagnosis, LOs heart decelerations in the last few week, low fluid etc. This pregnancy has been sooo much more boring, ISCI rather than RISCI removed a lot of the stress, we only did a sET and having had GD before I know the drill so it's not full of the terror of not knowing how ever piece of food you eat will effect your blood sugars and stressing about the damage the high numbers can cause. I feel in control of my numbers & know how my body reacts to different foods so can make the right choices.
Physically has been going really well too. Still tired a lot, never did have that fade after first trimester which is a bummer but if that's as bad as it gets I'll take it! Still having a lot of ongoing and stabbing pain in the progesterone injection sites (read both butt cheeks!). Last pregnancy there wasn't pain but one cheek was numb until I was 28 weeks. Perinatologist said the pain this time around may not stop until after I deliver due to the cumulative effect of all the injections (at this point 22 weeks of everyday 1.5 inch 22 gauge needles for 154 total. wow.) But yeah overall doing grand.

Any appointments you want to AW? Met with the perinatologist last week. Last pregnancy I had to be induced 3 weeks early due to my placenta degrading due to the GD and causing low fluid levels (got down to a 3!!!). She said that unlike with high fluid that it happening once before doesn't make it more likely to happen again (TG!). She said if it was to happen again we will try to push the induction further out so we avoid a NICU stay this time around. Drips will be my friend!
Have a plan from here out. Will be written out of work in the 35th week. Will be induced in the 39th week. Have my next appointment at 28 weeks and then every 2 weeks with the perinatologist. Starting at 32 weeks will have twice weekly NSTs and once (maybe twice depending on how things are holding up) a week ultrasounds. My big hope is to make it further along before having to be induced.

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? Chocolate, ice-cream, baked goods etc. But that is just cause I can't have any at all right now and finding it hard! When I don't have GD I think it would be Alaskan King crab legs in drawn butter. Yum.

I once calculated the number of shots I've given myself over the past 15, almost 16 years. It's sick.

4-6 shots/day for 3.5 years I've been off insulin pump therapy (we'll average at 5) = 6387

Changing insulin pump site every 2.5 days for 12 years...1752

Testing blood sugar an average of 8x/day = 45260

I'm tired. Haha.

JustJainey · August 2014

How far along are you/EDD? 23wks, 5days (due Nov 27/14

What makes you high risk? Multiple abdominal surgeries resulting in digestive malabsorption syndrome, significant internal adhesions and SIBO. Oh and I'm a "geriatric pregnancy" *smirk*

How are you managing (emotionally and physically?) Physically I'm mainly just tired and have wicked acid reflux. All my blood work has been positive and the effort put into getting all my vitamin and other levels up into normal ranges before getting pregnant seems to be helping. Taking all my supplements and actually benefitting from the slower digestion which accompanies pregnancy. Emotionally have been struggling with anxiety. Am constantly double/triple checking potential risks with my OBs & Gastros which I will say they have all been receptive to. They seem to be doing checks and balances with each other too, which is nice. Happily, everything has recently been centralized in a computer system which all can access, which wasn't the case even six months ago and very challenging at times since I'm dealing with specialists in three separate hospitals.

Any appointments you want to AW? Met with the OB on July 21st and they were able to quickly get back results on my blood clotting, since Vit A deficiency is a concern. All was good *yippee* Seeing the consulting Gastro on August 15th and the OB again on August 18th.

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? It would have to be sweets - I have a terrible sweet tooth and it's my #1 vice, especially since sugar really adds no nutritional value. That sugar slut is purely emotional support!

Deardra77 · August 2014

missnacholover said:

Deardra77 said:

How far along are you/EDD? 24 weeks 2 days EDD 11/23/14

What makes you high risk? insulin dependent GD (AMA too but obviously that itself isn't high risk)

How are you managing (emotionally and physically?) Emotionally this pregnancy has been a breeze! Last pregnancy was a total stress fest, started with being told we had a 7% chance of live birth after RISCI, the subchronic hematoma, the loss of the twin, the GD diagnosis, LOs heart decelerations in the last few week, low fluid etc. This pregnancy has been sooo much more boring, ISCI rather than RISCI removed a lot of the stress, we only did a sET and having had GD before I know the drill so it's not full of the terror of not knowing how ever piece of food you eat will effect your blood sugars and stressing about the damage the high numbers can cause. I feel in control of my numbers & know how my body reacts to different foods so can make the right choices.
Physically has been going really well too. Still tired a lot, never did have that fade after first trimester which is a bummer but if that's as bad as it gets I'll take it! Still having a lot of ongoing and stabbing pain in the progesterone injection sites (read both butt cheeks!). Last pregnancy there wasn't pain but one cheek was numb until I was 28 weeks. Perinatologist said the pain this time around may not stop until after I deliver due to the cumulative effect of all the injections (at this point 22 weeks of everyday 1.5 inch 22 gauge needles for 154 total. wow.) But yeah overall doing grand.

Any appointments you want to AW? Met with the perinatologist last week. Last pregnancy I had to be induced 3 weeks early due to my placenta degrading due to the GD and causing low fluid levels (got down to a 3!!!). She said that unlike with high fluid that it happening once before doesn't make it more likely to happen again (TG!). She said if it was to happen again we will try to push the induction further out so we avoid a NICU stay this time around. Drips will be my friend!
Have a plan from here out. Will be written out of work in the 35th week. Will be induced in the 39th week. Have my next appointment at 28 weeks and then every 2 weeks with the perinatologist. Starting at 32 weeks will have twice weekly NSTs and once (maybe twice depending on how things are holding up) a week ultrasounds. My big hope is to make it further along before having to be induced.

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? Chocolate, ice-cream, baked goods etc. But that is just cause I can't have any at all right now and finding it hard! When I don't have GD I think it would be Alaskan King crab legs in drawn butter. Yum.

I once calculated the number of shots I've given myself over the past 15, almost 16 years. It's sick.

4-6 shots/day for 3.5 years I've been off insulin pump therapy (we'll average at 5) = 6387

Changing insulin pump site every 2.5 days for 12 years...1752

Testing blood sugar an average of 8x/day = 45260

I'm tired. Haha.

Yikes, really does add up doesn't it! I'm just 3 shots a day right now. Will end up mixing N & R for lunch too in the next few weeks in the am I am pretty sure but that will still keep it to 3 shots. One for breakfast (soon to be R & N combined), one for dinner (R) and one for overnight (N). When you need more than that what times of day do you have to take them? My brain isn't even understanding where 6 times could happen. Maybe if numbers are high after a meal a top up injection to help bring it down fast or something?

I test between 4 & 8 times a day (most often closer to 4). Between both pregnancies & IVFs I'll still be less than 3,000 subcutaneous injections. Suppose around the same number of finger pricks. But they are a walk in the park, its the intramuscular ones that hurt like a MF. My medical providers did a group class on GD & blood monitoring and went through the testing supplies with the group, was the funniest thing, I was like that is the smallest thing I have ever seen but most of the women in the class were freaking out about the tiny testing needle (not even an insulin needle!). Some were closing their eyes and having the husbands do it for them, not even kidding! It's all prospective, after having so many needles that are an inch and a half long this little diabetes ones no longer look so bad & you can't even feel them. When they told me I needed to start meds they had said I'd start out on glyburide but as I wasn't afraid of the needles I asked to go straight to insulin. Glad it was an easy choice to make as I probably would have been freaking out about the needles if I hadn't done IVF. Insulin needles are the same as what is used for injecting Lupron for IVF. It's the first type of needle that you use over the course of treatments and the easiest to use so a nice introduction (there is no reconstitution of meds, the medication doesn't burn, doesn't leave bruises or hurt and if you accidently depress the plunger you haven't just lost $$$).

Curious being T1 & pregnant what your target blood sugar levels are? Mine is 90 or below fasting & 130 or below after 1 hour of eating. What are your medical providers plans for during labor & blood sugar management? My labor was quite short with my DS (induced) and they never went out of control (I don't think they had insulin in the drip but maybe they did, I tried to just let them deal with it and relax and not freak out about everything). Last pregnancy I didn't have many low BS events but this time around if I don't eat right at 2 hours after breakfast I start to crash. I have gotten as low as 32 one day (I know, total accident, fell asleep with my son for what I thought was a short nap but we ended up sleeping for 1.5 hours, felt pretty awful!). I know the risks of high blood sugars, what are the risks to the baby from low blood sugars? Like if I am in the 50s does that harm the baby...they don't seem to talk much about it, just high BS

Lilwatz · August 2014

@Deardra77 and @missnacholover wowsa! I've been complaining left and right about my two blood thinner injections per day since January 2013. You both win!

Every month we did not get pregnant I thought, there was a wasted 60 shots (I am on an oral drug when not baby making)!

amtay825 · August 2014

How far along are you/EDD? 24 weeks / Nov 25

What makes you high risk? MTHFR, previous 2nd tri loss due to incompetent cervix, and baby has cdh.

How are you managing (emotionally and physically?) Emotionally, good days and bad days. More good than bad though. I have lots of faith and rely on God to get me thru this whole thing. Physically...lots better than last pregnancy I can tell you that!! Waaaaay better! Feet hurt, hands and feet swell...but I'll take it any day over all the probs last time. I also have high fluid levels so that's no fun.

Any appointments you want to AW? Yesterday I had another us, got to see my sweet boy yawn, bring his toes to his nose, wave, and scratch his head lol. We also got better news on his cdh condition. His right lung is growing better than expected so we are very thankful for that! Can't see his right so don't know if its growing at all, but the measurements we got on just his right put him in a low risk category at birth for ecmo, basically life support until his lungs mature enough.

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? Would totally be sloppy hamburgers smothered with mayo and mustard with lettuce and pickles. Oh my I'm hungry lol

emily61111 · August 2014

How far along are you/EDD? 27w 1d: They are planning on taking me at 39 weeks- so October 27ish

What makes you high risk? DS #1 was preemie and had SVT and this little man will have to have open heart surgery after birth

How are you managing (emotionally and physically?) I am doing ok but am sick of all of the appointments. I try not to think about everything that is going to happen after birth.

Any appointments you want to AW? ehhh not really- Just sick of traveling 6 hrs round trip to appts every 2-3 weeks.

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? All different kinds of bread----YUM!!!

missnacholover · August 2014

Deardra77 said:

missnacholover said:

Deardra77 said:

How far along are you/EDD? 24 weeks 2 days EDD 11/23/14

What makes you high risk? insulin dependent GD (AMA too but obviously that itself isn't high risk)

How are you managing (emotionally and physically?) Emotionally this pregnancy has been a breeze! Last pregnancy was a total stress fest, started with being told we had a 7% chance of live birth after RISCI, the subchronic hematoma, the loss of the twin, the GD diagnosis, LOs heart decelerations in the last few week, low fluid etc. This pregnancy has been sooo much more boring, ISCI rather than RISCI removed a lot of the stress, we only did a sET and having had GD before I know the drill so it's not full of the terror of not knowing how ever piece of food you eat will effect your blood sugars and stressing about the damage the high numbers can cause. I feel in control of my numbers & know how my body reacts to different foods so can make the right choices.
Physically has been going really well too. Still tired a lot, never did have that fade after first trimester which is a bummer but if that's as bad as it gets I'll take it! Still having a lot of ongoing and stabbing pain in the progesterone injection sites (read both butt cheeks!). Last pregnancy there wasn't pain but one cheek was numb until I was 28 weeks. Perinatologist said the pain this time around may not stop until after I deliver due to the cumulative effect of all the injections (at this point 22 weeks of everyday 1.5 inch 22 gauge needles for 154 total. wow.) But yeah overall doing grand.

Any appointments you want to AW? Met with the perinatologist last week. Last pregnancy I had to be induced 3 weeks early due to my placenta degrading due to the GD and causing low fluid levels (got down to a 3!!!). She said that unlike with high fluid that it happening once before doesn't make it more likely to happen again (TG!). She said if it was to happen again we will try to push the induction further out so we avoid a NICU stay this time around. Drips will be my friend!
Have a plan from here out. Will be written out of work in the 35th week. Will be induced in the 39th week. Have my next appointment at 28 weeks and then every 2 weeks with the perinatologist. Starting at 32 weeks will have twice weekly NSTs and once (maybe twice depending on how things are holding up) a week ultrasounds. My big hope is to make it further along before having to be induced.

GTKY: If you could eat one food for the rest of your life guilt-free, what would it be? Chocolate, ice-cream, baked goods etc. But that is just cause I can't have any at all right now and finding it hard! When I don't have GD I think it would be Alaskan King crab legs in drawn butter. Yum.

I once calculated the number of shots I've given myself over the past 15, almost 16 years. It's sick.

4-6 shots/day for 3.5 years I've been off insulin pump therapy (we'll average at 5) = 6387

Changing insulin pump site every 2.5 days for 12 years...1752

Testing blood sugar an average of 8x/day = 45260

I'm tired. Haha.

Yikes, really does add up doesn't it! I'm just 3 shots a day right now. Will end up mixing N & R for lunch too in the next few weeks in the am I am pretty sure but that will still keep it to 3 shots. One for breakfast (soon to be R & N combined), one for dinner (R) and one for overnight (N). When you need more than that what times of day do you have to take them? My brain isn't even understanding where 6 times could happen. Maybe if numbers are high after a meal a top up injection to help bring it down fast or something?
I test between 4 & 8 times a day (most often closer to 4). Between both pregnancies & IVFs I'll still be less than 3,000 subcutaneous injections. Suppose around the same number of finger pricks. But they are a walk in the park, its the intramuscular ones that hurt like a MF. My medical providers did a group class on GD & blood monitoring and went through the testing supplies with the group, was the funniest thing, I was like that is the smallest thing I have ever seen but most of the women in the class were freaking out about the tiny testing needle (not even an insulin needle!). Some were closing their eyes and having the husbands do it for them, not even kidding! It's all prospective, after having so many needles that are an inch and a half long this little diabetes ones no longer look so bad & you can't even feel them. When they told me I needed to start meds they had said I'd start out on glyburide but as I wasn't afraid of the needles I asked to go straight to insulin. Glad it was an easy choice to make as I probably would have been freaking out about the needles if I hadn't done IVF. Insulin needles are the same as what is used for injecting Lupron for IVF. It's the first type of needle that you use over the course of treatments and the easiest to use so a nice introduction (there is no reconstitution of meds, the medication doesn't burn, doesn't leave bruises or hurt and if you accidently depress the plunger you haven't just lost $$$).
Curious being T1 & pregnant what your target blood sugar levels are? Mine is 90 or below fasting & 130 or below after 1 hour of eating. What are your medical providers plans for during labor & blood sugar management? My labor was quite short with my DS (induced) and they never went out of control (I don't think they had insulin in the drip but maybe they did, I tried to just let them deal with it and relax and not freak out about everything). Last pregnancy I didn't have many low BS events but this time around if I don't eat right at 2 hours after breakfast I start to crash. I have gotten as low as 32 one day (I know, total accident, fell asleep with my son for what I thought was a short nap but we ended up sleeping for 1.5 hours, felt pretty awful!). I know the risks of high blood sugars, what are the risks to the baby from low blood sugars? Like if I am in the 50s does that harm the baby...they don't seem to talk much about it, just high BS

Haha. Sometimes when I test a friend's blood sugar, they will freak out as well. It's funny! It's really not a big deal and I'm so used to it by now. I can't imagine a day w/out testing or bolusing insulin!

The plan right now is that they will put me on an insulin drip as labor progresses. I actually have my appointment with my endo next week so I'll be asking a lot of questions. My targets have been 90 for fasting and 140 1 hours post meal, 120 2 hours. I haven't been 100% perfect but my A1c has been steady under 6.5 which is the goal. Baby is looking great so that's all that matters! I have noticed insulin resistance has kicked in so I imagine I'm going to have to change up my diet a bit.

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