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Anyone's kid had a neurology consult?
Sooo...EI was out here today to do a follow eval for DS (the main focus has been speech). They found that he has a very mild expressive language delay, but his receptive language is great/age appropriate. They don't feel that he needs direct speech therapy right now.
But they did seem a little concerned about his unsteady gait when walking and frequent tripping/falling. He's 18 1/2 mo now, and he just started walking at 16mo, but they said better safe than sorry (since its been 2 months with minimal improvement in his balance/steadiness), and suggested we see the pedi and ask about it. Well, the pedi is not overly concerned, and mentioned it very well could be just an isolated motor delay, as he is still young/newer to walking, and he isn't exhibiting anything abnormal neurologically, but said a Neuro consult wouldn't hurt just rule out any possible neurological causes.
Can anyone tell me what to expect? Of course im freaking out and thinking the worst and im just plain fucking nervous/scared. I just want this appt to be done and over with.
But they did seem a little concerned about his unsteady gait when walking and frequent tripping/falling. He's 18 1/2 mo now, and he just started walking at 16mo, but they said better safe than sorry (since its been 2 months with minimal improvement in his balance/steadiness), and suggested we see the pedi and ask about it. Well, the pedi is not overly concerned, and mentioned it very well could be just an isolated motor delay, as he is still young/newer to walking, and he isn't exhibiting anything abnormal neurologically, but said a Neuro consult wouldn't hurt just rule out any possible neurological causes.
Can anyone tell me what to expect? Of course im freaking out and thinking the worst and im just plain fucking nervous/scared. I just want this appt to be done and over with.
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Re: Anyone's kid had a neurology consult?
I just really hope the pedi's hunch is right abd this just a simple motor delay that he'll end up catching up in time with.
Eta also, like you mentioned about every kod having this own timeline, the reassuring part of our pedi appt was that she aaid "you wouldn't believe how many 18 month olds come in this office walking just like your son is, and by their 2yr appt, they're running down the hall!" She did say this type of thing os super common at his age, so I'm really just hoping this consult is to err on the side of caution and gives us some reassurance.
Did they determine a cause of the low tone? Did they need to do any additional testing/imaging to conclude low tone as the main issue? I'm terrified that they'll end up ordering all these tests/imaging. Whats the . Prognosis? Ive heard so many things about low muscle tone and whether or not there is a significant cause/impact and it can be difficult to navigate to through such a wide range of info. Though I have heard low tone can be more common than we think (a PT i used to go to saidnher DD had low tone and is now a perfectly healthy, active kid which is encouraging!).
I wish you guys the best of luck! EI has been amazing for us, so its great that your son is getting services.
They said the wait time is based on the needs of each case. I'm hoping we dont have a huge wait time, bc my anxiety will be ridiculous until we get it done and over with!
DD was born at 35 weeks and had some delays. She was delayed in speech and didn't walk until 15 months (almost 16). She probably was still tripping a lot at your son's age. We were referred to the Dev Pedi at 15 months, for speech, she had maybe 2 words. He had no concerns about her speech, she didn't qualify for EI based on receptive, and wasn't concerned about her not walking. He did say she was hypotonic, mainly in her core, but that it was very common and he didn't recommend PT. He would have reevaluated her if she wasn't walking or saying any additional words by 18 months, but shortly after our appointment she made big leaps and caught up.
Around this same time we also went to a neurologist for an EEG, because she was having absent seizures. The neuro did an 'eval' after her EEG. Mainly he watched her walk, stand, and sit. Poked and prodded a bit, checked her pupils, and declared her fine.
Obviously it is good to get it checked out but my DD will be 4 in November and is completely fine. I have noticed that she is tends to be on the later end of milestones, but whenever I start to worry about something she usually does it soon after. She also doesn't tend to do learning stages, she just doesn't and then does (she wouldn't climb at all and then climbed a 8 foot ladder at the playground by herself). Your DS sounds similar to my DD, hopefully it will be similar, lots of worry about nothing.
He's been on te later side with a lot of his milestones, but once he finally does something, he does it like its nbd. The pedi also mentioned once that his tone was a little low, but definitely not enough to cause concern.
Glad to hear all checked out fine with your DD! I'm hoping to god we have the same type of outcome! But man, this process of evaluation/waiting for dr appts, etc is nerve wracking!
Good luck!