XP from IFV: Consult Today — The Bump
Infertility

XP from IFV: Consult Today

This is an XP for IFV and got a little long. SIA!

After a few bad consultations with my last RE we decided it was time to move on. With my history of auto immune issues and now that we are moving on to treatments with a RI, I would like to be at a clinic that at least accepts the idea that auto immune issues might affect fertility which really limits the clinics in my area (especially if you are also looking for a large clinic with a good lab). We decided to stay with my clinic, but switch to the clinic's RE (medical director) instead of my RE that just uses the clinic for his IVF cycles.

We had our consultation and I really wish we would have switched sooner! I already knew I liked this RE from my interactions with her during monitoring appointments, but my husband really likes her as well. She really thinks it's too early to push us down the donor path like my original RE did (although she would support that decision if we wanted to go that route). DH even flat out asked her if we had a shot at this working with our eggs and sperm and she said yes she thinks it's worth another shot. We talked about all sorts of ideas and treatment options and she was patient and answered each question (My last RE would always dismiss any sort of genetic testing because he would just tell me that he can't change my DNA and he can't change DH's DNA). We went ahead and ordered the DQ alpha match testing (Dr. KK doesn't order that test) and we are also talking about testing Sperm DNA fragmentation and maybe doing Karyotyping on both of us. Hopefully this along with the immune testing with Dr. KK, should rule out any other issues that might be standing in our way.

Right now the plan is to do one last IVF with my eggs and DH's sperm (assuming all comes back fine with our DQ alpha testing, Karyotyping if we decide to do it, and his sperm DNA fragmentation testing) probably November or December. We are changing up the protocol though and using an EPP instead of the Agonist/Antagonist protocol I was on before. She also was willing to add lovenox (if Dr. KK doesn't add it) just because she has seen it seem to help some women get pregnant, even if she doesn't see a specific diagnosis that indicates it. We also talked about IVIG vs. intralipids. I know Dr. KK uses IVIG for high NK cells, but she is more than willing to order intralipids if we can't afford the IVIG. She said that she has even ordered double the intralipids for some patients. She also talked to the financial coordinator and they are giving us an extra 15% off of our cycle fees since this is our 4th IVF cycle with them. The financial coordinator also gave us forms for First Steps and Compassionate Care forms and recommended that we fill them out and see if we will qualify (I already have a First Steps code good until December, but she thought I might be able to qualify for a better discount).

Finally, I am feeling hopeful about treatment again. It's nice to have a doc that is willing to make sure we have tried everything before recommending that we give up on biological children.

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TTC #1 since August 2011

My Blog

September 2012: Start IF testing

DH (32): SA is ok, slightly low morph, normal SCSA  Me (32): Slightly low progesterone, hostile CM, carrier for CF, Moderately high NKC, High TNFa, heterozyogous mutated Factor XIII, and +APA

October 2012-May 2014: 4 failed IUIs, 3 failed IVFs, and 1 failed FETw/donor embryos

November 2014: IVF w/ICSI #4 Agonist/Antagonist with EPP and Prednisone, Baby Aspirin, Lovenox, and IVIG for immune issues.  Converted to freeze all due to lining issues.  2 blasts frozen on day 6!

January 2015: FET #2 Cancelled due to lining issues

April 2015: FET #2.1


PAIF/SAIF Welcome!

[Deleted User]Carol77BpblgeAMSharkronniesgirl1981[Deleted User]AuroraP725[Deleted User]Sunny BLillovebug79sweetpotato123KT416Mozzarella13

Re: XP from IFV: Consult Today

  • I'm so happy for you @Twinkie0612‌! You deserve to have a RE that you like and that listens to you! I'm keeping everything crossed for you!
    **********SIGGY/TICKER WARNING**********

    ALL WELCOME!
    TTC since 04/12
    Me- 26 PCOS
    DH- 28 MFI
    10/13 IUI #1 (1 follie)- BFP
    !
    11/13 M/C @9 wk due to tetraploidy, one little boy in heaven
    01/14 IUI#2 (1 follie) BFN
    02/14 IUI #3 (3 follies) BFN
    03/14 IUI #4 (2 follies) BFN
    05/14 IVF/ICSI #1 CXL
    07/14 IVF/ICSI #1.2 6R, 6M, 5F, 2T, 2 frosties!
    Transferred 2-5dt  CP
    09/14 FET #1 BFP! Beta #1 52 Beta #2 152!
    10/20/14- It's TWINS!
    1/15- TEAM PURPLE!
    image
    BabyFruit Ticker
    Pregnancy Ticker
    Twinkie0612
  • jlb902jlb902 member
    Eighth Anniversary 250 Love Its 100 Comments Photogenic
    Glad you found a great RE!!

    *** BFPs and Loss Mentioned ***


    TTC since 08/2012

    BFP 12/28/12-- EDD 9/19/13-- M/C (d&c) on 1/31/13

    7/15/14 -- IVF #1

    ER on 7/26/14 -- 15 R, 8F

    ET on 7/31/14 -- 1 transferred (4aa); 4 frosties!!!

    BFP 8/5/14-- EDD 4/18/15

    Beta #1 (14dpo):  223, Beta #2 (17dpo): 898

    First u/s -- 8/28/14= 1 beautiful baby with a hb of 131

    10/25/14- It's a GIRL!

    11/24/14- DX with Complete Placenta Previa (Stage IV)

    1/12/15- Placenta Previa has moved to Marginal!! (Stage II)

    image

    BabyFruit Ticker

     

    Twinkie0612
  • Sounds like a really solid and promising plan. I love that she is so flexible and open. I really hope that there isn't anything insurmountable in the test results to prevent you from using your eggs and DH's sperm for the next IVF. Are you going to move forward with prepping for #4 before your initial meeting with Dr. KK? What's your timeline, do you think?

    You mention that you are going to do EPP instead of antagonist. I was on EPP with antagonist, do you know how your new protocol is going to differ? Is it just the EPP that is new or is there something else they expect to do with the meds?

    ***************************Loss Mentioned***************************


    Me 37 y/o, DH 45 y/o; DH vasectomy reversal (his 2nd marriage) 11/8/12; TTC since 12/8/12. IVF due to MFI. DOR diagnosis April 2015.

     

    IVF #1 BCPs/Antagonist w/ICSI Jan 2014 = BFN

    IVF #2 MDL w/PICSI March 2014 = BFN

    IVF #3 EPP/Antagonist w/PICSI May/June 2014 = BFP!; MMC 6w4d

    IVF #4 No suppression/Antagonist Nov 2014/Converted to IUI #1 = BFN

    IVF #4.1 Feb 2015 = cancelled

    IVF #4.2 April 2015 - Lupron Stop Protocol with ICSI = PGD testing of embryo indicated it was abnormal

    IVF #5 June 2015 EPP with Antagonist 

     

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    Everyone welcome!

    Twinkie0612
  • pblgepblge member
    2500 Comments Fifth Anniversary 500 Love Its Photogenic
    Wow, this all sounds really promising! Great that you even get a discount, although it sucks that it's because you've been through so much. How soon will you be able to cycle?

    Re this:
    (My last RE would always dismiss any sort of genetic testing because he would just tell me that he can't change my DNA and he can't change DH's DNA).
    Wow, just wow.
    **********************siggy/ticker warning**********************

    ***Losses mentioned.*** TTC #1 since May 2012. Me: 37, OH: 41. Ectopic August 2012 => tubal damage. :'(  Stage 1 endo removed June 2013. IVF #1 Oct/Nov 2013: Long Lupron with Gonal-F. 7R, 7M, 7F. 2 [email protected] Nothing frozen.  => M/C @ 8 wks. :'( Selected RPL panel all normal. Very hyper and brittle response to stims. IVF #2 (antagonist protocol) Feb 2014 => Converted to IUI (Perfect conditions). BFN. IVF #2.1 w/ new RE June 2014: Antagonist protocol. 33R, 31M, 30F, 19 blasts to test!!! I made it through without crashing!! :) Hats off to Dr. Fancypants!! ET of one 5AB blast. BFN. 13 10 CCS'ed snowflakes! FET #1 PUPO as of 7/29 Betas: 8/[email protected], 8/[email protected], 8/[email protected] (etc.) Two sacs on 8/15, one seen on 8/18 after a bleed. U/s 8/25 (6+3) "perfect": 5.9 mm + [email protected]! U/s 9/4 (7+6): 15.9 mm + [email protected] bpm! Please, PLEASE stick this time!!!!
    http://i955.photobucket.com/albums/ae39/catfreeburg/866da40f5178fed79efe23fc8a4e8a_zps4498a9cc.jpgimageimageimageimage
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  • So happy for you! We just consulted with two different REs, one at a boutique practice that clearly didn't want to treat us so it was one road block after another. He wouldn't provide a second opinion on prior cycles and seemed mainly concerned with protecting my old RE/repeating tests that were just done ($$$). Luckily I figured it out quickly and just left when he refused to commit to treating us if we did everything he suggested.

    The other is wonderful and we loved him right away. He's smart, efficient and all business. We're going to be doing an estrogen priming antagonist cycle as well. Yay for no OCPs!
    *** TW ***
    2013: BFP #1 - M/C 3/13
    2014: IVF #1-4 = BFFN
    2015: Dance break = got healthy
    7/2016: IVF #5 = BFP!!!
    Babysizer Cravings Pregnancy Tracker
    Twinkie0612
  • It sounds like a much better fit for you guys, hopefully she can help you guys get your baby!

    Me: 37 | DH: 41
    TTC Since 2011 DX: Unexplained 
    IUI's #1 - 3 = BFN
    IVF August 2014: FSH 4.1, PRL 15.3, TSH 2.1, W/ AFC 8.
     08/03 ER 5R, 4M, 3F. 08/08 5DT of 1-3AA0, 2 frozen :) bfp @9dp5dt. Beta on 08/20 = 414.
    So excited to have one little bean on the way!!
     
    image 

    Twinkie0612
  • I'm so happy you had such a positive and thorough consult! I hope all your testing goes great so you can go on to a successful cycle.
    Me - 32 H - 32
    Married July 2009
    TTC#1 since Feb 2013
    RE consult Oct 2013 due to short cycles/light periods
    Dx: Diminished ovarian reserve/unexplained thinned uterine lining
    IVF#1 May 2014 - Follistim/Menopur/Ganirelix - 7R 4M 3F - 1 frosty (4AB)
    IVF#2 August 2014 - Lupron/Follistim/Menopur - 9R 4M 0F
    IVF#3 w/ICSI September 2014 - Follistim/Menopur/Ganirelix - 4R 4M 4F - 1 frosty
    FET#1 Dec 2014 - Lupron/Estrace(transdermal and vaginal)/Viagra/G-CSF wash - Cancelled due to poor lining response
                                       Image and video hosting by TinyPicImage and video hosting by TinyPic
                                             Image and video hosting by TinyPicimage
    Twinkie0612
  • I am SO SO happy you are feeling so hopeful. It really sounds like your new RE is going to be great. As always, I'm pulling for you girl!
    TTC since May 2012
    Me: 32 H: 31
    DX: MFI-Very Low Count, I have Hashimotos.
    IVF prep September 2013 cancelled due to Ovarian Cyst
    IVF #1 October 2013 Antagonistic Protocol with ICSI  ER 10/31/13 (18R 16M 11F- 6 blasts to freeze)
    ET delayed due to OHSS 
    FET scheduled for July 8. Delayed due to a crazy high TSH (it had been under control for YEARS!)
    FET #1 8/5/14 sET BFN 

    All welcome!
    Twinkie0612
  • Good luck! Renewed hope and trust is a great thing!
    Twinkie0612
  • That sounds like such good news! Good luck!
    Me: 30 DH: 30 ~ TTC #1 Since August 2011 
    BFP #1 2/28/13, Ectopic, Tubal surgery 3/25 
    Began RE testing 8/8, Dx Unexplained, 
    IUI #1 11/1=BFN Moving on to IVF 
    IVF #1 12/2 ER 8R 7M 4 fertilized
    12/7 Transferred 2 "perfect" little blasts 12/17 BFN
    New DX= DOR, I fu*kng hate IF
    1/14 Hysteroscopy, new clean uterus!
    IVF #2: bcp, Lupron, follistim 300, menopur 225. 2/21 8R 4M 3F. 3dt of 2 perfect embryos. 1 little penguin 
     3/10 BFFN
    Regrouping. Seeing reproductive immunologist Dr. Kwak Kim 6/10 
    Kwak Kim protocol: Metformin 1000mg, vitamin D 4000iu, vitamin E 400iu, baby aspirin, Metanx, levothyroxine 75mcgs 
     Surprise BFP 9/21!!! Beta #1 247, Beta #2 630. Miscarried 10/13

    Twinkie0612
  • @Carol77B and @pblge we are waiting until after my consult and testing with Dr. KK to cycle again. My consult is in 2 weeks and I'll get the results in 5 weeks. We are hoping to cycle in either November or December. Right now we are just getting our testing out of the way. We did the DQ alpha match, next we'll probably do the karyotyping and DNA fragmentation testing for DH's swimmers. I'll also have to have all of my hormone levels done again and I'll need another SIS.

    imageimageimageimageimage

     

    image

    TTC #1 since August 2011

    My Blog

    September 2012: Start IF testing

    DH (32): SA is ok, slightly low morph, normal SCSA  Me (32): Slightly low progesterone, hostile CM, carrier for CF, Moderately high NKC, High TNFa, heterozyogous mutated Factor XIII, and +APA

    October 2012-May 2014: 4 failed IUIs, 3 failed IVFs, and 1 failed FETw/donor embryos

    November 2014: IVF w/ICSI #4 Agonist/Antagonist with EPP and Prednisone, Baby Aspirin, Lovenox, and IVIG for immune issues.  Converted to freeze all due to lining issues.  2 blasts frozen on day 6!

    January 2015: FET #2 Cancelled due to lining issues

    April 2015: FET #2.1


    PAIF/SAIF Welcome!

    pblgeCarol77B
  • That sounds great!


    Me 33, DH 37 -- TTC since Jan'12 -- Low AMH (0.78) & endo, SA w/ low motility
    IUI's 1-3 = BFN, IVF converted to IUI 4/13 = BFN
    IVF 1.2: 8R 6M 4F -- 2 blastocysts frozen, FET 8/15 = BFP!!
    Beta #s = 445;1,098; 9,545  -- EDD 5/2 -- Team Pink!
    Camila Josephine arrived 4/30 :)
    Twinkie0612
  • This sounds great and I am so happy you have a plan!
    **Signature Warning**

    Dx PCOS August 2012
    Clomid x4 = BFN
    Femara+Follistim IUIs x 6 = 3 BFN, 2 C/P, 1 early miscarriage
    IVF June 2014- 43 R, 34 M, 24 F, 12 blasts frozen and severe OHSS
    FET September 12, 2014!
    Beta #1 12dp5dt- 724
    Beta #2 14dp5dt- 1631
    Beta #3 20dp5dt- 12,813
    Pending EDD at first OB appointment 11/6. Grow babies grow!

    "I might have to wait. I'll never give up. I guess it's half timing, and the other half's luck. 
    Wherever you are, whenever it's right, you'll come out of nowhere and into my life." ~ Michael Buble

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    Twinkie0612
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