Just found out about LSIL

merge1013 · July 2014

Long story short. Lost 40 pounds, took blood tests, papsmear and waited for the baby making green light. Turns out I have low inter-blah blah squamous lesions... I forget the actual term. Anyway, I'm 29years and My Hubby is 31. I don't even know how to handle this... I have an OBGYN appointment in two weeks to discuss further the situation... But has anyone else dealt with this before while Trying to conceive?

KingLED · July 2014

merge1013 said:

Long story short. Lost 40 pounds, took blood tests, papsmear and waited for the baby making green light. Turns out I have low inter-blah blah squamous lesions... I forget the actual term. Anyway, I'm 29years and My Hubby is 31. I don't even know how to handle this... I have an OBGYN appointment in two weeks to discuss further the situation... But has anyone else dealt with this before while Trying to conceive?

It would probably help to actually know what you're dealing with and not just "blah blah," so are you talking about possible cervical cancer? I have not dealt with it but we have a lot of ladies on here that are very knowledgeable on the subject. Congrats on the weight loss and hope everything works out!

Wine&Cupcakes · July 2014

Do you mean Low-Grade Squamous Intraepithelial Lesions? If so, I believe an important factor is whether you tested positive for HPV, as many pap-related abnormalities are derived from HPV. The presence of this directs treatment. When I had abnormal cells, my doctor took a "wait and see" approach as I was negative for HPV, which isn't very common when dealing with pap abnormalities. The following year, my Pap was clear.

I believe (but am not certain) that this diagnosis is indicative of a mild dysplasia and again, the HPV diagnosis will guide the course of action...if you do, in fact, have HPV, I believe the next course of action may be to have a colposcopy and/or biopsy for a more detailed look at what is going on.

In either case, I'd suggest you do some research so you can have an intelligent conversation with your treating provider and discuss all options, and clearly, put off TTC until that is done and a game plan is put in place,whatever that may be. I'd also tell the doctor about your plans to TTC so that can be factored into the equation.

Good luck and congrats on the weight loss!

Edited for clarity and spelling.

3houlagirl · July 2014

I had HSIL CIN III cells (cervical intraepithelial lesion) found last year, with the presence of HPV. I had a colposcopy to determine whether or not they needed to do further treatment, then a LEEP procedure to remove the lesions.

My follow up pap came back ASC-US (abnormal squamous cells of undetermined significance)but my follow up HPV screening was clear, so I had another pap in six months which came back normal.

The whole situation sucked and was scary, but there are quite a few options available to deal with it. It is my understanding that LSIL rarely leads to cervical cancer, and that a wait and see approach is pretty typical, but I am not your doctor, and my experience has been with HSIL.

Familiarize yourself with the terminology, procedures, and possible outcomes. It will make talking with your doctor much easier. I am so sorry you're having to deal with this, it sucks.

As far as TTC, the presence of LSIL will not affect fertility, but the treatment you undergo might. Be sure and discuss it with your doctor. In my case, the fact that I had a LEEP means they will monitor my cervical length throughout any pregnancy.

TL; DR: Had HSIL, got rid of it through minor surgical procedure, paps clear a year later.

Wine&Cupcakes · July 2014

Joy2611 said:
You need to educate yourself about what you have. HPV and cervical cancer are more important than trying to get pregnant right now.

Pap smears. Get them regularly.

Signed, an HPV researcher who chose this as her doctoral work because she was diagnosed with a high grade CIN III lesion at age 24.

EDIT: @Wine&Cupcakes‌ - a colposcopy will be done regardless of HPV status. You have it to look at the lesion more carefully, regardless of what caused it.

Thank you for this info. Makes sense! Then it is my understanding at that point it may/may not lead to LEEP?

kath16 · July 2014

Hi - I am currently going through something similar (assuming that your "blah blah" is an abnormal pap that requires more testing)?

I had an abnormal pap done at my first pregnancy appointment. After I miscarried, my doc figured we might as well do a colposcopy to get a closer look. I tested positive for HPV - the kind that can lead to cervical cancer. I have a LEEP scheduled at the end of the month.

While waiting for my LEEP, my doc said it is fine to "proceed as normal" with TTC and that it these abnormalities had NOTHING to do with my miscarriage and should not affect any future fertility or pregnancy. I believe that following the LEEP there will be a waiting period before we get back on the TTC bandwagon. If I were to get pregnant again they would pay close attention to the length of my cervix and may require a cerclage stitch or two.

So there may be some periods of time where we need to take breaks in TTC - I think after the LEEP we may have to abstain from P in V for up to four weeks, for example. But overall it should not affect my actual fertility.

I hope that helps - Good luck

3houlagirl · July 2014

@kath16‌ I was on pelvic rest for four weeks after mine, but it varies based on the amount of tissue removed. My doctor was very conservative with the amount she removed.

@Joy2611‌ I had a hard time with my HPV diagnosis, too. I had to switch doctors in the middle of all this mess, and when I told my current doctor I had HPV, her response was "who doesn't?" That really made me shift my thought process about this particular STD...

kath16 · July 2014

3houlagirl said:

@kath16‌ I was on pelvic rest for four weeks after mine, but it varies based on the amount of tissue removed. My doctor was very conservative with the amount she removed. @Joy2611‌ I had a hard time with my HPV diagnosis, too. I had to switch doctors in the middle of all this mess, and when I told my current doctor I had HPV, her response was "who doesn't?" That really made me shift my thought process about this particular STD...

I had this same reaction honestly ... Having to tell my H that I had an STD seemed so awkward. But it's kind of one of those that so many people have and doctor's deal with it all the time. I even had the shots for Pete's sake! Oh well? I guess? Just hoping that the LEEP gets everything.

Wine&Cupcakes · July 2014

3houlagirl said:
@kath16‌ I was on pelvic rest for four weeks after mine, but it varies based on the amount of tissue removed. My doctor was very conservative with the amount she removed.

@Joy2611‌ I had a hard time with my HPV diagnosis, too. I had to switch doctors in the middle of all this mess, and when I told my current doctor I had HPV, her response was "who doesn't?" That really made me shift my thought process about this particular STD...

I agree. HPV is beyond common. I can see grappling with it, but it really is so common. I barely think of it as an STD actually.

PuppyLove84 · July 2014

I too went through this about 3 years ago. I had an abnormal pap so I had to go in for a colposcopy. Luckily the results of that came back normal, so no LEEP for me. I was really scared, and when I found out I had HPV I was so ashamed! I work in public health and I have an STD?? But I researched it and it is amazing how common HPV is... So many people have it and just have no idea. And my doctor also confirmed that almost all the HPV tests she does come back positive! So I felt a little better. As for TTC, all my paps since then have been normal, so my doctor said it shouldn't have any effect for me. GL!

SunflowersBride · July 2014

::Lurking::

I was diagnosed with Adenocarcinoma in Situ via a pap smear in January, 2012 and subsequently had to have a cold knife cone biopsy despite my colposcopy and punch biopsy being normal. Adenocarcinoma in Situ is a more rare and some say serious version of high grade squamous lesions, and deals with the glandular tissue in the cervical canal. In my situation, despite having a normal colposcopy and punch biopsy, I had to have the cold knife cone biopsy because AIS is trickier and the cells are further up in the canal and could potentially be missed. Fortunately for me, the cone biopsy was also normal and my gyn-oncologist believes that my body cleared the AIS on it's own. I have had all normal subsequent paps and no further treatment needed. I did have to wait 6 months before TTC, and it took us about 5 months before I got pregnant. My OB followed my cervix (the CKC typically takes more tissue than a LEEP) and I fortunately never had any issues.

Anyway, in your case OP, as others have said, if you have LSIL, the likelihood is very good that your doc will take a watch and wait approach if you also test negative for HPV. The low grade squamous lesions almost always clear on their own and rarely progress to cancer when caught at this early stage. Good luck!

IrisPetals · July 2014

I don't remember the exact medical terminology either OP, but you do need to know exactly what's going on, even if it's in layman's terms.

I had my first abnormal pap back in 2008, then was having a pap every 6 months. I kid you not, every other one came back clear, then abnormal, clear, so on... I was in the Army & they took the "wait & see" approach, never once mentioned HPV. I get out of the Army in 2010, start going to Planned Parenthood b/c I didn't have VA health care yet. PP doctor took charge right away, did biopsies, found out it was HPV, & now mild dysplasia. She didn't want to scare me, but did inform me it is possible, not common but possible nonetheless, to turn into cancer if not taken care of, definitely not good news when you want babies. They did cryosurgery on my cervix (as far as I remember it's less invasive than LEEP) & then I came back in 3 month for a check up. I had another 6 month pap, then my annual, and all clear. Now I'm back on the regular pap schedule.

HPV is common, but it's a serious matter & if you want to TTC you definitely need to get it taken care of. TTC right now should not be your main concern. From what I understand LEEP or cryo can possibly create problems not in getting pregnant, but during the pregnancy/labor. Anyone correct me if I'm wrong. So having a history of HPV can put a strain on TTC anyway, if you don't have it resolved, it can lead to cancer and that is obviously not a good thing.

Also, keep your DH informed as well, does he know you have HPV? It is a STD, so it's the responsible thing to tell him, no matter how embarrassing it may be. When I finally found out it was HPV in 2010, I had only been dating DH for 6 months. You can imagine how horrible I felt having to tell him to get checked out too. Thank god that never ruined our relationship.

IrisPetals · July 2014

Joy2611 said:

IrisPetals said:

HPV is common, but it's a serious matter & if you want to TTC you definitely need to get it taken care of.

I'd argue that if you want live you should get it taken care of...

Anyone want a good reason to get regular paps? Google Jade Goody.

Oh absolutely. I'm referring to TTC b/c that's what OP is talking in regards to. However, you are absolutely correct, cervical cancer is life threatening.

Want a personalized experience?

Just found out about LSIL

Re: Just found out about LSIL

DX (me): Inborn error of metabolism - protein restriction, metabolic formula & weekly blood tests

DNA Results (7/1): DH is NOT a carrier for my genetic disorder!

7/3: Metabolic clinic gave the green light to TTC - holy crap!

DX (me): Inborn error of metabolism - protein restriction, metabolic formula & weekly blood tests

DNA Results (7/1): DH is NOT a carrier for my genetic disorder!

7/3: Metabolic clinic gave the green light to TTC - holy crap!

DX (me): Inborn error of metabolism - protein restriction, metabolic formula & weekly blood tests

DNA Results (7/1): DH is NOT a carrier for my genetic disorder!

7/3: Metabolic clinic gave the green light to TTC - holy crap!

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