Infertility

Sharing TEDx talk on IF **warning-sad video**

AMSharkAMShark member
edited June 2014 in Infertility
I came across Kara DeFrias's TEDx talk on IF, and I thought I'd share.  YouTube link: TEDx: Cloudy with a Chance of Baby

I'm a mostly closeted IF sufferer - I've told a select audience.  I don't know if this talk is going to change my mind completely (I did consider posting it to my FB page, but I'm still not ready to go quite *that* public).

At the very least, this talk made me reflect on how much of an improvement I have felt since finding an on-line community that understands what I'm going through. 
So, thanks, ladies, for making IF suck a little less.

*******
Subject line edited to warn people that the content of the video may be considered sad.   (No resolution to the speakers IF issues).

*** Ticker Warning ***

Me: 37, DH: 39, TTC 5 yrs

2013 summary: Diagnosed with Hypothyroid; Cervical polyp removed (benign); 
2 rounds ovidrel with timed intercourse (no result): 3 rounds IUI with clomid + ovidrel (no result)
2014 summary (to date):
IVF cycle 1 - ER: 4/17 (28 follicles, 3 fertilized, 2 survived to day 3);
ET: 4/20 (3rd day, 2 embryos - 1 @ 6 cells & 1 @ 4 cells); Beta 5/1 - BFP!; 
1st scan 5/13 - development behind, no heartbeat detected; D&C 6/2; WTF 6/13
IVF cycle 2 - BCP begun 7/12; stims w/ HGH begun 7/26; 
ER: 8/6, 12 follicles, 7 fertilized w/ ICSI; ET: 8/11, 3 blastocysts left, 2 transferred, 3rd arrested 8/12 - none to freeze :'(
1st beta 8/19 - BFP! 294; 2nd beta 8/26 - 4976; 1st u/s 9/2; 2nd u/s 9/9 - two little heartbeats at 140 each!!! 
EDD: 29-April-2015
Other Meds: Synthroid 100 mcg/daily

  imageimageimage
Pregnancy Ticker

Re: Sharing TEDx talk on IF **warning-sad video**

  • Thanks for sharing, I'm going to watch when I get home. Did you see on USAToday where the Today style editor (I don't watch, so I don't recognizer her) announced that she is fat because she is doing IVF? That made me pretty grateful to her for putting herself out there like that: https://entertainthis.usatoday.com/2014/06/27/today-show-bobbie-thomas-buzz-ivf-weight-gain/

    My husband is pretty private about our IVF and didn't want me to post on FB about it (I wish I could post on FB that's why I'm fat!!!), which has been hard, because I would like to be out there with it and get the support of my larger friend community; instead just a few close friends and family members know the details. I have decided that when there is a point where I can share news on FB that I will mention how long and how many IVFs it took us, so that I'm putting that out there, even if I don't share it along the way.

    I'm super grateful to have this on-line community, too. Thanks to everyone on here.

    ***************************Loss Mentioned***************************


    Me 37 y/o, DH 45 y/o; DH vasectomy reversal (his 2nd marriage) 11/8/12; TTC since 12/8/12. IVF due to MFI. DOR diagnosis April 2015.

     

    IVF #1 BCPs/Antagonist w/ICSI Jan 2014 = BFN

    IVF #2 MDL w/PICSI March 2014 = BFN

    IVF #3 EPP/Antagonist w/PICSI May/June 2014 = BFP!; MMC 6w4d

    IVF #4 No suppression/Antagonist Nov 2014/Converted to IUI #1 = BFN
    IVF #4.1 Feb 2015 = cancelled
    IVF #4.2 April 2015 - Lupron Stop Protocol with ICSI = PGD testing of embryo indicated it was abnormal
    IVF #5 June 2015 EPP with Antagonist 

     

    image
    Everyone welcome!

  • It sounded like people were posting mean things on her Instagram and FB page along the lines of "Is that a baby or a burrito belly?" I was really surprised about the IVF weight gain- I think it is a good thing for that possibility to be publicized more. I've been worried about people I work with speculating that I'm pregnant when it is really the IVF meds, stress, exercise restrictions, etc.

    ***************************Loss Mentioned***************************


    Me 37 y/o, DH 45 y/o; DH vasectomy reversal (his 2nd marriage) 11/8/12; TTC since 12/8/12. IVF due to MFI. DOR diagnosis April 2015.

     

    IVF #1 BCPs/Antagonist w/ICSI Jan 2014 = BFN

    IVF #2 MDL w/PICSI March 2014 = BFN

    IVF #3 EPP/Antagonist w/PICSI May/June 2014 = BFP!; MMC 6w4d

    IVF #4 No suppression/Antagonist Nov 2014/Converted to IUI #1 = BFN
    IVF #4.1 Feb 2015 = cancelled
    IVF #4.2 April 2015 - Lupron Stop Protocol with ICSI = PGD testing of embryo indicated it was abnormal
    IVF #5 June 2015 EPP with Antagonist 

     

    image
    Everyone welcome!

  • Loading the player...
  • Carol77B said:
    ... I've been worried about people I work with speculating that I'm pregnant when it is really the IVF meds, stress, exercise restrictions, etc.
    I know how you feel.  I was more bloated after my loss than I was during my short pregnancy.  I absolutely dreaded the idea that someone would ask me if I was sporting a "baby bump."
    Thankfully, no one said anything to me, but I couldn't help but wonder if people were speculating.

    *** Ticker Warning ***

    Me: 37, DH: 39, TTC 5 yrs

    2013 summary: Diagnosed with Hypothyroid; Cervical polyp removed (benign); 
    2 rounds ovidrel with timed intercourse (no result): 3 rounds IUI with clomid + ovidrel (no result)
    2014 summary (to date):
    IVF cycle 1 - ER: 4/17 (28 follicles, 3 fertilized, 2 survived to day 3);
    ET: 4/20 (3rd day, 2 embryos - 1 @ 6 cells & 1 @ 4 cells); Beta 5/1 - BFP!; 
    1st scan 5/13 - development behind, no heartbeat detected; D&C 6/2; WTF 6/13
    IVF cycle 2 - BCP begun 7/12; stims w/ HGH begun 7/26; 
    ER: 8/6, 12 follicles, 7 fertilized w/ ICSI; ET: 8/11, 3 blastocysts left, 2 transferred, 3rd arrested 8/12 - none to freeze :'(
    1st beta 8/19 - BFP! 294; 2nd beta 8/26 - 4976; 1st u/s 9/2; 2nd u/s 9/9 - two little heartbeats at 140 each!!! 
    EDD: 29-April-2015
    Other Meds: Synthroid 100 mcg/daily

      imageimageimage
    Pregnancy Ticker
  • pblgepblge member
    ***Just a warning that this video is a pretty sad story, so it might be hard for some people.***

    I'm not out because eventually lots of older childless women will be voting on whether or not I get to keep my job, and I suspect not all of them would be supportive of the fact that I've had somewhat special treatment because of IF. I hope to come out after that vote.

    And YES about the bloating and being nervous about questions! During this last round I really looked pregnant in the last few days before ER. We even took a photo in the pregnancy pose asthis may be as close as I ever get. I was NOT sticking my belly out!
    image


    **********************siggy/ticker warning**********************

    ***Losses mentioned.*** TTC #1 since May 2012. Me: 37, OH: 41. Ectopic August 2012 => tubal damage. :'(  Stage 1 endo removed June 2013. IVF #1 Oct/Nov 2013: Long Lupron with Gonal-F. 7R, 7M, 7F. 2 txfer@3d. Nothing frozen.  => M/C @ 8 wks. :'( Selected RPL panel all normal. Very hyper and brittle response to stims. IVF #2 (antagonist protocol) Feb 2014 => Converted to IUI (Perfect conditions). BFN. IVF #2.1 w/ new RE June 2014: Antagonist protocol. 33R, 31M, 30F, 19 blasts to test!!! I made it through without crashing!! :) Hats off to Dr. Fancypants!! ET of one 5AB blast. BFN. 13 10 CCS'ed snowflakes! FET #1 PUPO as of 7/29 Betas: 8/7@24, 8/9@97, 8/11@334 (etc.) Two sacs on 8/15, one seen on 8/18 after a bleed. U/s 8/25 (6+3) "perfect": 5.9 mm + HB@120bpm! U/s 9/4 (7+6): 15.9 mm + HB@172 bpm! Please, PLEASE stick this time!!!!
    http://i955.photobucket.com/albums/ae39/catfreeburg/866da40f5178fed79efe23fc8a4e8a_zps4498a9cc.jpgimageimageimageimage
    image
  • @pblge - Thanks for the note - I hadn't thought to include a warning, but I've just added one to the subject line of this thread.  (Good lookin' out)

    btw - I *wish* that's what I looked like bloated.  I wouldn't even look like that after a 7 day master cleanse followed by a colonic .... and pneumonia.... with my jaw wired shut.  (I could keep going...).

    I am wishing you do get your real bump someday soon - but I know you'll carry cute.  If I'm ever lucky enough to make it to a baby bump, I can guarantee you, it ain't gonna be pretty (but, none of us is really going for pretty  :@) ).

    *** Ticker Warning ***

    Me: 37, DH: 39, TTC 5 yrs

    2013 summary: Diagnosed with Hypothyroid; Cervical polyp removed (benign); 
    2 rounds ovidrel with timed intercourse (no result): 3 rounds IUI with clomid + ovidrel (no result)
    2014 summary (to date):
    IVF cycle 1 - ER: 4/17 (28 follicles, 3 fertilized, 2 survived to day 3);
    ET: 4/20 (3rd day, 2 embryos - 1 @ 6 cells & 1 @ 4 cells); Beta 5/1 - BFP!; 
    1st scan 5/13 - development behind, no heartbeat detected; D&C 6/2; WTF 6/13
    IVF cycle 2 - BCP begun 7/12; stims w/ HGH begun 7/26; 
    ER: 8/6, 12 follicles, 7 fertilized w/ ICSI; ET: 8/11, 3 blastocysts left, 2 transferred, 3rd arrested 8/12 - none to freeze :'(
    1st beta 8/19 - BFP! 294; 2nd beta 8/26 - 4976; 1st u/s 9/2; 2nd u/s 9/9 - two little heartbeats at 140 each!!! 
    EDD: 29-April-2015
    Other Meds: Synthroid 100 mcg/daily

      imageimageimage
    Pregnancy Ticker
  • I might watch the TED video but I shared the Today Show story about Bobbie Thomas on Facebook. I wrote about how important it is for the media to shine some light on this issue, so I am very honored to share on my page. I spent years keeping it a secret and I am so glad I am no longer doing that. I have nothing to be shameful about.

    Thanks for sharing
    ***WARNING***

    TTC Since 12/2008;  DH: 32, Azoospermia     me: 33, DX during IVF #4: Low AMH (Normal FSH) / SER due 
    to IVF Meds (causing failure to fertilize) Recent DX: Hashimoto's, Lupus Anticoagulant, White Blood Cell Disorder 
    High ANA, ATA, & APA, PAI-1 Heterozygous= blood clotting disorder; connective tissue disorder 
    IVF w/ ICSI #1 2/2011     IVF w/ ICSI #2 5/2011    IVF w/ ICSI #3 12/2012   *New RE* IVF w/ ICSI #4  5/2013
    IVF w/ ICSI #5 8/2013 (Natural Cycle- No drugs)- One follicle->one blast. CCS normal. FET 9/10- 6BB blast. m/c @ 5w
    IUI #1 12/23- BFN  IUI #2 Cancelled (ovulated during AF)  Prep:CoQ10 (300 mg); DHEA (25 mg); Melatonin (3 mg), Folgard 2.2, Metformin 500 2x, Levothyroxine 50mcg, Aspirin 81mg w/ calcium, B12,  Vit. D 4000 & Prenate Elite Daily; Cabergoline 1/2 pill 2x week-  Cycling: Estrace Priming; Prednisone 10mg, Lovenox 40mg 2x,  Femera & Menopur   
    IUI #2.1 6/30 & 7/1. 1st Beta: 90 (7/15); 2nd Beta: 226 (7/17); 3rd Beta: 766   EDD: 3/23/2015

       **ALL WELCOME**                                    My Blog 
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