PCOS, Diabetes, Progesterone, Clomid, plus size pregnancy and all that fun stuff...

JozzysGirl · June 2014

Hey everyone! I am new here, for the most part, and wanted to share and get some advice from you all...

My husband and I are currently trying to have a baby. I was diagnosed with Diabetes in 2008 and PCOS in 2013. We have gone through test after test to cover all our bases. He has been tested and all is good on his end. I have had numerous tests only to show that I in fact have PCOS and my testosterone is HIGH! I have not had a menstrual cycle in OVER TWO YEARS I have take progesterone medication to try and bring on my period and nothing worked! The doctor just sent me for a CT Scan of my adrenal glands and then after that I will be starting Clomid.

I am scared to start clomid because of all the side effects I have heard about. I am also scared because I want to get the ball rolling and start taking it but I have so much going on in the next two weeks+... camping, 5k, family parties, etc. Would you all suggest that I not take it when I have things planned? Any advice/tips?

I am also concerned because I heard that clomid wouldnt be effective unless you have had a menstrual cycle but my doc said that isn't the case. Anyone know anything about this? I know I should always trust my doc, but I would like to hear from other women that have gone through this.

Im an overweight woman, but I have been working on eating better and losing weight. As always it has been hard, but I keep pushing through and remember that I am doing this for my baby!

Looking forward to feedback and advice from you all! Thanks for reading!

JozzysGirl · June 2014

Oh my! So overwhelming! My doc just has me coming in on day 24 for blood work after clomid.... this test will tell if i responded to the clomid etc. And whether or not i will need a stronger dose next time. all the tests mentioned above have taken place and then some except I didn't get the HSG test and I didn't get the test that required me to have a period for obvious reasons....

JozzysGirl · June 2014

No not seeing a RE.... just my OB.

AnnaClaire256 · June 2014

Welcome to 3T! There are so many dangers with taking clomid with proper monitoring (CD3 u/s, u/s follicle monitoring mid-cycle, b/w at 7dpo).

If your OB isn't willing to do those tests than I would STRONGLY suggests seeing an RE. Clomid can cause cysts to grow on your ovaries, you may over respond, it can thin your lining and puts you at risk for HOM...dangerous stuff.

An HSG needs to be done before you start clomid. I know when you have PCOS (I do too) it's easy to think that that is your issue...but all the clomid in the world can't get an egg down a blocked tube.

Sorry if that's all overwhelming. I've just seen too many horror stories...hopefully you can find an RE that can help!

ETA: oops, @NariaDreaming‌ I must've been typing at the same time. Looks like we had a lot of the same thoughts. Great minds...

masterofallcheese · June 2014

Welcome to the board. I also have PCOS and am in my first Clomid cycle. A lot of monitoring is required while on a Clomid to ensure cysts have not formed nor too many follicles. Most OBs do not have the equipment, experience or staffing to properly monitor someone so I encourage you to seek an RE's assistance. Good luck!

erollis · June 2014

Welcome and good luck!

That said I echo what these ladies have told you. Better to go "slow" and be safe.

JozzysGirl · June 2014

Wow! K, thanks ladies for all the input. 7 years of longing for a baby... what's another few tests. Will contact my OB today about referring me to a RE.

JozzysGirl · June 2014

Thanks again all... I am slightly confused because I do know that tests have shown I have cysts covering my ovaries, this we already know... part of the PCOS obviously. Have had ultrasounds, CT scans etc. That showed this....

JozzysGirl · June 2014

Guess its just hard getting so much different advice and such contradictory situations. I have a few gfs messaging me saying they did clomid without the HSG and got pregnant. Others saying their RE didn't monitor them throughout clomid and then others saying that the HSG came after three rounds of clomid. Ah! So much to take in!

drstef · June 2014

I am not as experienced in the IF world as some of these ladies are. However, I would highly recommend going to see a RE. I was fortunate enough to have a wonderful OB/GYN who did all of the appropriate test before referring me to a RE. I was diagnosed with PCOS, probably more atypical, but my OB/GYN and RE Dr. put me on Letrozole instead of Clomid. From my understanding, Letrozole does not have some the not-so-good side effects as Clomid. Plus the RE said it works better with women who carry extra weight (I'm am overweight and have been my whole life). All in all, it is better to err on the side of safety then jumping in head first. In addition, all women are different; what may have worked for one of your friends, may not work for you. Some things in this world just doesn't make any sense.

Just remember to breathe, keep your chin up, and explore all of your options to make the right decisions. Good luck to you and definitely keep all of us posted!

HUGS!

xlittlerosebudx · June 2014

@drstef my RE also said that Letrozole works better for girls with PCOS than Clomid does. It doesn't thin out the uterine lining as much. I know that personally, I didn't respond to the Clomid but I have responded to the Letrozole.

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PCOS, Diabetes, Progesterone, Clomid, plus size pregnancy and all that fun stuff...

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