Success after IF

back from cranial doctor. sad news.

I'm very upset. we met with the doctor to talk about ginny's flatness on the left side of her head. they took all sorts of 3D and high rez pictures and measurements in order to evaluate the severity. at this point we are seeing changes in her left ear as well as her left eye. she was fitted for a helmet for plagiocephaly.

most likely this condition started in-utero. she has some muscle issues in her neck -- hence the constant facing left. we are also doing physical therapy.

I'm just so sad for her. most likely she will wear the helmet for at least 2 months and 23 hours a day. the doctor is anxious to start treatment straight away as she is growing very quickly.

it's always something isn't it? my poor little thing.

:(
 

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Re: back from cranial doctor. sad news.

  • I'm so sorry. Poor Ginny... and poor mommy...
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  • I'm sorry.  it stinks, but 2 months isn't to awfully bad.

    There is a regular on married life whose DC wore a helmet a few years ago, very similar situation.  I can't recall her s/n, but, if you have questions she would be a good place to look for help.

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  • oh honey i'm so sorry... :(  poor little one.
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  • I'm so sorry.  To give you hope: my sister's nephew wore a helmet for quite a few months for the same problem as it sounds that Ginny has.  He is now doing beautifully and one wouldn't even know he had the helmet. 
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  • I'm so sorry.  It sounds like it is a correctable condition, though, which is a good thing.  Poor girl. 
  • So sorry to hear this! You are definitely doing the right thing by starting treatment immediately.
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  • That's really sad, I'm sorry.  I hope it ends up being a fairly quick (and painless) fix.  I wonder if she would benefit from osteopathic manipulation?  Cal was having trouble nursing on my right side early on and the lactation consultant suggested it may have had to do with his trip down the birth canal turning his head in an awkward way, causing some nerve issues when facing to the left.  An osteopath came in and did manipulations on him and he's been better since.
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  • Aw, I'm so sorry. That's tough. Poor Ginny.

    Maybe one good thing (if anything could be good) is that at least she won't remember wearing the helmet. It'll probably be harder on you than it is on her.

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  • Oh no.  Hopefully the PT and the helmet will be able to fix the issues.  I'm sorry you all are going through this.  ((hugs))

  • I am so sorry to hear this.   My thoughts are with you and your little girl.
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  • Poor little Ginny and poor mommy too. It is always something - it's not fair

    :(

  • I can only imagine how upsetting this must be for you but it's great that you're taking care of this while she's so young.  She won't remember wearing the helmet and hopefully two months will go by in a flash.  Stay strong and remember this is harder on you than it is on her.  Hugs.    
  • i'm so sorry!  i hope the helmet works quickly for her!

    I also wanted to mention that i have a friend who is a chiropractor that specializes in babies and children.  she noticed from pictures that Sarah always faced in one direction so she's been doing adjustments on her since she was born.  it's nothing like an adult adjustment--she only uses 2 fingers.  it might be worth looking into to see if it might help

  • Oh, Roaring!  This brought tears to my eyes when I read it!  I know how scared you must be for little Ginny.  But the great thing is you're starting treatment soon, she has two terrific parents who'll move mountains for her, and she's absolutely gorgeous and she'll be even moreso after everything's been done.  I'm just so glad you got to see someone quickly who can take care of the issue.

    Best of luck to you guys!  I know she'll do great!  Thinking of you!

  • Poor Ginny! I am so sorry!
  • I'm so sorry! Poor Ginny - and poor Mommy. As the pp said, it's best that you're taking care of it early and hopefully the helmet and the PT will work quickly.  I know how hard it must be to see your little girl go through this -(( hugs)).
  • I'm so sorry.  I agree with the others that it's harder on you than on her and at least it can be resolved now.  In fact I think it's becoming very common to see babies wearing them, so I wouldn't worry too much about that.  I wish her -- and her Mommy -- the best!!!
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  • I'm so sorry, but it's good they're catching it early and the two months will hopefully fly by and this will just be a blip on the radar. Hang in there.
  • I'm so sorry. Hopefully the treatment will be able to at least partially, if no completely, reverse the condition. Poor little Ginny.
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  • I'm so sorry. I hope the helmet helps.
  • I'm sorry.  At least it can be fixed and 2 months may seem like a long time but hopefully it will go quick and it will be just one of those things.  I'm sorry (((Hugs)))
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  • I'm so sorry!  I don't know much about this, but your DD is BEAUTIFUL :)


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  • Oh, poor Ginny! Just so you feel a little better - my friend had this issue with her daughter. They were twins and she was squished a bit and had to wear the helmet for a couple months as well when she was little. It worked miracles and she's perfect now (even more than she was before :)
  • not to minimize things at all... but plag is a VERY correctable condition. I've worked at a VERY prominent ortho hospital, and been a patient of theirs for years (scoliosis) and a few weeks in a cap and voila! all good!

    They actually make the helmets quite cute these days - fabrics, paints, cool plastics... again, I know this sucks, but you have a treatable condition that usually responds very well to the tx you are getting her.

    (and coming from a tween that had to wear a big fugly brace for my back, in the most torcherous of years, be glad she's having this treated while young, and unaware of the vanity aspect  ;-)   )

    If you have any more questions about the helmet, etc. let me know. My mom still works for the dept that does this caps on a daily basis, and she's always right by her email... happy to help)

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  • im so sorry..

    poor little thing :(?

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  • I'm so sorry Roaring.  But if anybody can pull off that helmet with panache - it's Ginny!   She's going to look ridiculously cute and in 2 months - hopefully all of this will be behind you guys!! 
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  • ugh. so sorry you have to deal with this. I hope it gets corrected ASAP!
  • I'm so sorry, for you and her. ?
  • There was someone on ML a while ago (She isn't there anymore) who's daughter had teh same thing happen.  She decorated the helmet with her name and hearts and things like that.  Her daughter didn't seem to notice it or be bother by it at all.  The problem corrected itself after a few months.

     I'm sorry you are dealing with this.  Hugs...

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  • poor thing!  Hopefully the problem gets resolved quickly! 
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  • UGH, how hard for you and Ginny to have to deal with this. I hope it goes by in a flash :(
  • Oh dear, that's going to be rough. :(
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  • oh no!! Good luck with everything
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  • Aw, I'm sorry. I hope that the helmet works and that someday you can show her pictures and smile about it.
  • poor baby, but good that treatment is now!
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