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Special Needs
Micelle78
member
Compression shirt Day 5
Micelle78
member
So along with a speech delay, hyperlexia, sensory seeking/avoiding behaviors, and extreme farsightedness, my almost 4 yo DS has hypotonia as well. He seeks out body pressure in a few of odd behaviors. One is throwing himself against the couch at night- like full sprint and plopping onto the couch-- nightly activity. Another is standing on the couch-- with seemingly zero fear and falling like a tree (completely stiff). He also will jump and cross his legs and fall to the ground while legs are still crossed, falling hard on his knees. He also does stuff that looks like break dance moves along with actual dance moves and then running across the house. Although he never does anything that would actually hurt him. He always does this in a safe environment like the couch or bed-- KWIM?
His OT suggested that we maybe look into a compression shirt. So we started off with the cheap option (under armor) and really it didn't do anything that we noticed. So we measured him and got the pedi to write a prescription along with a letter from his OT of medical need and sent it off to insurance. They approved him getting two SPIO shirts. Its a good thing I have great insurance. My insurance covers 80% and that left my bill for two shirts at $105--- so yeah, the shirts are each $250
This is the definition that the site gives for their product that has 6times the compression of under armor:
Stabilizing Pressure Input Orthosis (SPIO) assists patients with stability and proprioceptive deficits through deep pressure.
So its Day 5 and I noticed he does seem a bit calmer and something that I was not expecting is that he is either a) having a coincidental speech explosion or b) he is calmer = more thoughtful sentences = actual COMPLETE sentences. So not a HUGE amount of complete sentences, but he is saying things the past few days that have NEVER come out of his mouth. He has also referred to himself in the first instead of third person a good handful of times. My mom even said he was seeming more chatty. However, despite his speech delay he has always "talked" a lot. Kind of ironic for someone with a receptive/expressive speech delay. In fact the day he met his OT, she looked at me and said "Does he always talk this much?" He narrates a lot of stuff he does as he is doing it.
Anyway, last night he still did his routine of throwing himself around, but it still seems like the shirt is helping. His eye doctor had told us that his eyes were dialated in a "flight or fight" way when she first examined him and asked if he was around a lot of stress (not sure if she was implying anything) but I told her not that I was aware of. His vision issues are neurological and she said he may be in that state of distress which I am sure this shirt will help with. Who knows what kind of internal sensory issues my DS is dealing with because he can not talk well enough to articulate it. The cool thing is that he is really sensitive to fabrics (will only wear loose fitting cotton) and he willingly wears the compression shirt-- which also leads me to believe he feels safe in it.
Sorry for a novel. Just wanted to share our experience!
His OT suggested that we maybe look into a compression shirt. So we started off with the cheap option (under armor) and really it didn't do anything that we noticed. So we measured him and got the pedi to write a prescription along with a letter from his OT of medical need and sent it off to insurance. They approved him getting two SPIO shirts. Its a good thing I have great insurance. My insurance covers 80% and that left my bill for two shirts at $105--- so yeah, the shirts are each $250
This is the definition that the site gives for their product that has 6times the compression of under armor:
Stabilizing Pressure Input Orthosis (SPIO) assists patients with stability and proprioceptive deficits through deep pressure.
So its Day 5 and I noticed he does seem a bit calmer and something that I was not expecting is that he is either a) having a coincidental speech explosion or b) he is calmer = more thoughtful sentences = actual COMPLETE sentences. So not a HUGE amount of complete sentences, but he is saying things the past few days that have NEVER come out of his mouth. He has also referred to himself in the first instead of third person a good handful of times. My mom even said he was seeming more chatty. However, despite his speech delay he has always "talked" a lot. Kind of ironic for someone with a receptive/expressive speech delay. In fact the day he met his OT, she looked at me and said "Does he always talk this much?" He narrates a lot of stuff he does as he is doing it.
Anyway, last night he still did his routine of throwing himself around, but it still seems like the shirt is helping. His eye doctor had told us that his eyes were dialated in a "flight or fight" way when she first examined him and asked if he was around a lot of stress (not sure if she was implying anything) but I told her not that I was aware of. His vision issues are neurological and she said he may be in that state of distress which I am sure this shirt will help with. Who knows what kind of internal sensory issues my DS is dealing with because he can not talk well enough to articulate it. The cool thing is that he is really sensitive to fabrics (will only wear loose fitting cotton) and he willingly wears the compression shirt-- which also leads me to believe he feels safe in it.
Sorry for a novel. Just wanted to share our experience!
This discussion has been closed.
Re: Compression shirt Day 5
Could be coincidence but we'll keep using them and see what happens.