Low Tone

babyw101813 · June 2014

LO was diagnosed with low tone a few weeks ago and referred to the state therapy program for this. He will be 8 months in a week and a half and can't sit up. He does really well with kicking, jumping in the jumparoo, rolling, etc. but he just can't sit at all. He can barely tripod sit, and he can't catch himself at all when he falls. I see all of these posts with your LOs sitting, pulling up, walking, and I can't help but feel even more defeated (but I am happy for you all!). We do tummy time A LOT per the pedi's rec, and we always try to help him with supporting him very low when he is in the sitting position, it just isn't seeming to get any better at all. Anyone have experience with this? Any suggestions? I feel like I should be doing something else or should have been doing more. I just feel sad that he is so far behind in this respect.

yesthisiskim0401 · June 2014

I know it's hard not to, but try not to compare your LO to other babies on the board. Every baby develops differently and at their own pace. At the rate A2 is going she won't crawl until the 5th grade. I don't have any experience or advice for your LO's situation but lots of hugs!

deedee1017 · June 2014

I'm sorry. I don't have experience in that but please don't blame yourself. Children develop at their own pace and change so much from day to day. One day you may wake up and see that Evan is doing something he never did before. Some children will be further along in certain aspects and further behind in others. I think the key to any issues is to catch them early and get help as soon as you can. You are doing everything right. Keep doing what you're doing.

babyw101813 · June 2014

Thank you both.

muffyvonmuff · June 2014

DS didn't roll until after 7months when some babies on here were rolling at 2/3 months. I think every baby develops at their own pace. If I were you I would just always encourage sitting so LOs little muscles can keep building to then he can evenly sit on his own.

hlb622 · June 2014

I think Evan and Emerson are about the same age, and I also marvel at all the things the O13 babies are doing already! Crawling, pulling up, clapping, rolling over and over and over. Emerson can sit, but I don't feel comfortable leaving him on the floor without a Boppy or other support to pad him WHEN (not if) he falls. He's still laying around with his belly flat on the floor, happy as a clam, with no signs of crawling yet.

I try not to compare him to the others, though, and I think that's the only way to stay sane. These babies are so (frustratingly so, at times!) different from one another, developmentally. I mean, Emerson has had four teeth for 3 months, but can barely sit on his own. According to books and pedis and research, that makes him a mutant. But he's my mutant, and he will crawl when he's ready.

Or adequately motivated.

Or when he's 12.

Whatevs.

#youreagoodmom

sooner1981 · June 2014

Please remember there is nothing about any of these developmental milestones that is your "fault."

Every baby develops so differently.

My daughter was super ahead of the curve physically in her first six months. She pulled herself up and was standing up, cruising and crawling at six months. Everyone was really surprised by how fast she was moving through milestones, and I didn't really know what to think, since I didn't have anything to compare her to as a first-time mother. Then, she didn't take her first independent step until almost 15 months! Way after her little buddies, who had been still learning to sit up when she was cruising the furniture! Now, at just over two, she is right about where her peers are, as far as jumping, running, etc.

Likewise, my daughter didn't have any two-word sentences or phrases at 2 years old, which is a developmental red flag. It has been three months since that two year check up when we were told it was an area of concern that we needed to watch, and last night, when I was telling her that her bunny slippers had belonged to me when I was a little girl, she said, clear as day, " no, mommy, gramps give bunny slippers to me!" (He had kept them after I outgrew them and gave them to her recently). That is a crazy speech explosion in the period of three months--and we didn't do anything differently.

The early childhood development pendulum swings so far in both directions for the first couple years. You feel ahead of the curve in one area and behind the curve in others all the time. The important thing is to listen to professionals, trust your gut, and always look at developmental therapies as positive things--they definitely can't hurt, and most of the time they help lots!

BMom99 · June 2014

Both of my nieces have myotonic muscular dystrophy and are super low tone. They were both delayed in every milestone but now at 4 and 5 they are running and doing everything (gross motor wise) that all the other kids their age are doing. It just took them a little longer

hlb622 · June 2014

@BMom99 I haven't "seen" you around lately! Hope all's well.

sooner1981 · June 2014

BMom99 said:
Both of my nieces have myotonic muscular dystrophy and are super low tone. They were both delayed in every milestone but now at 4 and 5 they are running and doing everything (gross motor wise) that all the other kids their age are doing. It just took them a little longer

I hope your nieces' mom know about the Muscular Dystrophy Association's summer camp for kids with muscle diseases, age 6 and up! There is one in each state. I spent six summers at that camp as a counselor, and the campers make friends for life. So much support and a chance to do everything kids do at summer camp, but specially adapted to kids with MD.

Inn2 · June 2014

I think you are doing all you can and getting that early intervention. You are an awesome mom and he will hit those milestones when he is ready. Jace has no interest in crawling or pulling himself up. He likes to roll to everything and some days he chooses not to sit up much. I try very hard not to worry, figure he'll do it when he is ready, ped isn't worried, and we still try and practice. I also remind myself he was a month early, so maybe that is the "delay".

pinkelephant8 · June 2014

My little guy has low tone also. He can sit up really well but he can't put weight on his legs and can't roll over. But he's great with his hands and very verbal. He has a little girl in his class at school that's his age and she's crawling and pulling up and everything so it sometimes makes me feel like dang my LO is far behind but I kinda like it because I can put him in one place and he still is my little baby and I know he will do everything on his own in his own pace! Don't feel bad momma you're doing a great job!!

babyw101813 · June 2014

Thank you all for the kind words and support...great start to my morning

here's hoping the therapy works!

deedee1017 · June 2014

good luck! keep us posted!

BMom99 · June 2014

hlb622 said:

@BMom99 I haven't "seen" you around lately! Hope all's well.

Oh my gosh, hi! @hlb622 ! You are right, I have been super busy. I teach in a special ed high school and my department is in charge of graduation so I have not had any time to bump at work. Since I am mobile at home this is the first time I saw this notification!

Today is the last day of school so I am super excited to have some extra downtime and get back on here some. Our school is 11 months so I go back June 30 but at least it will be half days for the summer

Things are great otherwise though. DS started crawling this week and pulled himself up to a standing position last night *gasp*! Thanks for thinking of me and I hope you guys are doing well too!!

BMom99 · June 2014

sooner1981 said:

Both of my nieces have myotonic muscular dystrophy and are super low tone. They were both delayed in every milestone but now at 4 and 5 they are running and doing everything (gross motor wise) that all the other kids their age are doing. It just took them a little longer
I hope your nieces' mom know about the Muscular Dystrophy Association's summer camp for kids with muscle diseases, age 6 and up! There is one in each state. I spent six summers at that camp as a counselor, and the campers make friends for life. So much support and a chance to do everything kids do at summer camp, but specially adapted to kids with MD.

I don't know if she does but I will definitely share the info, thanks!

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