Yet another diagnosis...

mm29 · May 2014

I had my Lap today. It's confirmed, I have endo. The good news is it's only mild, and it's not on my ovaries, I cannot remember where it was located. Since it's not on my ovaries we know it is not the cause of my DOR. The bad news is DH said (in his mind), it further confirms all our failed cycles are his fault. It makes me cry that he thinks it's his fault. We will follow up in two weeks and talk about our next steps. She thanked me for emailing her about the low stim protocol for DOR and the study I attached with the email. She seems open to trying it. I will know for sure at the follow up. Thanks for all your support.

luvboston · May 2014

Sorry to hear about the endo, fx that the re gains some wisdom to help you move forward!

Mrs.McIrish · May 2014

More hugs. Hope you are feeling ok today :-(

RunCC37 · May 2014

I'm sorry about the endo and that your DH is taking it so hard. I hope you have a smooth recovery!

Twinkie0612 · May 2014

Sorry about the endo diagnosis. ((hugs))

LeggyJeggy · May 2014

I'm so sorry. ((hugs)) hopefully this will give insight into your next plan.

mm29 · May 2014

IFinTN said:

Ugh, sorry! Can you do the lupron depot treatment before another transfer? I have heard it helps suppress endo and improves implantation rates. Your sentence cut off so I can't tell if the endo is not on your ovary? Is it in/on your uterus?

It's not on my ovaries. I will edit my post. I was still half high from the anesthesia when I posted, and obviously didn't read it before I hit post. :-/ I only vaguely remember what she said, and DH just said it's mild and it's not on my ovaries, which in his mind confirms our failures are his fault. I will have a more clear picture of our next steps after I meet with her (RE) in two weeks.

hmz819 · May 2014

Not to scare you but mild endo can be worse than stage 3-4 endo. Those with mild endo tend to have high nk cells and cytokines which can make the ute toxic to embryos. I have mild endo too and I met with an RI after a loss of a normal embryo and I have high cytokines and nk cells.

liz4paws · May 2014

I am really sorry.

I hope that having this new info does somehow help you make a plan that helps you be most successful. It really sucks watching your husband hurt like that. I hurt for you both...big huge hugs.

zazu13 · May 2014

Hope your success is just around the corner. Sorry you keep having to deal with "one more thing." ((Hugs))

mm29 · May 2014

hmz819 said:

Not to scare you but mild endo can be worse than stage 3-4 endo. Those with mild endo tend to have high nk cells and cytokines which can make the ute toxic to embryos. I have mild endo too and I met with an RI after a loss of a normal embryo and I have high cytokines and nk cells.

I've been tested for NK cells. It's borderline and my RE will be treating me with intralipids. What is the typical treatment for high cytokines and nk cell?

hmz819 · May 2014

Prednisone and intralipids or IVIG if intralipids don't work. My ri won't prescribe intralipids so I'll be doing IVIG

beachy6 · May 2014

I'm so sorry you've been diagnosed with endo. Just remind your DH that endo plays a huge role in infertility and it certainly isn't his fault. Endo creates a toxic environment and makes implantation very difficult.

I have endo (stage 3) and added prednisone for implantation failure this time. I'm certain it's the only reason it worked. It wouldn't hurt to ask about it. I'm on a very low dose (5mg) until 12 weeks.

Although it isn't fun to get new a new diagnosis, at least it answers some questions and can provide some treatment options.

Km672 · May 2014

So very sorry you are going through this. I hope that your follow up with your RE brings you new options.

So sorry

Yet another diagnosis...

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