DS got his helmet PIP

PharmDMom · May 2014

I know it's HDBD but I have to AW Lincoln in his helmet. We got it this morning. I was bummed that that he had to get one since he has already been through so much, but his cranial index was in the "severe" category so of course we knew it was best. And there actually is an upside. It holds his NG tube back away from his face so he doesn't accidentally pull on it. He pulled his tube all the way out on Monday  so this is the part of the helmet I am actually excited about. He has been fine with it so far today and even took a nap in it! He is a sweaty mess but that's expected. As usual, he's all smiles.

Teresa1489 · May 2014

Glad everything went well! He's a cutie!

Ycu2013 · May 2014

What a cutie!!

PharmDMom · May 2014

wedding06 said:
Love the design! He doesn't look thrilled in the pic but he is super cute!! How are things going with his reflux?

@wedding06 Thanks for asking! Long answer... He definitely still has reflux episodes but it seems to be improving a bit. However, he has been regressing a lot with his bottle feeding.

He is only taking a bottle overnight. He is refusing all bottles during the day. It's so frustrating! He is doing okay with purées, yogurt, and cereal but not formula. He is taking occasional sips of water from the sippy cup but isn't too good with it yet. And he will not drink formula from the cup at all, little stinker.

So looks like the tube is staying for a good while longer, but we are being seen at our hospital's specialized feeding clinic soon to be evaluated and given an intensive feeding/nutrition plan so that we can continue progress with solids and the sippy. We want to be proactive to avoid any future feeding aversions for him so he can hopefully progress to eating normally as he grows!

blondolphn · May 2014

Such a cutie!

carawasa · May 2014

@PharmDMom‌ Poor little guy! Maybe you can incorporate some of the formula with solids? My LO loves it mixed with sweet potato! Good luck...he is super cute!!!

PharmDMom · May 2014

carawasa said:
@PharmDMom‌ Poor little guy! Maybe you can incorporate some of the formula with solids? My LO loves it mixed with sweet potato! Good luck...he is super cute!!!

Yes! I mix it in the thicker veggies and try to hide it in yogurt! But he is on Alimentum and it is so distinctly pungent so sometimes he will refuse. Too smart. lol The nutritionist also wants me to try some new purée recipes with cream or butter to add calories. He's gotta like that right? haha

shelley1002 · May 2014

So cute! Glad it does not seem to be bothering him.

ajjf1026 · May 2014

He's so cute!!

muffyvonmuff · May 2014

SO CUTE!

jennlin · May 2014

PharmDMom said:

@PharmDMom‌ Poor little guy! Maybe you can incorporate some of the formula with solids? My LO loves it mixed with sweet potato! Good luck...he is super cute!!!
Yes! I mix it in the thicker veggies and try to hide it in yogurt! But he is on Alimentum and it is so distinctly pungent so sometimes he will refuse. Too smart. lol The nutritionist also wants me to try some new purée recipes with cream or butter to add calories. He's gotta like that right? haha

1) he's adorable!

2) when my daughter was under weight, the pedi suggested we add extra olive oil to everything, including her milk. it helped her get back on the curve. so maybe that is something you can talk to your pedi about too. she's dairy-free, so no butter, but if it were me, i'd prefer olive oil over butter..so maybe you can have some options?

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DS got his helmet PIP

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