Hereditary?

Re: Hereditary?

• kcisthebombdotcom member

  May 2014

  -auntie- said:

  wife07mom09 said:

  We have been asked at multiple appts.if anyone on the family had speech delays. Dh and his brother both had speech delays. We think dh has asperger.

  
  

  If your DH had a significant speech delay, he wouldn't qualify for an Aspergers dx. In addition to average or above IQ, Aspergers requires age appropriate speech and adaptive skills by age 3. 

  
  

   I wonder if his brother does too. I think his dad or his mom does too. 

  
  

  FYI, Aspergers did not exist as a dx in the DSM until the DSM-IV in 1994. Unless you are very young parents, it's unlikely your DH would have gotten a dx without seriously challenging behaviors that would have kept him out of the mainstream.

  
  

  There are some oddities in the family. An aunt and uncle never married. People don't talk about these things. Yes they are hereditary.

  
  

  Knowing what you know now, would you have made different choices?

  
  

  
  Random--I know someone with a 20 year old son who was a late talker but did get an aspergers dx at school age. Is that inaccurate or just uncommon?

  

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• kcisthebombdotcom member

  May 2014

  wife07mom09 said:

  And I'm still raw about the whole thing so take my bias . His parents should have known he should have known. We should not have been ttc is we had known. Thankfully our daughter is ok and even though our son has problems I wouldn't wish him not here I love him with all my heart just dh parents should not have had head under a rock. End vent I'm sorry op for your challenges

  
  Eh, do you know anyone who has a perfect family history with no medical or mental health issues? I don't. One of my closest friends has lupus, the other has an anxiety disorder. It's a crapshoot no matter what. All families have some oddities but all aren't autism. Also they didn't know what they knew now about autism so no need to hold resentment towards your ils.

  

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• kcisthebombdotcom member

  May 2014

  Ah to answer the op yes I do have a family history of speech issues/ADHD. Since dd getting dx with autism I'm guessing my grandfather might be somewhere on the spectrum but it's really speculation--I'm not really sure how he acted when he was younger.

  

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• abs05 member

  May 2014

  In our case there has definitely been a genetic factor to every delay. I didn't walk until I was 16 months. The fact that DD was late to walk is not a surprise. I had epilepsy. Looks DD may as well. DH didn't talk until he was 3. No one mentioned this until I was in panic mode. We think he had apraxia but that wasn't diagnosed in the 70's. Poor kid was doomed to have some delays.

  

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• kcisthebombdotcom member

  May 2014

  -auntie- said:

  KC_13 said:

  -auntie- said:

  wife07mom09 said:

  We have been asked at multiple appts.if anyone on the family had speech delays. Dh and his brother both had speech delays. We think dh has asperger.

  
  

  If your DH had a significant speech delay, he wouldn't qualify for an Aspergers dx. In addition to average or above IQ, Aspergers requires age appropriate speech and adaptive skills by age 3. 

  
  

   I wonder if his brother does too. I think his dad or his mom does too. 

  
  

  FYI, Aspergers did not exist as a dx in the DSM until the DSM-IV in 1994. Unless you are very young parents, it's unlikely your DH would have gotten a dx without seriously challenging behaviors that would have kept him out of the mainstream.

  
  

  There are some oddities in the family. An aunt and uncle never married. People don't talk about these things. Yes they are hereditary.

  
  

  Knowing what you know now, would you have made different choices?

  
  

  
  Random--I know someone with a 20 year old son who was a late talker but did get an aspergers dx at school age. Is that inaccurate or just uncommon?

  
  

  That's pretty much standard for Aspergers. Most of these kids don't get picked up until kindie or later. When DS was dx'd at almost 7, that was considered on the "young side" for an Aspergers dx. At that time, most of the kids I know who were getting dxd with Aspergers were around 10 or even in middle school. ven now, a lot of kids with Aspergers like presentations get dx'd later. My cousin was 40.

  
  

  
  I know the age is common--I meant more along the lines the kid actually had delayed speech as a toddler/early preschooler.

  

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• kcisthebombdotcom member

  May 2014

  -auntie- said:

  KC_13 said:

  -auntie- said:

  KC_13 said:

  -auntie- said:

  wife07mom09 said:

  We have been asked at multiple appts.if anyone on the family had speech delays. Dh and his brother both had speech delays. We think dh has asperger.

  
  

  If your DH had a significant speech delay, he wouldn't qualify for an Aspergers dx. In addition to average or above IQ, Aspergers requires age appropriate speech and adaptive skills by age 3. 

  
  

   I wonder if his brother does too. I think his dad or his mom does too. 

  
  

  FYI, Aspergers did not exist as a dx in the DSM until the DSM-IV in 1994. Unless you are very young parents, it's unlikely your DH would have gotten a dx without seriously challenging behaviors that would have kept him out of the mainstream.

  
  

  There are some oddities in the family. An aunt and uncle never married. People don't talk about these things. Yes they are hereditary.

  
  

  Knowing what you know now, would you have made different choices?

  
  

  
  Random--I know someone with a 20 year old son who was a late talker but did get an aspergers dx at school age. Is that inaccurate or just uncommon?

  
  

  That's pretty much standard for Aspergers. Most of these kids don't get picked up until kindie or later. When DS was dx'd at almost 7, that was considered on the "young side" for an Aspergers dx. At that time, most of the kids I know who were getting dxd with Aspergers were around 10 or even in middle school. ven now, a lot of kids with Aspergers like presentations get dx'd later. My cousin was 40.

  
  

  
  I know the age is common--I meant more along the lines the kid actually had delayed speech as a toddler/early preschooler.

  It was common and was controversial. This is another reason we're all together under the ASD umbrella in the DSM-5 now.

  
  

  On the Aspergers boards this is derisively referred to as getting an "upgrade". I know parents who doctor shopped in an attempt to get one dx over another. This cuts both ways- sometimes they want the cache of the genius boy Asperger, sometimes they want Autism because it's an easier sell with the school district when advocating for supports. 

  
  

  Some clinicans are very strict about speech/adaptive skills and would dx PDD-Nos or autism even if there was a significant delay even if that person is caught up when they first encountered them. Others, especially school districts, who might look to flatter parents out of services, will happily identify a child as Aspergers.

  
  

  My district has 2 IU classroom tracks for kids with ASD- they have an ABA setting for all kinds of kids on spectrum who need a self contained classroom; in secondary they add an ABA-lite Aspergers class along with the ABA Autism class. Most kids with HFA, PDD-Nos with out ID and Aspergers presentation who start in the elementary bridge out after a couple of years and are mainstreamed by middle school. At middle school, the kids with ASD/ID transition to one Autism ABA program and the ones with speech, mild or no ID graduate to the Asperger program which is more academic than life skills based. FWIW, about 85% of the kids with HFA/AS or PDD-Nos w/o ID are mostly in mainstream classes districtwide.

  
  

  None of this matters in terms of dxing now, but back in the day sometimes a clinicians would change a dx to "Aspergers" once a kid with autism gains speech. I can kind of see this if the child has apraxia and has always had age appropriate adaptive skills- they do tend to have a more Aspergers feel and prognosis. But other clinicians do see a difference in how these kids present- the chatty and adaptively appropriate kid with Aspergers who wants to connect but lacks skills to looks very different than the bright kid with autism who has less interest in the world and people around him and who uses adults in lieu of doing things for themselves. 

  
  

  Some clinicians see Aspergers and HFA as the same thing. Attwood is in this group; he says the only difference is how they're spelled. Others feel they are two distinct conditions and that the desire to reach out to others via speech makes it a different dx altogether. I have a friend whose son has an HFA dx who truly does not give a rat's ass about other people, he can totally take then or leave them. 

  
  Interesting. This kid would probably have more of an Aspergers feel so to speak--he played team sports, went to prom and had friendships but didn't speak a word until four. Definitely struggled/struggles with pragmatics and such though is doing reasonably well in college.

  

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