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Intro and question

AshlbeeAshlbee member
in Special Needs
Hi, I thought I'd stick around and introduce myself since everyone is so wonderful here! I have an almost 20 month old son, who has bilateral hip displaysa, a duplication on chromosome 16p 11.2, multiple allergies, as well as a few smaller issues. He's had surgery, a cast, and now a brace for his hips.,He has a speech delay, mostly in expressive I think. Right now he has no other major delays-but he will be having another hip surgery and cast for his hips in a few months. And with his duplication I find that I'm always on alert. Excuse he seems to be doing so well with it so far. So on to my question: I've suspected off and on that he may also have some sensory seeking issues, but everyone seems to write them off as being "just a boy". How do you know the difference between typical crazy toddler boy behavior and a problem? He hardly ever sits still, no matter how exhausted he is. I'm pretty sure he'd run and climb until he passed out if I ,et him. He fights sleep like crazy and bangs his crib with toys and body parts until he sleeps. He will fixate on a certain climbing behavior: for example the other night he was climbing a stool up over the arm and onto a chair, sliding down, and doing it again. He must of done it 20-30 times until I had to pry him away for bed. He climbs things repeatedly regardless of consequences(mine or natural). He loves wrestling, being thrown onto couches, throwing himself backwards, being swung upside down...anything like that. He will want to do these thing over and over and over. He has also recently started doing a weird stomping thing a lot as he is walking. And he's started banging his head-it started with him doing it on the couch but has progressed to the floor now as well. Do these sound like just things all boys do? Or should I maybe be looking into these more? Sorry if this is a dumb question. With his duplication there are just so many unknowns and wait and sees that I'm finding myself on edge about possible issues.
http://beatlesgirl64.wordpress.com/2011/03/16/trigger/ "Life is what happens to you while you're busy making other plans." John Lennon, "Beautiful Boy"
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Re: Intro and question

  • joshsmandyjoshsmandy member
    My advice is if you feel it needs to be looked at closer then it needs more attention. My son used to do those things as well as other things and his doctor kept telling me the same thing, he's a typical baby boy. Well he has ASD as well as OCD, OSD, mood disorder and SPD. Your his mom and if you feel something is off then follow your gut, the worst thing that will happen is he will show that he doesn't have anything and he just needs to outgrow it. Good luck and welcome :)
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  • RJ52012RJ52012 member
    Hello!! My daughter is 17 months and has the same 16p11.2 duplication. Ive noticed the same thing beginning in my daughter, and her drs have said that she could possible be bipolar and have add, which would be the reason for the hyperness. At what age did your baby start walking?
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  • AshlbeeAshlbee member
    He started walking at 17-18 months. I suspect he would have sooner if he hadn't been in a cast for his hips for 4 months. RJ52012- you are the second person I met on this board today that also has a little one with a 16p11.2 issue! Thanks for the input! I always worry-since everyone says it's all typical boy stuff, that I. Just being sort of crazy. It's great to know I'm not just nuts.
    http://beatlesgirl64.wordpress.com/2011/03/16/trigger/ "Life is what happens to you while you're busy making other plans." John Lennon, "Beautiful Boy"
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  • AshlbeeAshlbee member
    He's sort of being followed-we just moved from Nevada to Michigan, so he was seeing someone there, and has an evaluation but hasn't got services yet here. A lot of this-the repetitive thing, the head banging, really amped up since the move, so they haven't been mentioned to one yet. His first developmental pedi said she didn't think he was a risk for ASD based on how incredibly social he is- but maybe that's something that should be revisited. As for the cast, he wasn't walking or even crawling when he got it put on, so it hard to compare him energy wise. But that's interesting, and I will have to see how it is when he's in the next one.
    http://beatlesgirl64.wordpress.com/2011/03/16/trigger/ "Life is what happens to you while you're busy making other plans." John Lennon, "Beautiful Boy"
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  • AshlbeeAshlbee member
    Thanks auntie! He will be 20 months this weekend.
    http://beatlesgirl64.wordpress.com/2011/03/16/trigger/ "Life is what happens to you while you're busy making other plans." John Lennon, "Beautiful Boy"
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  • EmAreEmAre member
    @Ashlbee, I just wanted to chime in and let you know my daughter (4yrs with the 16p deletion) exhibits many of these traits but does not have ASD. It is very common for these kiddos to either have ASD (like Auntie said) or exhibit "ASD-like" traits. Getting in touch with a local dev ped would probably be a great place to start.

    I was also wondering @RJ52012‌ what is making the drs think a mood disorder at such a young age? My daughter has some behavioral/anxiety issues, but no one is talking
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  • RJ52012RJ52012 member
    My daughter changes from hot to cold in an instant (with her mood that is, not body temp!) She could be crying one minute and laughing the next. They said at first it could just be 'her', but she's been the same way for over 4 months now. Her developmental pedi also feels an the same way, and so does her pt/ot therapists. But we wont have her tested until she's 2, just in case. We are having issues with her heart right now, and she's got pretty bad asthma.
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  • RJ52012RJ52012 member
    My baby is about to be 18 months on the 13th of May, and she's nowhere near close to walking or crawling :( she has hypotonia, and I feel like its going to be forever before she walks.
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