Trouble TTC

So, my RE turned out to be an A$$hole

edited April 2014 in Trouble TTC
*~*~ETA: I'm sorry this turned into a blog!*~*~

Can I start out by saying I was really, really excited for my first RE appointment? I walked into that office ready, confident, and willing to attack my probable PCOS diagnosis head-on.
I have insulin-resistant PCOS. I am very overweight because of this, but I have lost 26 pounds since the beginning of January, and I am still losing. I know that I need to lose 100+ pounds, and am well on my journey to get there. I do not have a negative body image. I am beautiful, and I am healing my insulin resistance in the most healthy way possible--eating sensibly (modified Atkins to include almost exclusively real-foods) and moderate exercise. I am proud of how far I've come, and well aware I have a journey ahead of me.
Ok, all that plays into how horribly my RE appointment turned out.
The first clue that this appointment wasn't going to be what I hoped happened in the waiting room. I was sitting there, and a woman walked in and asked the nurser if this was the OBGYN floor. The nurse looked at her snootily and replied that it was the GYN floor. The woman looked more confused. The nurse rolled her eyes and asked "Well, are you pregnant? Because if you are you need to go upstairs" The woman promptly burst into tears and turned and fled. She was back 5 minutes later with her husband, who was parking they car because they were here to get their first SA done. That nurse has no business working in an infertility office.
I should have run at that point.
My RE is the premier RE in the area. I was excited to get on his schedule. That all flew out he window the minute after I walked into his office.
His first statement to me was that I needed to consider gastric bypass surgery, and he would make a referral. I sat there in stunned silence. He then began to ask me about my medical history, and I went through everything with him, but he never actually listened to my answers. He was to intent on talking to the adorable medical student who was shadowing him that day.
This went on for 45 minutes, with me telling him about my long cycles, delayed ovulation(he insisted I couldn't know when or if I ovulated and raised his eyebrows at my insistence that I have been BBT since December 2012)
He did not listen to anything I had to say. All he wanted to talk about was gastric bypass, doing a "fatty" liver biopsy(because I had a very slightly elevated liver number, less than .5 above the high value on the scale) and placing me on high-dosage metformin to deal with my IR.
I had anticipated the metformin, but actually wanted to hold off on it, because I've head of the nasty side affects. I really felt like I was on the right track with my low-carb, high-protein diet and increased activity.
Add to all this that he was incredibly rough and had zero bedside manner when he did my physical exam, and it turned into the appointment from hell.
I made it the whole way home and burst into tears the moment my husband asked me how it went. Like, crying, hysterical tears. I'm not a crier.
I will not be going back to that office.
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Re: So, my RE turned out to be an A$$hole

  • ((Hugs)) I'm so sorry that all happened. I'm glad you aren't going back there. You deserve to be treated with respect and should be listened to. You know your body better than any doctor does.

    Me: 30  DW (aka C): 29

    Together since 2/15/11 ~ Legally married in NY on 9/29/12

    ***CP mentioned***

    We've been working on baby #1 since July 2013 using Open ID donor sperm.  8 IUI attempts with 5 actual IUIs and one chemical pregnancy.  We have one fresh IVF cycle under our belts as well as a FET.  I have endometriosis and a uterine septum that was corrected via surgery in November 2013. 

    11/14/14 -  Second HSG shows that tubes are still clear and ute is looking good. 

    12/6/14 - Started BCPs in prep for IVF #2

    12/22/14 - Saline u/s and endometrial scratch (All was clear and OUCH!)

    1/2/15 - Began stimming for IVF #2

     ****All Welcome!****

    We are Mommas to four fur babies - 3 dogs and 1 cat.

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  • I'm so sorry. That entire experience sounds awful and I'm amazed you got through it without breaking down until later. I really hope the medical student doesn't pick up any of his "bedside manner." Hugs.
    2.5 years TTC with MFI, 3 failed IUIs 
    IVF w/ICSI October 2014: 17R, 13M, 12F 4 Frosties
    ET of two blasts 11/2/14 BFP!!! It's TWINS! EDD 7/21/15

    imageimage
    Lilypie Pregnancy tickers
  • I'm so sorry!  That experience sounds awful!  It takes enough courage to finally go to the RE (or at least it did for me), and then to be treated like that?  I'm so sorry!  Hugs.

    DH: 34  
    Aug 2013 - SA: Counts & Motility = great, Morph = 1%; RE didn't seem too concerned

    Me: 26
    Jan. 2014 - Blood work ordered by obgyn:  Prolactin = high & AMH = low (0.73)
    Feb. 6, 2014 - Repeat blood work ordered by obgyn:  Prolactin = normal & AMH = low (0.9)
    Feb.  20, 2014 - First appointment with RE
    Feb. 24, 2014 - HSG scheduled;  DX:  one tube definitely open & one tube could be blocked
    Mar. 7, 2014 - CD 21 Blood work for Progesterone; DX:  Progesterone level at 5.2; shows I ovulated but was low
    Mar. 28, 2014 - Laparoscopy; DX:  Tubes open.  Found some endometriosis and had that removed.
     
    History:
    Started TTC:  June 2012
    June 2012 - March 2013:  When it Happens/it happens method = BFN
    March 2013:  Started using Fertility Friend
    Cycles 1 - 15 with Fertility Friend = BFN
    Cycle 16 - Benched due to Laparoscopy
    Cycle 17 - Natural Cycle = BFN
    Cycle 18 - Natural Cycle = BFN
    Cycle 19 - Natural Cycle = BFN
     

    Current Cycle:
    Cycle 20 = Natural Cycle


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  • ((hugs))

    I'm sorry your appointment was terrible and that your RE was a douchecanoe.  I wished that people who work in that setting realize how fragile we are and learn to have some bedside manners.  

    ****SIGGY WARNING****


     Hashimoto's with irregular cycles  DH- 37 Severe oligoasthenoteratozoospermia

    TTC since May 2012

    HSG- all clear

    March 2014 - RE appt. 
    April 2014- Saline sono all's good, terrible SA results - 8 sperm found all abnormal
    May 2014- Fert Urology- Bilateral varicoceles, recommend Donor Sperm
    12/2014-  Surprise natural BFP  EDD 7/31/15 Plan:  Starting foster to adoption, natural cycles




  • I'm so sorry that your RE was a complete douche.  Are there other RE's in your area that you might be able to see?  I'd recommend looking into another doc ASAP. 
    Married on October 20, 2012.  Began trying in January 2013.
    RE appointment & testing December 2013 - February 2014= Unexplained IF, possible endometriosis
    IUI#1- March 22 (100mg clomid, 75 mg of Bravelle, Ovidrel trigger) = BFP!!!



  • I am so sorry that he treated you like that.  Being overweight myself, I promise you that there are RE's out there that will not make you feel like that.  I look in the mirror and I can see it for myself.  Being overweight does not mean that you don't deserve a child. 
    I am 37 and DH is 40
    10/2012 Start TTC
    09/2013 Finally got to see the RE 12/2013 HSG-both tubes clear
    01/2014 Large Cyst Removed along with right ovary and tube
    04/2014 2nd HSG-Remaining tube damaged/blocked
    05/2014 Testing cycle and BCP to prep for IVF
    06/2014 IVF cycle #1 is scheduled cancelled due to low estrogen
    07/2014 Started Estrace to help with my estrogen issues
    08/2014 IVF cycle #2 is scheduled delayed
    09/2014 IVF cycle #2 is scheduled failed- 6 follicles, 1 retrieved, 0 fertilized
    10/2014 WTF scheduled for 10/22 and second opinion scheduled for 10/10
    11/2014 Moving on to the new RE!  
    01/2015 IVF cycle #3 is scheduled delayed
    02/2015 IVF cycle #3 is scheduled

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  • I'm so sorry, that sounds horrible. That Dr really needs a kick in the ass and needs to learn how to talk to patients. It amazes me how many Dr's don't know how to talk to patients.

    I agree with @NariaDreaming‌ def go get your liver checked out. I'm also floored about the gastric bypass comment and him pushing it. My husband works with a lot of surgeons that use to do them all the time, but they don't recommend them anymore because of the dangers, seriously this guy needs to stick with advice on what he knows about.

    Congratulations on the weight loss so far!
    Fucking bump!!!!
  • What a jerk! I'm so sorry you had to experience that kind of treatment. It is already stressful enough to go see an RE and this just adds insult to injury.
    Me: +35 DH: +35
    TTC: Since January 2013 
    DX: PCOS. Severe Endometriosis, Unicornuate Uterus w/only left tube and left ovary, Pedunculated fibroid (on the outside of uterus) and Anovulation. All conditions diagnosed 8/13
    TX: Metformin
    DH DX: MFI - low morphology, low motility
    Ultrasound shows both kidneys in spite of UU. 
    HSG showed clear tube on the left side. 
    Lap Surgery performed 1/9/14 to remove fibroid and endo (Stage 3)
    • IUI# 1 June 2014 started 100 mg of Clomid - 7dpiui Progesterone: 13: BFN
    • IUI#2  July 2014 started 100 mg of Clomid - 7dpiui Progesterone: 5.75: BFN
    • Natural Cycle - so shocked to be in 2WW - 7dpo Progesterone: 15.5: BFN
    • Working with new RE starting injectables in late August.
    • IUI #3 August 2014  w/ Menopur: BFN
    • Finally ovulating on my own!!
    Waiting to start IVF hopefully
    **********All Are Welcome**************
    3T January Siggy Challenge: New Year's Resolution
    image

     
  • Thank you all for your incredible support.

    @nariaDreaming I actually plan to discuss the liver numbers with my GP, but she's the one who originally read the test results, and she made no mention of being concerned about the numbers. But, just to be safe, I'll follow with her to see if she recommends anything.

    At most, I'd think she would recommend a repeat blood test, to see if it's a pattern, and not jump straight to a biopsy.


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  • Wow, what a jerk. I can't imagine going into repro endo and acting like that. Your whole job is about helping people, not about being a douchebag. Yuck to him.


    ****Loss in Sig****
    3T Sig Challenge: New Year's Resolutions

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    "Nothing in life is to be feared, it is only to be understood. Now is the time to understand more, so that we may fear less."

    Marie Curie

    Married 2010, together since 2006. TTC for #1 since March 2012, actively charting since November 2013
    March 2014 - HSG left tube blocked, right tube partially blocked bilaterial partial obstruction; onward to the RE in April
    May 1, 2014 - Lap surgery and chromopertubation; Dr removed a bit of endo, but everything looks healthy & tubes are clear!
    May 2014- First medicated cycle, 2.5mg femara+TI; BFN
    June 2014- 2.5mg femara + hCG + IUI
    on 6/18= BFP on 6/28!; C/P on 7/3
    July 2014- 2.5mg femara + IUI #2 on 7/18. Starting progesterone 7/23, bfn
    August 2014- 2.5mg femara + hCG + IUI # 3 on 8/15. BFN
    Tx break
    IVF #1 -
    12/1 - TOT & SIS- RE found a polyp
    12/15 - Hysterscopic surgery to remove the polyp; additional polyps found and removed

    12/29- Good baseline u/s, 12 antral follies
    12/30- Started stimming
    1/10 - ER: 17 retrieved, 14 fertilized!
      My Ovulation Chart - No data,  just meds
    image
  • Wow. Just wow.  I'm so sorry that happened.  He was totally out of line.  (((Hugs)))
  • I am so sorry about your appt. What. A. Jackass. I would have had some choice words for him.

    Anyway, it sounds like you're doing a great job of losing weight on your own. Congratulations! I know that's not easy. Gastric bypass should only be recommended in extreme cases and I don't think you fit that category. I'm also impressed by your body image. That's great! :)

    Do get your liver checked out though, honey. Any issues could effect a pregnancy or your general health later and it would be better to find out and treat that now. And, FWIW, the fatty liver comment *is* the medical term and not a jab at your weight.

    Best of luck finding a new RE. (((HUGS)))
    Love 2010 | Marriage 2011 | TTC #1 since 2012
    PCOS | Anovulatory | Metformin + Letrozole
  • I am new to the board, but just had to respond to your post. It sounds like we have very similar issues. I have PCOS and really struggle with my weight, It's been a constant battle since puberty. I have been working my butt off since mid-January and am down 27. Kudos to you for working hard and gaining control of your health. 

    I had my first RE appointment in January and he sounded a LOT like your doctor. The first thing he recommended to me was gastric bypass as well. He told me to lose 50 lbs and then come back and he would be willing to work with me. Ugh. My husband and I have taken to calling him Dr. Fat Shame. 

    We did some research and found another clinic in our area. I spoke with their patient coordinator about our previous experience and explained to them that I was working on losing weight but want someone to work with me NOW not later. They were very understanding. We went in for our first appointment two and a half weeks ago and I am on my third day of Clomid right now. They didn't discuss my weight at all. Except to tell me that continuing to lose weight would help my situation. 

    There is hope out there, My best advice is to do some research and talk to other clinics in the area. 

    Best luck to you!! 
    Me: 31 | DH: 37
    Married January 12, 2013
    TTC since July 2013
    Fertility Treatments January 2014 - June 2015
    Took a break to prepare for IVF
    Surprise BFP - September 2015 - MMC at 6 weeks, 5 days
    Another surprise BFP - November 2015 - EDD: July 8th! 


  • I am also 100+ lbs overweight. My RE never said a word about my weight. He knows I know. And he is confident enough to work with it. It's an experience thing. Its just not worth making your patient feel like shit. Build them up and make them excited for this!

    I also take metformin. I have diarrhea 2-3 times a week. Its not fun but its tolerable. It or my thyroid med is making my hair fall out. I hate that more. But its all worth it :)
    Pregnancy Ticker
  • That's absolutely terrible. You should be so proud of yourself for working on getting healthy and sticking to it for several months already!! There is no reason he should have just discounted all of the information you were sharing with him. It doesn't have to be like that. You *will* find someone better. I hope you find them quickly. :-)
    **siggy warning**  **everyone welcome**

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    DS- 11.07.02
    DSS- 6.26.04
    Married- 6.29.13
    TTC Again- Sept. 2013
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Test Results/Diagnosis- HSG & SA totally normal
    DX: 3/2014 Prolactinoma/Hyperprolactinemia- Started cabergoline 2/2014
    5/2014 Possible mild PCOS in addition to hyperprolactinemia??
    7/2014 Adding probable tubal factor to the diagnosis list
    9/2014 And now adding hypothyroid to the list- Started synthroid 9/2014
    Cycles 1-4 - Sept.-March- All Anovulatory 
    IUI #1 March/April-  Clomid 50mg + Clomid 100mg +Trigger + IUI #1 = BFN
     IUI #2 April/May-Clomid 100mg + Clomid 150mg + Trigger + IUI #2 + Endometrin=BFN
    IUI #3- June- Follistim 75iu + Trigger + IUI #3  Benched due to a 40 mm cyst. :-(
    IUI #3- July- Follistim 75iu + Trigger + IUI #3 + Endometrin = BFP! on 7/25/14
    Slowly rising betas - Ectopic suspected on 8/8/14 & confirmed on 8/11/14
    Methotrexate on 8/12/14 -HCG negative on 9/2/14
    IVF #1- November- Antagonist protocol: 11/1: start stims, 200iu of Follistim; 11/12 ER 17R/14M/14F; 11/17 5 day transfer of two blasts, 2 blasts and 2 expanding morulas frozen; 11/22 BFP!! (On FRER at 5dp5dt)
    Betas: 9dp5dt 205, 11dp5dt 497, 14dp5dt 1,709
    u/s at 5w0d- 1 sac; u/s at 6w0d 1 baby with heartbeat, another sac without a heartbeat
    image


  • I don't blame you for not wanting to go back. That is a horrible experience. I hope you have other RE options in your area.

    imageimageimage

    Trying to get knocked up since June 2012 ~ Dx: PCOS

    BFP 7.24.13 ~ EDD 4.2.14 ~ m/c  9.16.13 @ 11w4d

    BFP 5.4.14 ~ EDD 1.12.15 ~ stick little bean!

    TTGP 2013 Best Blog ~ Fruit ~ My BFP Chart 

  • All I can give are internet hugs. Please write a review to help others out.
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  • Wow - that's totally unacceptable.  I hope you're able to find an RE that thinks more outside the box!  Congrats on the weight loss!
    Me: 32 DH: 34
    TTC since Feb 2012
    Dx: Me: Widespread Endo & nagging Uterine Polyps. Low progesterone  DH: MFI - borderline motility and low morphology. 
    1st Hysteroscopy to remove polyp found during HSG & Saline U/S Dec '12 with OB/GYN
    RE referral and testing in June/July '13
    1st Lap & 2nd Hysteroscopy done Aug '13 to diagnose Endo and remove polpys
    6 months of Lupron to reduce amount of endo
    2nd Lap & 3rd Hysteroscopy done Feb '14 to remove remaining Endo and polyps that won't go away    
    DH:  Varicocele found; surgery to fix Jan '14
    Unmedicated IUI#1 - 3/28/14 -  BFN
    Medicated IUI#1 - Letrozole (5 days) + Follistim + Ovidrel - 4/25/14  Beta 5/12
  • I am sorry I hope you find a new RE...

    I don't have PCOS but I am overweight.  I have hashi's with hypothyroidism and have been heavy my whole life. It is hard for me to lose weight with my thyroid being a total jerk all the time.
    Add the stress of infertility and loss and well... it is hard.

    My RE and I discussed my weight (i brought it up) but he was respectful and didn't blame any of my problems on weight.  He encouraged me to lose some weight so the meds might work better (I wasn't responding) but he told me to not take drastic measures (surgery, fasting, cleansing etc...)  He said losing weight in an unhealthy manner would only hurt my chances. There are good RE's out there that don't act like a douche bag.
    ***siggy/ticker warning***

    Me:36 DH:38 TTC#1 since 4/2012
    Me DX: Hashimotos,Hypothyroid, DOR, MTHFR,  DH: normal

     IUI #1-#4 BFNs and a few cancelled cycles in the mix.
    - poor responder
    ***Suprise BFP on 6/13/13. Natural MC @6wks 3days
    IVF#1 and 2- Cancelled due to no response on max stimms
    FET 5/20- BFP
    1st Beta- 641
    2nd beta- 2166
    Sono- TWINS!!!!
    Two Boys! Born January 2015 @36 weeks.  Healthy and no NICU!  So blessed!



    image 

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