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August 2014 Moms
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bilateral choroid plexus cyst

discohikerdiscohiker member
in August 2014 Moms
At our U/S today we were told that our child has cysts on the brain.  He/she is also measuring smallish (19 weeks) but otherwise is perfectly fine.  Heart looks good, guts look good, etc...
I sat in the doctor's office in complete shock and holding back tears as she explained that I can ignore this, get bloodwork done, or get an intense U/S at a different facility or a combination of the last two.  I should have grabbed my husband in the waiting room but couldn't think of anything other than "I have carried this child for 20 weeks now and it might not even live."
Walked out to the waiting room and had my husband google the thing and he said it rarely comes back as an indicator for trisomy on its own. 
This doesn't keep me from freaking out and worrying for the past 9 hours and wondering how long it really takes for that darn bloodwork to come back. 
Why did the doctor even tell me this if everything else looked fine?  What good does it do anyone if there aren't other indicators to scare the crap out of us?
Anyone have this happen to them?
I am 35 and this is my second pregnancy. 
"There is more to us than we know. Perhaps, if we are made to see it just once, for the rest of our lives we will be unwilling to settle for less." - Kurt Hahn, Founder of Outward Bound

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Re: bilateral choroid plexus cyst

  • chase16chase16 member
    I don't have any advice- just thinking positive thoughts your way
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  • kimberlydlee82kimberlydlee82 member
    I just had this last week and I did the detailed ultrasound. Turned out perfectly fine! If it's the only marker it is super unlikely that it is an indicator for trisomy 18! Try not to stress! I'm sure all is well!
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  • discohikerdiscohiker member
    Thanks for the reassurance.  We got the blood test and will go back for an ultrasound after the results of that. 
    I try not to worry, but I had dreams all the time with the first pregnancy that my child would have DS, so I think that premonition that didn't come true is messing with my head. 
    Yeah... probably legal reasons that they have to tell you, but this makes me really want to never have an U/S until later if I get knocked up again.  Isn't me being stressed and worried harmful to the child? 
    Sometimes ignorance is bliss. 
    "There is more to us than we know. Perhaps, if we are made to see it just once, for the rest of our lives we will be unwilling to settle for less." - Kurt Hahn, Founder of Outward Bound

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  • kaitm22kaitm22 member

    My baby does not have bilateral, but did have one cyst at the last ultrasound. I go back for another next Friday. If you look back into past postings there have been a couple of chat boards where a few of us shared what was going on with us. There were some nice articles posted and I have googled a few that have helped me feel better.


    Hubby and I decided that it wasn't worth worrying for the 5 weeks we have to wait until the next ultrasound, although I did have some blood work and it all came back normal. We both felt better after we read some articles. It seems to be that they are finding them more these days with better ultrasound tech.

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  • ASecretChordASecretChord member
    I've wondered why they even tell us about one marker also! My baby has one marker for Downs, and in speaking to people both on this board and off, I'm finding out just how common that is. Everyone cried their heads off when they found out, but then, either through blood work or birth, they found out that that their babies had no extra chromosomes. Sheesh.

    FX, hugs and try not to worry! Let us know what you find out!
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  • DraconykDraconyk member
    I know this is a late post but I thought I'd share. They found a CPC in my baby's brain too. I had the panorama test done at 14w due to being high risk and everything came back neg. Well my AFP (I believe) came back high risk for downs, 1:50. Due to the test results and the cpc, we opted for an amnio. After 2 weeks of worrying and being completely freaked out, everything came back normal. I have a healthy baby girl. My MFM say that they're finding them more now since u/s is far more advanced and that they aren't a true marker for any genetic anomaly. They've been found in the brains of genius scientists. Generally, they're resorbed by the brain by 24ish weeks but if they're not, it doesn't mean anything negative. Here's my disclaimer: I am not a doctor, I just lived through the same hell. I hope you can find some form of reassurance from my experience.
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  • discohikerdiscohiker member
    This experience is why my mother opted not to have any U/S with either me or my sister.  Back in that day, they were much newer and not even as detailed.  She said it wasn't going to make a difference if she saw me or not before I came out.
    "There is more to us than we know. Perhaps, if we are made to see it just once, for the rest of our lives we will be unwilling to settle for less." - Kurt Hahn, Founder of Outward Bound

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  • audreylaine510audreylaine510 member
    This has come up a few times on this board and the second tri board already and I'lll tell you the same thing I told others. We had the same exact thing with my last pregnancy and everything turned out totally fine! I hate that the doctors scare us with this stuff. If there were no other markers chances are better than good that your baby is perfectly healthy. Try not to worry :-)
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