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intro and possible issues

sarah_beth2005sarah_beth2005 member
in High-Risk Pregnancy

hi ladies,

 I'm 27wk5d with twins (boy/girl), and am having a rough couple of weeks.  We just got upgraded to a high risk pregnancy, due to some u/s findings a week ago.  Background - at our anatomy scan in January, everything looked great for both babies, but they saw an EIF on baby girl's left ventricle, which by itself isn't anything to be concerned about.  Our NT scan came back normal during 1st tri, and our bloodwork came back with a 1 in 4,000 risk of Down syndrome.

Fast forward to a week ago, at a regular u/s appt., the OB noticed a brightness in baby girl's bowels (echogenic bowel), which could be an indication of any number of issues, and raises our risk of Down syndrome to 1 in 100. 

Last Friday - we went for an u/s with the high risk OB at the hospital (basically, they did a second full anatomy scan on both babies), and are now on information overload.  Not only do they still see both soft markers in baby girl, they also saw echogenic bowels in baby boy, as well as a larger-then-normal space in baby boy's brain stem (supposed to be 10 mm or less - his is 12 mm).  So they took a lot of my blood to run virus screening tests and to do the Harmony test.  That by itself would be a lot to deal with, but now they also saw that baby girl's umbilical cord is attached to the very edge of her placenta (not in the center, which is normal), and she's not growing as expected.  She's always been on the small side, but still within normal ranges, so my OB hasn't been too concerned, other than to say that they would continue to monitor her growth to make sure she is still growing.  Now though, she remains at the 23rd percentile, but her belly is measuring only 7th percentile, and the high risk OB indicated that most likely her placenta will have issues, that she fully expects baby girl to drop below the 10th percentile at some point, and they'll have to deliver much sooner than planned.  We were told that even though the blood flow studies they did last Friday came back within normal range (just barely though), they expect baby girl's growth to taper off over the coming weeks, and once she either stops growing entirely or the blood flow from her placenta is reduced (or reverses), then they'll have to deliver.  Very scary stuff.  The OB seemed to be hopeful that we would make it past our next u/s in 2 weeks, but couldn't guarantee how much longer beyond that - it will all depend on how baby girl is doing at that point.

 

So, now we wait until April 11th, when we'll get results from all the blood tests (and have a better idea of what we should be worried about/preparing for), and see how baby girl is growing.  Just too much to try not to worry about in the meantime!

TTC since July 2011
 
Me(33): normal HSG; diagnosed with mild PCOS

DH(35): normal SA
 
*6 cycles no meds, July-Dec. 2011, all BFN
 
*Clomid for 3 cycles, Jan-March 2011: BFP March 2011
 
*MC at 6 weeks

*2 cycles off
 
*Started TTC again July 2012 with Clomid, 6 cycles from July-Dec. 2012, all BFN
 
*1 cycle no meds: BFN
 
*1 cycle Femara: BFN
 
*1st RE visit March 2013 - first IUI in April 2013 with Femara, Menopur, and Novarel (BFN); second IUI in May 2013, same protocol (BFN); two cycle break;  third IUI in August 2013, same protocol (BFN)

*1st IVF cycle, October 2013 (Synarel, Menopur (75 iu), and Gonal-F (150 iu)) -- BFP!!  Saw two babies at our 5wk5d u/s on Oct. 28th!  EDD=June 25, 2014

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Re: intro and possible issues

  • YlvelillYlvelill member
    *hugs* good thing is that they are past the real scary time. Stay calm and will keep my fingers crossed for the little ones.
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  • haziedazehaziedaze member
    ((HUGE HUGS)) So sorry you're facing so much right now. Sounds completely overwhelming. Hoping you get reassuring test results back and can just focus on the growth/cord issues. It's reassuring that you're already almost 28 weeks, that's a huge milestone in preemie land and you're about to pass it! Hang in there and keep us posted!
    BFP#1 9/14/10 (EDD 5/21/11); no fetal pole 6w6d, 7w4d, d&c 10/8
    BFP#2 3/16/11, beta 138; 4/12 Baby/HB DS born 9/10/11 at 29w4d due to partial abruption and PTL
    Lilypie Third Birthday tickers
    BFP#3 8/19/13 Another boy! 17P, modified bedrest and Nifedipine helped us have a termie! DS2 born 4/19/14 at 38w5d.
    image
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  • rldartmanrldartman member
    Thinking of you and feeling similar worries. We just had a 24 week US with fetal medicine and they confirmed our little girl has bilateral club feet and a curved spine. Then they found extra fluid in her brain ventricle and a possible hole in her heart!! Lots of info to digest- we had the amino done today to see if our little one has any genetic disorders!! Sending positive thoughts your way!
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  • sarah_beth2005sarah_beth2005 member
    Thanks ladies!  I feel a bit better every day that goes by - we'll be 29 wks on Wednesday, and every week feels like another weight off my shoulders!  @ridartman - praying you get good amnio results!  I know we're anxious to get our Harmony results back this Friday!  I'm with you on the information overload - sometimes it's just too much...

    TTC since July 2011
     
    Me(33): normal HSG; diagnosed with mild PCOS

    DH(35): normal SA
     
    *6 cycles no meds, July-Dec. 2011, all BFN
     
    *Clomid for 3 cycles, Jan-March 2011: BFP March 2011
     
    *MC at 6 weeks

    *2 cycles off
     
    *Started TTC again July 2012 with Clomid, 6 cycles from July-Dec. 2012, all BFN
     
    *1 cycle no meds: BFN
     
    *1 cycle Femara: BFN
     
    *1st RE visit March 2013 - first IUI in April 2013 with Femara, Menopur, and Novarel (BFN); second IUI in May 2013, same protocol (BFN); two cycle break;  third IUI in August 2013, same protocol (BFN)

    *1st IVF cycle, October 2013 (Synarel, Menopur (75 iu), and Gonal-F (150 iu)) -- BFP!!  Saw two babies at our 5wk5d u/s on Oct. 28th!  EDD=June 25, 2014

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  • cowgirljennifer@hotmail.comcowgirljennifer@hotmail.com member
    Read your post and just wanted to let you know your babies are in my prayers! Hopefully baby girl will be just fine and she will continue to grow just be smaller. When I was pregnant with my first daughter I had ALOT of ultrasounds and they were always worried because she was in the 13th percentile. Also her belly was measuring smaller then normal. Of course this had me totally freaked out, but when my daughter was born she was perfect!! Hopefully your babies will stay in as long as possible and when they do come out they will be healthy! Good luck momma!
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