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Quitting Folgard RX mid pregnancy? MTHFR

liz4pawsliz4paws member
edited April 2014 in Pregnant after IF

I've been on Folgard Rx 2.2 that my RE originally prescribed me for my single copy of c677t MTHFR. At my recent 20w appt with the OB, I asked about him about my current meds and he said he'd take over being the prescriber on them. I listed them but forgot to really get into the Folgard until he was on the way out the door. I said "Do I still need to take Folgard?" and he casually said "Nah, just a normal prenatal with folic acid is fine."

I'm close to running out of Folgard and the PaIF brain is kicking in. I didn't get the sense that he really understood why I was taking it. And to make things worse, I can't find anything online to support that it's okay to quit mid pregnancy for patients with MTHFR. I guess the single copy I have isn't as bad as it could be....but still....makes me worry.

I'm debating calling the OB nurse tomorrow morning and asking if they'd prescribe it anyway, if nothing more, for peace of mind if it won't hurt anything. WWYD? Anyone know about quitting mid pregnancy?

Thanks!

************ Signature/Ticker Warning ************
 Me (32) DH (36) - Finding our way to baby #1
 Me: POF/DOR - AMH <0.16, heterozygous c677t MTHFR, insulin resistant and gluten intolerant
 DH: Severe MFI

 12/2/11 - IUI #1- BFN 
8/1/12 - IVF #1 - Zero response from max stims (600iu intramuscularly)
My ovaries are just for decoration

 12/6/12 - Adopted five embryos that had been frozen for over ten years!
 2/11/13 - DEmbryo FET #1 Thawed four, sadly two didn't survive. Transferred two beautiful blasts. 
 2/16/13 - First BFP of my life @ 6dp5dt! EDD 10/30/13
 3/27/13 - After beta and u/s hell, no heartbeat ever detected. D&C at 9w1d.

6/5/13 - Adopted four new embryos that had been frozen for seven years!  
9/12/13 - DEmbryo FET #2. Thawed and transferred two beautiful blasts
9/17/13 - BFP @ 5dp6dt! EDD 05/31/14
 9/29/13 - m/c @ 5w1d. :(

11/19/13 - DEmbryo FET #3. Thawed and transferred one blast from each batch. Wow!
 11/23/13 - BFP @ 4dp6dt! EDD 8/7/13
Beta #1 @ 13dp6dt - 522  Beta #2 @ 16dp6dt - 1373 
6w5d ultrasound showed one perfect baby with a beautiful heartbeat of 134bpm!

Snowflake baby is a girl! 
Our beautiful Snowflake girl arrived on July 22, 2014!   
 My embryo adoption blog: Wishing on a Snowflake
  
    image      image 
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Re: Quitting Folgard RX mid pregnancy? MTHFR

  • DoublePortionDoublePortion member
    I don't know about quitting mid PG, but would be interested to know if it's common since I'm on Folgard too. Maybe email your RE to see what they think?

    ***signature & ticker warning***

    Me: 30 ~ Stage IV Endo ~ AMH .38 ~ AFC 8
    AMH .97 as of 4/2012! ~ AMH 1.63 as of 4/2013!?!
    Him: 29 ~ perfect swimmers
    Laparotomy w/partial oophorectomy 8/2009 to remove cysts/endo.
    Stopped BCP 4/2010.
    Multiple clomid rounds from 11/2010 to 6/2011. ~ All BFN
    IUI w/clomid 7/2011. IUI w/clomid & injectables 11/2011 & 1/2012. ~ All BFN
    IVF:EPP 5/2012 ~ (4R, 3M, 2F w/ICSI). Both embryos txfrd. ~ BFN
    BCP to manage endo from 10/2012 to 12/2012.
    FET w/donor embryos #1: 10/2013 Cancelled
    FET w/donor embryos #1.2: 11/2013     ~ ET of 2 beautiful blasts on 11/27.
    Beta 1: 503(12dp5dt) Beta 2: 1035(14dpt) Beta 3: 3001(16dpt)     Beta 4: 8503(19dpt)
    Twins with an EDD of 8/15/14! Team Purple
    G&B born 6/30/14 at 33w3d via emergency c/s.

    If you're wondering about my avatar...it's a fried pickle chip shaped like a fetus!

    image

    image
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  • brooklynesquebrooklynesque member
    My OB didn't want me to quit it (I'm have the same heterozygous mutation you do) but she didn't sound that concerned about it either way.  If I were you I'd stay on it.  Why worry?  And apparently there's no downside.
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  • FishyMomFishyMom member
    I would be hesitate in stopping. I have no reason behind why I would be hesitate but I would ask to stay on it. Please let us know what the doc says when you ask about it.
    ******************** BFP Warning *******************
     
    I'm 29 and DH is 32 we have a MFI (low count) 
    IVF #1 starting in August. ER 9/5/13 23 eggs we are fertilizing 15. 9 frozen
    ET 9/10 - transferred 1 perfect 5AA blast
    7dp5dt BFP ~~ Beta on 9/19 - 77.4 Beta #2 on 9/21 - 357
    Low heartbeat on 10/7 86, lower heartbeat on 10/11 76, no heartbeat 10/14/13. D&C 10/15/13
    Tests revealed MTHFR c677t mutation, put on Folgard.
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    FET #1 1/6/14 - 4BB blast - BFN
    FET #2 - 3/3/14 - 5AB Blast -- Beta #1 3/12 - 152 -- Beta #2 3/14 - 358
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    FET #3 06/09/16 - 5AB Blast - Beta #1 6/18- 245 -- Beta #2 06/20 - 600
     PAIF/SAIF/PAL/SAL welcome!

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  • amwenzamwenz member
    I also have the same copy of the gene. My MFM and OB wanted me to continue the folgard. My RE had actually prescribed it for 12 months maybe you can just get a longer prescription written this time?
    Started ttc may 2012 Me:32. Dh:31 SA- 4% morphology Fsh:9.1 possibly not always ovulating Hysteroscopy/lLap 7/13 resulted in polyp removal, uterine septum, and mild endo stage 1 removed 10/13 IVF #1 successful 
    BabyFruit Ticker}

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  • Mrs.McIrishMrs.McIrish member
    Pretend I'm not answering this but no way! With one copy of mthfr your body is probably converting about 80% of the folic acid you take so you need to take a higher dose to get the correct amount. Google Neevo if you want-- it's a prescription prenatal specifically for MTHFR. It's actually the natural form of folic acid -methyfolate-- so your body doesn't have to convert anything. That's what I take (I have 2 copies..)

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

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  • FishyMomFishyMom member
    @mrs.mcirish how much is Neevo? It appears your need an RX? I think I may ask about it.
    ******************** BFP Warning *******************
     
    I'm 29 and DH is 32 we have a MFI (low count) 
    IVF #1 starting in August. ER 9/5/13 23 eggs we are fertilizing 15. 9 frozen
    ET 9/10 - transferred 1 perfect 5AA blast
    7dp5dt BFP ~~ Beta on 9/19 - 77.4 Beta #2 on 9/21 - 357
    Low heartbeat on 10/7 86, lower heartbeat on 10/11 76, no heartbeat 10/14/13. D&C 10/15/13
    Tests revealed MTHFR c677t mutation, put on Folgard.
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    FET #1 1/6/14 - 4BB blast - BFN
    FET #2 - 3/3/14 - 5AB Blast -- Beta #1 3/12 - 152 -- Beta #2 3/14 - 358
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    FET #3 06/09/16 - 5AB Blast - Beta #1 6/18- 245 -- Beta #2 06/20 - 600
     PAIF/SAIF/PAL/SAL welcome!

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  • Mrs.McIrishMrs.McIrish member
    Ashris13 said:
    @mrs.mcirish how much is Neevo? It appears your need an RX? I think I may ask about it.

    Yes, it is prescription. Cost will depend on your insurance but its fairly pricey. I did mail order and its $110 copay for 3 months. An added benefit for me is no headaches the entire time I've been on it (there's a link with MTHFR and migraines). You can also take Thorne prenatals from Amazon for so it $25/bottle. It has methylfolate in it instead of folic acid.

    TTC #1 since 8/1/10; Me:41 and BRCA1+, DH:46
    DOR (FSH 24.3)/ terrible egg quality ; homozygous MTHFR c677t
    5 IUI's: 2/11 to 6/11 and 1/12= BFN
    OE IVF#1-4 8/11-6/12= all BFN
    DE IVF#1 11/12 bad embryos= BFN
    DE IVF #2 2/13 BFP/Beta hell: m/c 5w6d
    CFNBC 7 months, not doing well; decided on guarantee program at RBA w/frozen DE
    DE IVF #3 1/14  ET 4BB; BFP;M/C 5w1d, incomplete m/c; MVA extraction in ER 7w1d

    DE FET#1 ET 3/1714; BFP, beta 1 3/27= 197, beta 2 3/31= 1586, beta 3 4/7= 13879!!
    First u/s= Twins with HBs at 6w2d! We are Team Pink x 2!!

    K & K born 11/21/14 at 38wks 4 days

    imageimage

    SAIF/PAIF Welcome


    http://waitingforraintostop.wordpress.com

    Report Reply
  • katelynsmkatelynsm member
    I also take Neevo. I have 1 mutation, which a geneticist actually told me was not a problem. I like the peace of mind that taking Neevo gives me. I pay $90 for 3 months using mail away before that it was $45/month.
    me: 30 DH: 33 Married since 7-20-2012
    SMI
    IUI w Clomid fail 9/13
    started first IVF cycle Menopur and Follistim 10/13
    ER 11/4/13
    13 E 8 fertilized 
    5dt 1 blast 5 frozen 11/9/13. 9 day wait w progesterone (Crinone gel) 11/18 BFP! 30 11/20 down to 10 11/22 MC confirmed. 12/11-FET # 1: 2 5 day blasts 12/20: BFP! Beta 1: 396 12/23: Beta 2:1666 12/30: first u/s: twins! 1/7: baby a heartbeat: 117bpm baby b: slower development, heart's beating but too small to hear it.
    image"">
    BabyFruit Ticker


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