~~MSPI Moms Weekly Check-In~~ 3/25

[Deleted User] · March 2014

~*~*MSPI Moms Weekly Check-In*~*~

Welcome! This is a check-in for moms who are/were on a dairy free and/or soy free diet due to their LO's intolerance. The check-ins will be posted every Monday morning on the Breastfeeding board and XP'd to the Food Allergy board. If you'd like to join the group, just post an intro here and dive in! To check out the archive of our previous check-ins, please see the MSPI Moms Blog (www.mspimoms.blogspot.com).

Sorry I didn't get a chance to post this until now. In case anyone is still looking for the check-in, let's just catch up. How are you doing? How is your LO doing? Any burning questions you'd like answered or experiences to share?

[Deleted User] · March 2014

I have been really busy at work (hence the bump hiatus). I've decided DS's poop is just not right and I'm going back to strict soy avoidance to see if it helps. We have his 2 yr check up this week so I will talk to his pedi about it too.
Hope everyone is doing well! I will do my best to check the thread at least once tomorrow.

BlessUrHeart29 · March 2014

Hey, all! Hope everyone is doing well!!

So two weekends ago I accidentally had some butter while eating out, and DS didn't seem to react, to my surprise! It probably wasn't much butter, but still, it gave me hope!

So this past weekend I ate goat cheese every day, and again, no reaction! I want to go slow with re-introducing things, but I think we might be seeing a faint light at the end of the tunnel!

amichelle723 · March 2014

I'm feeling frustrated

Just when I think we have it figured out and have a few weeks of normal diapers, DD starts having mucousy poops again. I'm not eating anything different so I'm not sure what's going on, teething maybe? She is 6 months old today and we are starting solids soon, and I know that will throw a whole other wrench into deciphering her diapers. I feel poop-obsessed! Daycare even writes down descriptions for me (which is great but I do feel like 'that crazy mom'). I would like to get to the point where I can do trials of baked dairy, goat cheese, etc., but I keep waiting for a period of sustained improvement and just when I think we have it, she has green mucous again...

@JarynA that's exciting that your LO can have goat cheese! I'd like to see if DD can have goat products. It would make for a nice WCM substitution when she's over a year old.

BlessUrHeart29 · March 2014

@amichelle723‌ DS (5.5 months old) is having some issues lately could be either dairy or teething, and I'm sure they are teething related. I think the only thing what would me think the issues were diet related would be if I saw any blood in his diaper again.

camedowncrushing · March 2014

I finally felt brave enough to take the GI's advice and try to reintroduce wheat. I got my own guaiac kit (call me crazy...I don't care! ha ha ha) and yesterday ate some chicken that was breaded. I nursed DD 2 hours later. She pooped while she was still feeding. The poop looked fine. Then 10 minutes later she pooped again. This was odd, but the poop still looked fine. 10 minutes later she pooped again, and it was full of blood. I felt awful.
It was more blood than I had seen in any previous stools which has me scratching my head. When I first started this process I started eliminating dairy and soy, then wheat, then finally egg. I am curious now why there would be more blood after reintroducing a small amount of wheat once. Anyone have any experience with this?

RingOfFire11 · March 2014

I'm 3 weeks into no dairy/soy (and all hidden), eggs and nuts. I had removed beef for 2 weeks as well. We had much improvement and the weekend went great (she's 9w). She still had very loose and mucousy diapers though. I took her to the pedi on Monday for a weight check and to test her diaper for blood. She gained 11oz in 20 days (the low end of normal but doctor didn't seem too concerned) and no blood!! She suggested I start offering the other boob to see if she will take more milk/calories since she's now sttn (I've been doing one-sided feeds up till now due to oversupply). We talked through what I cut out and she seemed surprised I chose to cut beef and thought it may have been coincidental. So....I ate steak at home that night to test. Bad idea. Yesterday was a rough day - the smelliest gas/diarrhea, reflux, and lots of crying. Today seems a little better but still diarrhea and she literally pooped bubbles (like she drank soap) when I had her diaper off changing her earlier. I don't think this is coincidental so no more beef.

[Deleted User] · March 2014

@amichelle723‌ teething can definitely get mucous in the poop, but I don't think they would be green also. I wonder if there's hidden dairy or soy lurking in something you only eat occasionally? Or give to LO? Vitamins, medications? I know how it feels to be poop-obsessed!

[Deleted User] · March 2014

@camedowncrushing‌ and @RingOfFire11‌ I'm sorry your reintros did not go well! At least you have clear answers now about those foods that obviously bother your LOs. I hope things continue to improve. Re: the severity of symptoms, it seems kind of unpredictable in my experience. Maybe a good question for the dr. GL!

Cbowl · March 2014

Hi all. Going on week 4 of no dairy. I have seen an improvement in my LO's mood and poop (I think). She is no longer having explosive mucous poops multiple times a day and she is a lot less fussy. Her poop is still really liquidy (not seedy at all) and most of the time it is bright orange rather than mustard color. I know orange poop is in the spectrum of normal for BF babies…so I'm hoping that it's okay.

The diet is going well so far although it is tough when we go to parties or gatherings and I can't eat anything. I'm planning for LO's christening with 25 guests and it looks like I'll be not eating once again. Ah well…it's worth it.

I just discovered Enjoy Life's chocolate bars. Yum! I've been hoarding them every time I go to the grocery store!

lovelainie · March 2014

We're doing alright, kind of. It's been six weeks since I cut out wheat and nuts, and about four weeks since I cut out beef, and about half of DS's poops are still green and mucousy. So now, I'm trying to decide if I'm going to cut out corn or eggs. I'm leaning toward corn, because I've been kind of avoiding egg anyway, and things don't seem to get worse when I eat them...

But I'm in a bad food rut, and if I take away corn, I'm really narrowing down my options for meals, until I can find some new recipes. And, of course, when you're avoiding dairy, soy, wheat, nuts, beef, and corn, that's not even all that easy. DH isn't really all that much help, either. He feels like because, at this point, the stools are the only symptom, I should just stick with what I'm doing instead of cutting out even more food. I can see his point (especially because the pediatrician hasn't been very helpful or informative on the issue), but at the same time, I know things aren't right and I can't shake the feeling that if I don't figure this out it's going to snowball into more issues later on. Maybe I'm wrong. I don't know.

(Holy cow, that got long and ranty. Oops.)

bossyfnp · March 2014

Lurker here...if you end up eating something with dairy after avoidance then does it take 2 weeks to leave you system again?

PipSqueak0313 · March 2014

We got the milk allergy confirmed. Now to figure out the soy part. He didn't have enough of a reaction during the allergy testing to say he reacted to the soy. The milk and positive control were almost identical in looking like a mosquito bite with a red area around it while the soy was just a red area with a small dot the size of a pimple -- while the apple looked like the negative control.

So the dr said to try reintroducing the soy. I'm confused trying to determine if ds is reacting to the soy or not. Gave him some soy milk in his cup yesterday and last night he just wasn't his normally happy self and today he has red dots (not hives though) on his torso and face. Coincidence or reaction to soy. Any idea on how to proceed from here? FWIW, his reaction to soy formula at <6months was to become excessively (for him) fussy almost immediately after drinking the formula.

Is it possible that he might take longer to react to soy than what the skin test would show or that he can tolerate small amounts such as what would be hidden in foods or in the test but react to larger amounts such as in soy milk?

[Deleted User] · March 2014

@lovelainie That is a difficult diet with all those eliminations. I agree with you, if his poop is still wrong, even if you're not seeing blood, something is still bothering his little system. I used pinterest to create a custom food board for myself full of recipes that I could eat. That way I had easy access whenever I was in a rut or didn't know what to eat. We really branched out in what we ate, lots more quinoa, lentils, tons of veggies. Beans are a good, filling food! They are easy to make from scratch in the crock pot too. I will look through my recipes later and post a few that might work for you. Hang in there!

@bossyfnp I do think it would take a couple of weeks for dairy to leave your system again. If you have been totally dairy free for awhile and just ate a little, you might see less of a reaction and it might clear up sooner. Whenever I messed up it seemed like DS would react the next day and it would only last for a few days.

@PipSqueak0313 I definitely think the soy allergy might just be milder than the others. What I've heard is no matter the results of the allergy testing, the true test is when you give him the food does he react. You could try smaller amounts (like soy oil/lecithin) and see how he does. GL!

amichelle723 · March 2014

@rocknrollfriend I'm not sure about any hidden dairy/soy, I've been making everything from scratch (even seasonings) and pretty much eat the same thing every day, but it is possible that something sneaked by me. I have been wondering about soybean oil and/or soy lecithin though. I did not cut them out initially but have been thinking that I should do a trial without them. I've cut out soybean oil starting this week and may proceed with soy lecithin based on her reaction (that would mean giving up my chocolate chips!).

@lovelainie My DH and pedi are the exact same! They both say that since DD is growing well and is overall a happy baby that I shouldn't worry and try to figure out what else besides dairy and soy she's reacting to. But I know that her diapers just aren't quite normal yet :-S

lovelainie · March 2014

@amichelle723‌ Enjoy Life makes allergen-free chocolate chips! They're a little pricey, but totally worth it. Actually, IIRC the entire brand of food is allergen free (at least for the top 8).

@rocknrollfriend‌ Any new food ideas would be awesome. I ate pretty clean before all this, and I'm not a picky eater by any stretch, but you can only live off roasted veggies, chicken, fish, rice, oatmeal, and hummus for so long.

I do need to revamp my MSPI board on pinterest, but I've been avoiding it because of everyone else's food pins...

Also, at what point is it okay to punch your H for eating pizza right in front of you? (Partially joking there...)

caloneis · March 2014

Hello! I'm 5 days into a dairy/soy free diet (but incl. soy oil and lecithin for the time being). My daughter is 2 months old and has been having mucusy but normal colored stool for the past several weeks. No visible blood. Her only other symptom is reflux, which I've read can be caused/worsened by dairy. Because her weight gain is good and the reflux isn't causing fussiness/discomfort, her doctor does not want to treat with medicine. I suppose there is a chance that the mucus is related to the reflux and excess drool (she chews her fists) independent of any MSPI but I wanted to eliminate dairy to see if her symptoms of reflux or stools improved. I am a vegetarian so without dairy I lose a major protein source but I'm not finding it that hard so far. Frankly it is easier than the low-carb GD diet I was on during my last trimester. By forcing me to abandon most processed foods I am eating much better. Only real downside that I see is not being able to eat out. Yeah, I do love cheese (reason I've always given for not going vegan) but it's not forever and my little girl's health is more important.

[Deleted User] · March 2014

@caloneis Welcome!

@lovelainie Here are a few meal recipes that should work for you. Most of these I've either made or used for inspiration.

https://www.forksoverknives.com/velvety-macaroni/
My pasta of choice is either Ancient Harvest quinoa pasta (but I think that's made with corn) or Tinkyada brown rice pasta.

https://thesepeastastefunny.blogspot.com/2012/04/lentil-spinach-stew.html

https://www.kalynskitchen.com/2011/01/recipe-for-lemony-yellow-split-pea-side.html

https://catchmyparty.com/blog/recipe-vegetarian-kale-and-white-bean-soup

https://vanillacloudsandlemondrops.blogspot.ca/2013/01/chicken-vegetable-barley-soup.html

https://becomingbetty.blogspot.com/2011/09/avocado-chicken-salad.html
(you can totally leave out the mayo)

https://www.realsimple.com/food-recipes/browse-all-recipes/quinoa-mushrooms-kale-sweet-potatoes-recipe-00000000019649/index.html
(leave off the parmesan)

If you want other types of recipes (breakfast, dessert, snacks) just let me know! HTH!

lovelainie · March 2014

@rocknrollfriend‌, you're awesome. I'll be trying these very soon.

Jackapatamus · March 2014

@lovelainie‌ was just reading through your posts- my dd has milk/soy and we can't do soybean oil/lecithin, and beef. I've also had to eliminate hummus (chickpea/legume). I saw that you mentioned still eating that? Maybe eliminating that would help with the mucousy poops??

Sorry we missed this week- we are 6 weeks into the diet- just a couple of questions? If the ingredients include vitamin e, is that hidden soy? And by any chance is dole whip milk/ soy free??

[Deleted User] · March 2014

@Jackapatamus Vit E is often derived from soy. I've found some items that specify that the Vit E is derived from sunflower oil. If it's not specified I avoid it or call the manufacturer and ask (though they sometimes just gave me the runaround). I looked around a little online about the dole whip and it looks like it's dairy-free, though there are some iffy ingredients listed so I'm not sure about soy.
https://precisionfoods.com/foodservice/product_detail.cfm?wpCatId=52568&skuId=795055

camedowncrushing · March 2014

https://www.fda.gov/food/resourcesforyou/consumers/ucm079311.htm

These are the regulations on food labels. If something is derived from soy the label has to say so.

The only way that you would get something not labeled clearly is if it was packaged before 2006. This goes for food coloring, and vit e...all of it needs to be spelled out clearly (legally complying with the FDA) for the top 8 allergens.

[Deleted User] · March 2014

camedowncrushing said:

https://www.fda.gov/food/resourcesforyou/consumers/ucm079311.htm

These are the regulations on food labels. If something is derived from soy the label has to say so.

The only way that you would get something not labeled clearly is if it was packaged before 2006. This goes for food coloring, and vit e...all of it needs to be spelled out clearly (legally complying with the FDA) for the top 8 allergens.

This is true. But, note that this applies to ingredients that contain protein derived from any of the Top 8 allergens. So if an ingredient has been determined not to contain the allergen protein, it doesn't have to be listed on the label (e.g., ingredients derived from soy oil). Anecdotally, some MSPI babies do react to these trace amounts of dairy or soy allowed in foods that do not have to be labeled.

Here's the actual text of the law for anyone who wants some light reading :

https://www.fda.gov/Food/GuidanceRegulation/GuidanceDocumentsRegulatoryInformation/Allergens/ucm106187.htm

(I hope I'm not coming off as unnecessarily worrying anyone, just sharing my experience.)

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