July 2013 Moms

Update on my LO

Have been fighting a "cold" since October. Have been in and out of the doctor with her. Have been on Albuteral, Qvar, Amoxicillin and have been waiting to get into the pulmonary specialist for 2 months. Her apt was yesterday. They took chest xrays and turns out that she has been aspirating which is causing the throwing and and they think she has "silent reflux". We go back on the 4th to do a video feed/swallow test to see where and why she is aspirating. Doctors told me to take her off all meds and to dry Zytec. Did that this am and at about 11am, got a call from daycare letting me know that she thew up an entire bottle. They all know the situation and they know she isnt actually "sick" so they dont send her home without a fever. It just sucks and I want all the answers right now. Thanks for letting me vent ladies. 

Re: Update on my LO

  • Sending feel good thoughts to LO. Hope you get answers soon!
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  • I'm sorry :( That's frustrating. Poor baby and poor mama :( Hope you get answers soon!
  • Sounds frustrating! I hope the upcoming appointment gives you all some answers.
  • >:D<
    Hope you get some answers soon!
    FKA mimi4347: diaper rash magician and unofficial expert on excrement
    photo fdcd1f14-730b-4ea3-9fd5-37c8a5575512_zps6b3ccb11.jpgphoto a71807cf-a0c7-4c71-807b-bc4577b61b83_zps4eece2a6.jpg
    This kid may not have a lot of bowel, but he has plenty of guts! 
    DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
    131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
    We are impatiently awaiting the day we can say goodbye to his girlfriend Ivy for good.
  • That must be so frustrating! I'm so sorry. :(
  • Definitely must be frustrating. Sorry lo isn't feeling good. Sending feeling better vibes!
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  • Hoping she feels better soon and you get some answers!
    Mom to three girls and pregnant with #4!
    L: 7/12/13
    C: 5/11/15
    E: 3/7/17
    Due 11/10/18
  • Hope she starts feeling better! Did they recommend thickening her feedings until they can doing further studies?
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  • fabkfabk member
    Oh no! I hope they figure it out soon!
  • Oh dear! Poor baby and poor Mama. :( I hope you have answers soon so your sweetie can begin to get better!
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  • I'm sorry, that sounds frustrating and scary. Hopefully the video feed will help identify the problem.
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  • I hope she feels better & that you find out what is going on.
  • I'm sorry they are waiting until the 4th to do the swallow study. Any recommendations from them until the study - thicken feeds, positioning, etc. Good luck, big hugs, andd Fx for a quick resolution and solution.

     

     

     

     

     

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  • They didnt suggest anything :( they said to just wait it out until the 4th. I have been adding a little cereal to her bottles but it's even when she eats good as well. Can't really thicken that up. This waiting game sucks. Thank you for all your kind words.
  • I'm so sorry you're going through this. Hang in there and keep us posted.
  • I'm so sorry. I hope you get some answers soon!
  • Poor baby!! I'm thinking of you both!!!



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  • Sorry. Hope you get some answers soon and LO gets some relief.

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    D 2.20.2011 & Z 7.16.2013

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