Special Needs

Introduction and a Few Questions

crestedladycrestedlady member
edited March 2014 in Special Needs
Hi, I've been lurking on this board for a bit, and thought that I would post a brief introduction about myself/us since we are just starting the early intervention process with our son.

My husband and I are first time parents, and our son, Cole, will be 17 months tomorrow. Cole is a fairly active, energetic, low key kind of kid - very much goes with the flow - and so far, he has hit his developmental milestones on target with the exception of those regarding communication. Currently, he has one "word" that he uses on a regular basis (mama, though it often becomes mama mama....), and another he uses if prompted (hi). He has recently started mimicking "uh-oh" as well, but is otherwise nonverbal aside from babbling. I am also not sure, but am pretty confident, that his ability to follow directions is delayed as well. At his 15 month appointment, his pediatrician suggested contacting the Alabama Early Intervention program for our area if he didn't show any real progress in 4-6 weeks, so that's what we did (very pleased that our pediatrician took a more proactive approach).

Earlier this week, we completed our evaluation for the program and learned that Cole would be eligible for services related to communication. I am so glad that they are able to accept him given that we were told it could be dicey at his age to qualify and even more so since we are expecting a second child in June (it will be good to have additional tools and undivided time to focus on helping Cole catch up before his little world is rocked by a new sibling).

Anyway, we find out how he scored in each of the five developmental areas next week when we get together with his service coordinator to develop his IFSP. As regards that, I have a couple of questions for those who have gone/are going through this process. Our service coordinator told us to think of goals that we would like to set for Cole - are these meant to be goals we would like him to meet in general, within a certain time frame, or both? Does anyone know of any boiler-plate IFSP plans that might be available as examples of what they should cover (I know the plans themselves are confidential, but if there is something available out there, I know I will go into the next meeting better prepared)? Also, while they did not mention him qualifying in other areas, if his scores show any delay in those areas, how should or should those be addressed in the IFSP? Finally, if there are any articles/books that anyone would care to suggest that may be beneficial in setting up reasonable goals for his age level and/or assisting him during this process, I would appreciate it.

edited: spelling
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Re: Introduction and a Few Questions

  • Welcome!!! We've had and IFSP since DS1 was 3 weeks old (now 3.5) and now we're on an IEP with DS1 and IFSP wiht DS2.  They have a genetic disorder that causes global delays.

    An IFSP lasts for 6 months.  you are going to come up with goals in each of the areas he qualifies that you would like him to accomplish within the next 6 months.  Every 6 months you will have a meeting to update goals and add or remove services if necessary.  Some states will require a new evaluation to be done yearly while others will just take the recommendations of the therapists and their evaluations.  

    If his delays aren't enough to warrant services in other areas all you can do is "wait and see".  Thankfully, I've found once you have an IFSP getting additional services is a bit easier than starting fresh.  When we added speech to DS2's IFSP they only had to do a speech evaluation instead of an entire assessment because he was already in early intervention.

    Some states send out a monthly provider to do a skills assessment to make note of warning signs in other areas.  In our original state in the midwest our service provider did an ASQ (assessmnet skills questionairre) every month to see how he was progressing.  Once she noticed a bigger delay forming in a specific area she would alert me and his team and we would schedule an evalutation.  We added in speech at 15 months to DS1's IFSP.  

    I've found the IFSP is very family friendly.  As family is the second term of IFSP they're very big on parent education.  If there is something you don't understand, ask.  If you have a question, ask.  If you need more time, ask.  If you don't agree, ask.  

    Every state and sometimes counties within states provide very different servies.

    For example we moved from the midwest to the East coast. DS1's IFSP in the midwest provided PT 1x/week, OT 1x/month and ST 1x/month.  He also qualifed for a 2hour/day 3x/week preschool classroom at 2 years old.  When we moved he was given PT 2x/week, OT2x/week, ST2x/week and Developmental Intervention 2x/week.  Very different states very different services.  My sons are more than 50% delayed so he clearly needs a lot of services.
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  • Assembly_ReqdAssembly_Reqd member
    edited March 2014
    Welcome!

    When I was asked about our family's goals it was more of a generic question. Mine started out as "I want him to be happy", then "I want him to be able to communicate his wants and needs", and now it is "I don't want people to underestimate him"

    I wouldn't sweat this. Your therapist should help you figure out what goals are needed. They are mainly based on what step of development is next. i.e. Will point to objects, will name objects, will use two words, etc, etc. There are even smaller steps within those big ones that the therapist can help out with once she/he has had a chance to meet him. Good luck!
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  • Welcome to the board! Ditto pp's. For me, coming up with goals for the IFSP was way easier than working on an IEP. I mentioned things I knew his peers were doing that he couldn't do yet (which was probably easier to think of since he had a typically developing twin brother). They were great about suggesting things and giving me ideas too, so I didn't have to be super prepared going in. We were also able to add goals if there were other things I thought of.
    fraternal twin boys born january 2009
  • Thanks so much for the welcome and for taking the time to answer my questions about the IFSP process; I really appreciate the additional insight into this process they provided. Our meeting is this Wednesday...I'm very much looking forward to it.
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