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Confused and need advice.

Princess_LilyPrincess_Lily member
in Special Needs
Should I bring the follpwing with the geneticist and eval doctor?

DS has a genetic condition he was born with (3MCC) where one of the presentations is hypotonia (which is what DS has). In addition while he has been treated since birth, 3mcc may cause delayed development too.

I didnt know about this though, is it wrong for me to bring this up with the eval doctor? I feel his geneticist may need to know we are in evaluationd too.

I'm not sure if his genetic condition is overlapping now. Any thoughts? I'm so confused.
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Re: Confused and need advice.

  • typesettypeset member
    You didn't include that information when filling out the packets of doom?
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  • Assembly_ReqdAssembly_Reqd member
    Share whatever you know. Why would you not share?
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  • Princess_LilyPrincess_Lily member
    Doc didn't give me the form until the wax situation...we have yet to fill it out since we're waiting 2mo for retesting.
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  • Assembly_ReqdAssembly_Reqd member
    I always overshare with people. You never know when something you consider is not important to that professional is actually the one clue they need.
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  • macchiattomacchiatto member
    edited March 2014
    Assembly_Reqd said:
    I always overshare with people. You never know when something you consider is not important to that professional is actually the one clue they need.
    That's my approach, too. (Though from reading my posts here you may not be surprised that I share plenty of details when it comes to DS's medical and developmental history. ;) )
    fraternal twin boys born january 2009
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