High-Risk Pregnancy

Missing Kidney, No amniotic fluid and more :(

This post is more or less for my sister in law. She is 27 weeks pregnant with her first baby and there are many complications. Long story short, the baby "supposedly" only has one kidney and it's riddled with tumors, it has one leg that isn't fully formed and has a tumor on it's behind that may be covering it's genitals. The drs didn't expect the baby to make it to 20 weeks let alone this far. The amniotic fluid is almost completely gone yet the baby's heart, brain and lung function are normal. It's also growing at the rate it should be. They are thinking about taking the baby early at 34 to 36 weeks but aren't promising it will survive. They don't know if it has another kidney, they think they can see it but aren't 100% sure, Has anyone heard of ANYTHING like this happening to anyone before. My heart breaks every day for them, I just wish they had more answers. Thanks for listening. 
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Re: Missing Kidney, No amniotic fluid and more :(

  • angelsnightangelsnight member
    edited February 2014

    I have no advice, just wanted to say I am so sorry to hear this about your niece.  I can't imagine what you and your family are going through.  Many prayers that the baby arrives safely and his/her condition isn't as bad as they think.

    Edit: Sorry, I don't know where I got niece from since you didn't say or they don't know the sex. 

    Lilypie - (fm2j)

    Lilypie - (YesX)

     My Pregnancy/Parenting BLOG TTC since 5/2011, BFP #1 12/3/11, M/C 12/7/11 @ 4wks 2d. Began seeing RE Sep 2012. October 2012 Metformin 1500 mg= ovulation on CD34 BFP#2 11/14/12 9DPO, EDD 7/26/13, DX Gestational Diabetes @14 wks, our angel born sleeping 3/24/13 @ 22wks 2d. BFP #3 7/4/13 8DPO EDD 3/22/14, DX Gestational Diabetes @14 wks. started insulin @16 wks.  Our rainbow, born 3/19/14 @ 39wks 6d., we're so in love!

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  • I'm sorry that I don't have any advice...just want to say your neice is in my thoughts and prayers. xoxo 
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  • That is heart breaking :( wishing your niece the best.
  • I have no advice to give here, but I hope everything turns out well for your Sister in law.  
    Lilypie - Personal picture Lilypie - Personal picture Lilypie - Personal picture 
     DS1 - 7/2011, DD 12/2012, DS2 - 4/2014, MMC - 12/2015
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  • It sounds a little bit like Potter's sequence. Hoping the doctors can give them some likely diagnoses and then they can find additional support. I'm very sorry your family is facing this and wish you all strength for the journey ahead.
    BFP#1 9/14/10 (EDD 5/21/11); no fetal pole 6w6d, 7w4d, d&c 10/8
    BFP#2 3/16/11, beta 138; 4/12 Baby/HB DS born 9/10/11 at 29w4d due to partial abruption and PTL
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    BFP#3 8/19/13 Another boy! 17P, modified bedrest and Nifedipine helped us have a termie! DS2 born 4/19/14 at 38w5d.
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  • I'm so sorry for her and the rest of your family.


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  • Best of luck to your sister and her LO :(





    I'm not new. I just hate The Bump. 

  • I don't have any advice but I just want to applaud your Sil and brother in choosing life for this child! Even if something happens later on! What strong parents they must be! I will be keeping your family in my prayers! <3
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  • Oh my gosh that is just terrible :'(
  • I don't have much to add, but I can relate to the taking it day-by-day bit (I guess lots of us here can). My little one does not have those challenges, but she does have Turner Syndrome and a ton of fluid build-up. The odds aren't great (1-5%) that she'll make it.

    I think that the waiting and just not knowing (and doctors and specialists not even knowing) is the most difficult part. All that to say that the best you can do is take it day by day. Don't let future possibilities steal today's joy. I say that coming from a place of understanding, as much as I can. Be supportive, but not unrealistic. It's tough to deal with "everything will be just fine" when that might not be the case. And know that there are those (myself included) who will be thinking of and praying for you, your sister-in-law, and your little niece throughout this struggle.
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  • Thank you all for your kind words and prayers. She is a very strong woman and will get thru this one way or the other, my heart just breaks for her. She just told us that she lost her mucus plug and she is only 30 weeks. I am just so scared. 
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