Hydrosalpinx *bfp/mc mentioned

almostamissus · March 2014

@freakyfast @Deadra77
(If anyone else has anything to contribute it would be much appreciated!!)

You guys are my new Besties!!! No joke. Hope you don't mind if I pick your brain a little.

I intro'ed here before, but I've been pretty quiet... Just lurking. So here's a quick refresher. Ttc since Dec 2012. Bfp in Nov 2013 after taking Soy Isoflavones (hmm... Maybe my lining is just fair??) TV u/s to confirm early mc showed hydro on the left side. Bfp in Dec again. Miscarried at 7.5 weeks- discovered at 9.5 weeks.

How was your hydro dx? When did you have surgery to have it removed? Have you tried the old fashioned way after surgery or moved straight to ivf? Was there any treatments you couldn't do because of hydro? Clomid, iui or anything? Did you have an iud (or know the suspected cause of your hydro)?

I know that most doctors recommend having it removed before ivf because it lowers success rates. Both the gynea and the Re I'm seeing, tell me that the hydro has nothing to do with the 2mc. They both said there's evidence that hydros can cause problems with implantation but after that it should be fine. If that's the case why am I having surgery?? (Side note- I've actually asked for the surgery bc I think it's related). Studies show the "take home baby" rate is lower in women with hydro. But all the studies I've read are so small! And most are in relation to ivf. I feel like the one-off situation. My Re promises me this is because most women with only one hydro probably don't even know they have it and we never hear about it- which I thought was a pretty bold statement!! But anywho, it does seem rare to find anyone who has a hydro, let alone one-sided, so maybe she's right.

She also mentioned, just in passing on Monday, the possibility of ivf after surgery. Um what? I thought surgery would "restore" my fertility. I'm no where near ready to accept that ivf is my next step (and my husband is definitely not!!! $$$) given I've just had two natural cycles with a bfp. I'm confused!

Sorry, this turned into a bunch of ramblings... I'm just at the very beginning of figuring this out and my thoughts are not very well organized. Thanks for any help or insight you can offer! And God bless if you read all this.

Momarazzi007 · March 2014

I don't know anything about this, but just want to say I am hoping they figure it all out and you can continue on naturally- IVF is expensive and I hope she was confused when she said that- very unnerving when things get confused like this! If you move forward w surgery I hope it all hoes well and speedy recovery!!!

pettycrocker · March 2014

That is interesting, I've read that the fluid in the hydro can be toxic to pregnancy. Freaky doesn't usually come around much on the weekends, but she had both her tubes out before IVF to prevent ectopic in the future (you have a higher rate of reoccurring ectopics if you've already had one)

So- if you take out the bad tube, you should be fine to progress naturally, with meds, IUI, IVF, etc. As long as you still have one good tube that's really all you need. I'm not sure why she mentioned IVF, like taking out one tube puts the kibosh on you getting KU on your own, that is absolutely not the case.

Also page @snowflakebride06 she has I believe 1 functioning tube, and she's done several Clomid IUIs. The problem was that she kept Oing on the side without the tube, but there's always that possibility that your good tube can pick up the egg on the opposite side, so this happening won't cancel an IUI, but obviously lessens the success rates a bit.

You don't really need any of these hookers, I know all all their business anyway. :ar!

almostamissus · March 2014

Mrs Castillo said:
snip.

You don't really need any of these hookers, I know all all their business anyway. :ar!

I choked on my coffee when I read that!!

Yes, I really don't know if hydro caused my mcs or not because of the conflicting info. Who knows?? Because the hydro was found by accident during an unrelated u/s, I'm just starting all the testing. I'll know more after surgery- they're doing a hysteroscopy (?) at the same time to check out my uterus. I'm praying it's the only issue!
Eta: clarity

SnowflakeBride06 · March 2014

@mrscastillo Yea she had it right pretty much.

I had an ovarian torsion in 2009 and at that time was dx with hydro in that tube and b/c of the torsion my tube was removed. 3 months later I got KU with DD.

Fast forward to now,its been 2 years, 3 rounds of clomid/IUI and I am only o'ing the the opposite side of my remaining tube. There is some thought that my remaining tube is damaged from an ectopic m/c that I had last year so even if I do o it doesn't make it down the way it should.

Hope your journey ends quickly with a take home baby!

But honestly, with just 1 tube, I got KU in 3 months the first time. So one tubers can still make it happen if the other tube is healthy

freakyfast · March 2014

almostamissus - so initially I had an HSG done and they thought my tubes were both opened. 4 months later, I did get pregnant, but it ended in ectopic on the RIGHT side. I had surgery to remove the ectopic, and was referred to an RE. The RE reviewed my HSG and had another one done, because he wasn't sure if the tube was open or it was a hydro. It did show that it was a hydro in my LEFT, and that we would have to move forward with IVF. I did IVF and had my retrieval in October 13 and I had surgery to have my hydro removed in November 13. My previous ob had damaged my Right tube when he was in there removing the ectopic, which he didn't tell us, but that is another story. So my RE removed both tubes.

MY RE did say that it would be possible to get pregnant with the hydro through IVF BUT he wouldn't to a transfer with the hydro because the liquid that builds in there IS poisonous and most of the time it prevents the baby from implanting, naturally and/or through intervention. My RE gave us a 20% chance with the hydro and a 70% chance with it removed. ALSO he said that if you have previous ectopics your chances of having another ectopic go up drastically, even with IVF. So with mine being removed there is no way it can float into the tubes.

Surgery will NOT restore you fertility, because when they remove the hydro they remove the tube. If you still have one, that is healthy and open, you still have a chance naturally.

Oh and the cause of my hydro and messed up tubes are from endometrosis.

What other questions do you have or did I miss? (Side note I may not respond until tomorrow.)

freakyfast · March 2014

Mrs Castillo said:

You don't really need any of these hookers, I know all all their business anyway. :ar!

This bitch knows more about my reproductive system than me. :x

almostamissus · March 2014

Sorry! I didn't mean to post and run the other other day; things just got so crazy!!
@Mrs Castillo
Thanks for paging some of the ladies dealing with the same issue. I can only hope that one day you know my reproductive system that well

I have read as well that fecundity rates tend to be lower with hydro as well. Several times. I'm not sure why my re doesn't know and/or believe this.

@snowflakebride06
Thanks for sharing!! I'm so glad to know you were able to have a baby soon after... That jives with what I've researched. I'm sorry you're struggling now. Do they think your ectopic was related to the hydro in some way? I remember reading that the risk of ectopic is like 20% with hydro. Even if you have one good tube. That's some scary stuff!

@freakfast
That's what I've read- it's pretty unheard of to actually GET pregnant with a hydro (esp if it's large enough to be seen on an u/s which is how mine was diagnosed. That's why I feel like such a special snowflake b-(
I'm actually a bizarre case and my research-the-sh*t-out -of-every-sniffle, type-A personality is seriously aggravated by the fact I can find, like 4 studies of 17 people who have been in this situation. Wtf!!
I hope you find success soon!!

Oh yeah. And what can I expect for the surgery? Some one said like a csection, but I've never had ANY surgery. Like ever.

freakyfast · March 2014

almostamissus said:

And what can I expect for the surgery? Some one said like a csection, but I've never had ANY surgery. Like ever.

What?! A C-section.. no way! It is a simple procedure where they cut you in a couple places, like gall bladder surgery, but lower of course or endometriosis surgery, or ectopic surgery. If you have had any of those. They just do some incisions below your pants line and in your belly button, fill you up with gas and go that route. I did have a rough time after mine, but after a couple days I was much better. You will want to take some time off, if you work. I took a week off.

Suzanne68 · March 2014

I had the tube removed with half of the ovary (left side) major lap 4 hrs. Did an iui, miscarried did a 2nd iui and have a healthy 21 month old. They insisted I needed to do IVF. I said let me try a couple rounds of iui due to $ and it worked. Best of luck

SnowflakeBride06 · March 2014

almostamissus I had the torsion and that side at the hydro and that was all removed. So the ectopic was last year in the remain tube. So I do not think they were related.

PS the tube removal is minimally invasive not like a c/s, just a belly button incision and one other small abdominal one

almostamissus · March 2014

I knew the surgery was laparoscopic... I think the lady who mentioned it was like a csection meant the recovery.
I feel ok about the whole process now, but I have never had surgery and I (may) have a habit of totally spazzing out the closer it gets. So here's hoping I can remain cool!

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