High-Risk Pregnancy

Introduction - SCT

Hello all,

My name is Danielle, am 29 years old, and pregnant with my first child, a baby boy. My baby was diagnosed this week with Sacroccygeal Teratoma (SCT).The tumor is a SCT type 2, mostly cystic, about the size of a baseball. The doctors are confident we will be able to remove this after birth. I will have a planned csection no later then 37 weeks, the baby will have surgery about two days after birth (depending on when he is born). We will deliver at CHOP and will be continuing my care there with a MFM. Lots of monitoring with weekly ultrasounds going forward. These tumors are known for growing out of control, and that is our main concern now. 

Right now I am just trying to wrap my mind around everything that is happening. I haven't been to work for a week, but will be back in tomorrow. My family has been super supportive, but I haven't had to deal with the real world yet, and I am not looking forward to it,

Re: Introduction - SCT

  • LyndseyTSLyndseyTS member
    edited March 2014
    I have zero experience with your situation specifically, but I can relate to not wanting to face the real world. I hope that it all works out well for you and your LO! Welcome to the board. I'm a bit of a newbie myself.
    It's really tough to wrap your head around tough news. For me, the waiting and not knowing has been the hardest. I'll be thinking of you and your LO and hoping for the best outcome for both of you!

    Edited to say good luck tomorrow! You can do it. :)
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  • Welcome to the board! I'm with PP in that I don't have any experience with what you are going through, but I do know how difficult it can be to try to keep up with everyday life and process the emotions. Good luck to you and baby! Sounds like you have quite the support system!
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  • Such hard news, but CHOP is a great place and it sounds like you will be watched very closely. Sending good vibes for strength!
    BFP#1 9/14/10 (EDD 5/21/11); no fetal pole 6w6d, 7w4d, d&c 10/8
    BFP#2 3/16/11, beta 138; 4/12 Baby/HB DS born 9/10/11 at 29w4d due to partial abruption and PTL
    Lilypie Third Birthday tickers
    BFP#3 8/19/13 Another boy! 17P, modified bedrest and Nifedipine helped us have a termie! DS2 born 4/19/14 at 38w5d.
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  • No experience with this in particular, but will be praying for you. Sounds like you are in good hands.
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