S/O So what did help?

PurpleIris30 · February 2014

Per the post below, most people just don't get how traumatic the NICU experience can be and it can be hard to get the support one needs from others.

So if you struggled with the trauma, what helped? Time? Therapy? Another NICU parent? Something else?

JoJoGee · February 2014

Time. And on going crisis. I know that might sound weird, but my daughter moved straight from "preemie" to "disabled". So, we've had to keep pressing on - no time to look back. And, we've just experienced greater joy and greater heartache since coming home from the NICU.

Now, what has helped me struggle with the trauma and stress of having a child with multiple disabilities? I've made friends with a few other SN mommies. All our children are about the same age, and we've become our own little support group.

Our children are in group therapy together twice a week and while they are playing, us mommies have breakfast, work out, shop and talk. Outside therapy, we have play dates and help each other with special projects. It's been a life saver.

DrRx · February 2014

For me, talking about her journey and sharing our story helped me immensely. This board, as well as the support of my BMB and my family being her cheerleaders even after we left the NICU, helped a lot. DH and I also would have many conversations about how we were doing.

thishappyhouse · February 2014

Sharing our story has helped me immensely. Turning my grief and stress into action has kept me going. I do this through writing my blog, working with the march of dimes, and sitting on the NICU family advisory council at our hospital.

Other than that I have found immense support in a group of preemie mamas in my area as well as in a moms group made up of full term kids that were born around my daughters due date. Having both people that really "get it" and those that I can educate about prematurity has been a nice balance for me.

I will also likely start seeing a therapist at some point (especially if I get pregnant again) to work through some things.

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S/O So what did help?

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