Brag Day Wednesday!!!!

Assembly_Reqd · February 2014

post.

malcivar · February 2014

I've probably posted this before but he does it once and then doesn't do it again for months. However, he's been doing it consistently for 2 weeks now! Up until a couple of weeks ago, Chris didn't address people by their name/title . Whenever he made an "I want" request, it just involved him quietly asking himself the "do you want" question and then walking up to someone and answering "I want ....". For the last couple of weeks, he's dropped the quiet question to himself and will now say "Mommy! <pause> I want ___" or "Daddy! <pause> I want ___" The pause is waiting for us to look at him.

This is HUGE for him. And even though it's not about me, I finally get to experience that a little voice saying "mommy! mommy!" all the time. *sniffle*

MirandaHobbes · February 2014

That's awesome @malcivar. You're reminding me that I need to keep at DS about this. At almost 6 he remembers pretty regularly, but if he just randomly calls out "Can I have some water" I have to remember to ignore him until he addresses me by name. LOL, sometimes he'll get frustrated and yell at me by my first name "MIRANDA! Some water here!!"

malcivar · February 2014

MirandaHobbes said:

"MIRANDA! Some water here!!"

Ha! I know I shouldn't laugh but that is pretty funny.

We're working on him now asking for things in a "Can I have ___" type question but yeah, this has us tickled pink.

bumpuser511563 · February 2014

DS has been singing this song "B is a consonant, a letter from the alphabet." Well it seems he is shouting it though these last few days.

I went to visit DS's preschool yesterday to drop off some valentines, I spoke to his developmentally delayed classroom teacher and the class went over the letter "B" last week. She enjoys him, so that is a good sign.

typeset · February 2014

I got a hug and kiss this morning when I dropped him off. Then I overheard him ask a teacher where I was going as I was leaving. The farewell was prompted, but I'll take it. Usually I get no acknowledgment.

bumpuser511563 · February 2014

typeset said:

I got a hug and kiss this morning when I dropped him off. Then I overheard him ask a teacher where I was going as I was leaving. The farewell was prompted, but I'll take it. Usually I get no acknowledgment.

That is so sweet!

DS has been saying no kiss lately. Sometimes I get one, sometimes I don't. I will be lucky some days if he says "I love you, mommy!" or he shakes his head no when I say it.

lite-bright · February 2014

I have a bunch.

I sat down with DD1's teacher and school psych for an hour last night; the school does optional conferences this time of year.

They love her. They think she's awesome and doing great. Her academic testing is way, way more than satisfactory. Yeah, she's still got social issues (duh), but overall she is not far out of the range of typical.

The school psych told me that they re-evaluate educational need at age 6/end of kindergarten because the classifications change, so they will be testing DD1 over the next few months. And *gulp* there's a possibility that she's doing SO well that she may no longer qualify for an IEP going into first grade, because apparently they don't qualify on mental health services alone; it has to be something like a quantifiable delay/educational impact on speech/language or motor.

DH says this is good; I think it's kind of scary. I mean, it's awesome that she's doing so well, and the school psych said she would be able to pull DD1 for social skills group without an IEP (technically it's not in her IEP now and she's been doing it all year anyway b/c she knows DD1 has an ASD dx). But the possibility of losing that official extra communication and support for her makes me twitchy. It may very well be in line with her needs right now, but I think that will be temporary as grades progress; I don't realistically think we're going to get through elementary without an IEP. I guess we'll see what the testing shows and go from there; and luckily I am working with a school with a lot of ASD resources and knowledge who have so far been proactive and positive about providing services, rather than me having to fight for them.

So I've been doing this thing where I make up bedtime stories? A few nights ago, DD1 made up her own story for me. It was a mash-up of dragons and Frozen that she partially acted out while she told it, and yeah, so it wasn't a whole-cloth imaginative story -- but she did it, and that was one of the things I'd really been hoping to come out of me changing up how we do bedtime to encourage creativity.

We had DD1's well-check last Thursday. She's healthy and was her usual happy, cooperative self. At one point, she was curled up on the exam table and her doc had her elbow resting near DD1's head; Sophie turned and was sniffing the doc's sweater sleeve and giggled when called on it, then said that she liked the way the clothes smelled. Pedi and I discussed this in the context of not entirely recognizing appropriate behavior/space -- but I had to laugh because when Sophie & I were walking out, the doc was sniffing her own sweater sleeve and said, "You know, this really does smell good. I forget how good my own clothes smell sometimes!" LOL. Leave it to my child to notice that.

zoeyandsummersmom · February 2014

I have a bunch too. DD is walking so much better now. When our sitter came to get her from preschool today, she showed off by getting out of her chair walking over to her then walking back to her chair, pulling it out and sitting down and smirking.

She's eating like 5 oz of puree a day (shhh don't tell our insurance we finally got formula approved).

Finally, she is saying "yeah" when you ask her a question.

lite-bright · February 2014

-auntie- said:

@lite-bright

I know a lot of kids on spectrum who make/made it through school without an IEP.

Sometimes they were kids who got a lot of support privately or they docile kids attending private, magnet or charter schools that would have turfed them with an IEP. One of them just won a school-wide writing contest at his STEM magnet school.

That said, it's also pretty easy to leverage social delay into IEP goals around self advocation and participation in group work. Can Sophie participate in a group project without taking over or fading into the background- can she advocate for her ideas without being a bully and gracefully accept when others don't agree with them? The collaborative workplace starts around 2nd grade IME.

You can watch, too, for comprehension/expressive language glitches as writing becomes a bigger part of the curriculum. DS's IEP in middle school added SLT for expressive language.

Thanks, auntie. Sometimes I think DH is right that I'm pessimistic and maybe I shouldn't be as worried as I usually am! I'm so used to ASD being this huge thing looming over us that it seems crazy that she wouldn't need an IEP -- OTOH, I'm constantly being told how high-functioning she is and how well she's doing, maybe I should just take that more to heart!

The school psych mentioned third grade as a big bump in expectations as far as reading to learn vs. learning to read. Comprehension -- or rather, being able to communicate comprehension -- is definitely something where she is comparatively weak. I think something similar will happen with writing -- it's a strength for her right now because her handwriting is pretty good and she's fast at it, but she's basically regurgitating facts from books rather than interpreting or adding her own thoughts.

So we'll see. I'm glad the psych gave us a heads-up, and I truly am glad and proud that Sophie's doing so well. I just also can't seem to help being a nervous nelly about changing things up.

JoJoGee · February 2014

Today, a boy in Lily's preschool class gave her a Valentine and insisted on walking her out of class.

Also, I saw 2 girls give her a hug when she entered into their play space.

She's also talking a lot more and responding to questions appropriately. Today, she was wheeling away from me, and I asked her where she was going. She responded with "away". Lol. Fair enough.

funchicken · February 2014

My tactile-avoiding DD1 has become a good hugger! She has always been affectionate with me, DH, and DD2, but if a peer or other relative tried to hug her she would hold her arms straight at her sides and back away like a frightened penguin. In the past six months she's started initiating hugs with her grandparents and close friends--it's so great to see.

Rdmaggie · February 2014

Friday was day 3 or preschool for DD, she goes Tues, Thurs, Fri. and everything went off again without a hitch! The therapists come out and meet parents at the car and walk the children in, which I honestly love because DD likes leaving us (doesn't that sound terrible?) much more than being "left" somewhere. She just gave me a little kiss and walked away like it was NBD. I picked her up this afternoon and I was asking her on the way home what she did today at school, she ran through a few of her staple items (see ms. ally, play with elmo) then she got this huge smile on her face and said "Play with Austin! in the gym! Make a tent!", I texted her BCBA this evening and asked if this really happend and sure enough, it did!! Austin is apparently the name of the boy that the BCBA had first told me DD "adored". They played together (i'm assuming with some help) with the parachute, making a tent and surprising each other.--------Then rewinding a bit to Thursday, DH took the day off due to having to take our car in for maintenance (turns out you DO need headlights) and so we both went to drop DD off. Her therapist came to the car and looked as if she had gone from mid 20s to 15 because she was wearing some wild bubblegum pink lipstick. We never said anything about it until after we had handed DD off, but later that evening when we got home DH asked DD, what color were Ms. Morgans lips today? Her brow furrowed a little and there was a short pause then she says "Pink" but I swear it was almost as if it had just registered to her how ridiculous it looked LOL.

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