*UPDATE* Thoughts and prayers needed... NBR — The Bump
July 2014 Moms

*UPDATE* Thoughts and prayers needed... NBR

mamatompmamatomp
500 Love Its Fourth Anniversary 100 Comments Photogenic
member
edited February 2014 in July 2014 Moms
I don't post a ton but you ladies really seem to reach out when others need support, and I know how strong the power of prayer can be sooo... Sorry in advance for the novel- not really sure how to shorten it!

We have what we have always known to be a perfectly healthy 21 month old boy. Last Friday morning his daycare called me very alarmed that his hands were shaking uncontrollably and his fingers were purple, but not cold... Then it ended in a matter of seconds. Of course I called our pediatrician and took him in right away. He was puzzled and after examining him determined that he was very hyper reflexive, which indicates that some type of neurological activity did occur. He did blood work which came back normal (thus ruling out anything metabolic), and ordered an EEG for Monday morning.

We went in Monday for the EEG and I was less than pleased to say the least. DH and I had to hold him down very forcefully to hold him still while she attached 26 electrodes to his head. It's probably the saddest thing I've ever done to one of my kids. He was throwing a FIT and crying "home..home", I was crying, it was horrible. She started the test but he wasn't being still enough to get a reading... Then 7 minutes into it he ripped everything off. She said his hair was too sweaty to hook him back up and sent us on our way, telling us to call and reschedule. I was furious that I just tortured my baby and paid hundreds of dollars and got no answers bc Nurse Ratchet didn't want hook him back up.

Fast forward to Wednesday... DS was at home with DH and his eyes start rolling back in his head, and then he would just go back to normal like nothing happened. This happened multiple times over the course of the night. Our pediatrician told us to come in first thing this morning. We happened to catch it on video so we could show him and he's diagnosed it as focal seizures. He's consulting with a pediatric neurologist, and we have an MRI and EEG scheduled for tomorrow morning... His eyes have been rolling back throughout the day today and the episodes seem to be getting longer. I'm so nervous for my baby and I just want some answers... Please keep him in your prayers tomorrow as he undergoes testing tomorrow.

**Not a complete update as we still don't have answers, but the tests went well this morning. They put him completely under for the MRI and were able to do the EEG while he was coming out of sedation, which had him awake enough to get a good reading but not awake enough for him to fight it. Within 20-30 minutes of the anesthesia wearing off he was in my arms, and his eyes started rolling back, but he seemed okay for the rest of the day. The results of the MRI were normal, which is fantastic... Now we are hoping the EEG is really able to tell us what we need to know. Thank you all sooo much for the thoughts, prayers, kind words and true concern. It means a lot!
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Re: *UPDATE* Thoughts and prayers needed... NBR

  • Poor baby. I'm so sorry you're going through this. Sending my thoughts.


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  • Praying for your precious boy, for you, for your DH and for the doctors and nurses!

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  • Thoughts and prayers your way! Keep us updated as you are able
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    BFP 10/27/13---Heartbeat 11/20/13---Its a BOY, Ethan Ray 2/18/14---Possible heart defect 2/18/14---Confirmed Aortic valve abnormality 3/26/14---Scheduled delivery June30th
    katnipeverclean
  • I'm on it. Prayers are rolling in for your beautiful son. What a scary feeling this must be and it breaks my heart that you had to see him this way. Please keep us posted.

  • Prayers for your sweet boy and for your family.
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  • Keeping you and your family in my prayers.

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  • Poor guy! I hope this is something they can easily treat for all of your sakes....lots of prayers for you.
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    Started taking Femaprin & Milk Thistle Aug '13, then added Metformin Sept '13......Surprise BFP 10/26/13!!!! The first time in 10 years that we got a BFP without infertility treatments!



  • Oh the reg experience sounds horrible, I to believe in the power of prayer and believe its more powerful coming from two or more
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  • This sounds so incredibly scary and I am so sorry you and your baby are going through this. My thoughts are with you.
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  • Aww poor baby :-( Hope you find answers soon. I think as moms the fear of the unknown and naturally thinking the worst can be really tough. Try hard to think positive, he needs u to be strong for him!
  • Poor little guy. Prayers for you and your family an your little guy.
  • Thoughts going out to you and your son. Keeping my fingers crossed that you will get some answers.
  • I'm so sorry you're going through this.  I hope they get things figured out soon.
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  • I hope your sweet baby boy gets well soon. Prayers that you find answers and comfort.
  • Going to the ER for broken bones has been traumatic enough for us. I can't imagine how scared you guys are...so so sorry. Keep us posted.
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  • I can't imagine what you and your family are going through. Praying for you guys and especially DS!
  • I'll be thinking of you and your family. Seizures are scary, but treatable. In some types kids even grow out of them. Definitely check out the Epilepsy Foundation if you want more info; their sites should be helpful in your situation!

    I study medications in school and the one thing I'd ask my doctor about if this was my child is what type of medication to administer at home (in addition to maintenance meds to keep him seizure free) in case of a seizure. I don't know that it's the right choice in this situation, but if I needed something for a child this age and wanted to stop a seizure right away, I'd choose rectal diazepam for home use, no question. It's weird and awkward, but it's a really the best drug for home use in the right types of seizures.
  • I sincerely hope things work out for the best. You and your family will be in my thoughts.
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  • Sorry that you are going through this I will be keeping all of you in my prayers. I hope you get some real answers soon.
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  • Oh my goodness. Ill br praying for your sweet little boy, and mama too
  • I'm so sorry to hear your sweet little boy has been going through this. I can't imagine how scary this is as a parent. I will be praying for you to find some answers and for your little guy to get back to his normal self ASAP! Thinking of you! <3

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  • That sounds incredibly scary. I am so sorry to hear this. I hope you guys get sone answers soon. Your family is in my thoughts and prayers
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  • T&Ps to you and your family! I hope your baby boy is ok!
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  • Your family is definitely in my prayers, it absolutely tears your heart out to see your kids have to go through things like this. Praying for the best news!
    Married 02.06.10
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  • My thoughts and prayers are with your family! I can't imagine watching a child go through this. I'm sorry you had to experience that and the possible long road ahead. Stay strong and reach out when you need support!
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  • I'm praying for your little boy!
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  • Thoughts and prayers are with you! Poor little dude!

  • How terrifying for you! Definitely sending my thoughts to you and your family.

      
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  • oh gosh how scary, sending lots of throughts & prayers that you get answers soon
  • I'm sorry you're going through that. I'm sorry the test went so bad. Is there a child life specialist at the hosp you can talk to? They would be able to give strategies for getting through it. Also, I'd argue paying for a test the was incomplete like that. possibly complain to the hosp. about what occurred. I hope you get things worked out quickly!
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  • cookiemomma14cookiemomma14
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    edited February 2014
    Poor baby. Prayers for you, your family, and the little guy.

  • Aww the poor baby. How stressful. I hope everything is just fine! Prayers for your family.
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  • I will keep you and your little boy in my prayers.
  • Oh my gosh I am so sorry! I hope you get some answers very soon.
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  • Thoughts & prayers with you and your little boy.
  • You've got some prayers from me too.  I'm wishing you all the best.

    When my son was younger than that and had to be still for echocardiograms, the would give him a mild sedative first to relax him.  Any chance you can ask about this option?  It might take some of his anxiety away.  

    I hope you get the answers you need.  Hugs.
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  • How scary to go through!! Sending lots if prayers your way!! I'm so sorry you are going through this! :(
  • I feel for you. I will pray for your baby boy tonight. And for you and your husband.
  • Thoughts and prayers for you little boy and you and your husband.
  • Poor little guy! I'm so sorry you're all going through this. I can only imagine how stressful this is on you all. I really hope you guys do get some concrete answers. We're all here for you and please feel free to keep us updated.
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