HELLP - Second pregnancy - specialist?

AggieBeth06 · February 2014

Hi all,

I got a BFP yesterday and had a consultation with my OB today. I had HELLP syndrome with my first pregnancy and I am considering seeking a consultation with a specialist. My OB feels confident in her ability to help me manage our risks this time, but because of the possibilities, I would feel more comfortable at least discussing things with someone who has more specific knowledge. Unfortunately, there's not a huge amount of research behind HELLP, although some scientists lump it in with Pre-E/Ecclampsia (but it's more complicated IMO because it involves liver and kidney function).

Anyone here know what field I could start looking into? More specifically - I didn't know if a high-risk OB would be who I need to consult with or perhaps a renal/liver specialist?

As a side note, I had undiagnosed Hashimoto's thyroiditis (basically a thyroid autoimmune disorder) prior to DS. Some research indicates that autoimmune disorders such as Hashimoto's have a link. I am under the care of an endochrinologist and have requested an appointment for Wednesday of next week.

Thanks! Best wishes for a healthy pregnancy for you all!

mmsweeney1 · February 2014

First, congratulations! I had Acute Fatty Liver, which doctors *believe* is related to HELLP. I know how frustrating it can be to find someone who knows anything about it! I am also having a second pregnancy right now. Since HELLP is a condition specific to pregnancy, I think your best bet would be a MFM doctor. Our MFM specialist had never specifically worked on a case like ours, but he is monitoring my liver and kidney function throughout this pregnancy.

JKTTC1 · February 2014

A friend of mine had HELLP syndrome with her st pregnancy and had an immediate c section where she was sent out of town because of blood transfusion.

However, she switched doctor's for her second pregnancy and did not see a specialist. And actually had a successful, med free, VBAC with no complications about 9 months ago with her 2nd!

AggieBeth06 · February 2014

Nice!

jg1011 · February 2014

I had HELLP with my 1st. I was high risk then as well for a pre existing heart issue. This time around my high risk status is higher bc of HELLP (delivered at 35 weeks), pre-e with my 1st pregnancy, gd with my 1st pregnancy, my age, and my pre existing heart stuff. Makes for an interesting ride. My high risk OB (that is who you should seek out) told me that my chances of HELLP with the 2nd is lower, esp if its with same father. In any case I'm being very closely monitored by both OB and high risk OB.

Just got sent for baseline 24 hour urine and blood work and from what I understand, that will happen several times throughout pregnancy.

Good luck. Hope all goes well.