Swollen optic nerve

Re: Swollen optic nerve

• TJ1979 member

  February 2014

  Nope, but GL.

  TTC with PCOS since November 2009
  

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• jessica_gail2 member

  February 2014

  Yes - I had pseudo tumor cerebri. It was where I had too much brain and spinal fluid, and the pressure caused my optic nerves to swell. It made me have a blind spot (that did go away) and when I would stand up, my vision would fade out for a few seconds. It ended up being caused by acne medicine I was on. I had a couple of spinal taps to remove fluid (which relieved the pressure) and was also on topamax. I worked with an ophthalmologist and a neurologist. I think they call it inter cranial hypertension now. It's typically characterized by intense headaches as wel. Let me know if you have any questions! I'm sure it could be anything - but that's what my issue was. Good luck!

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• luvboston member

  February 2014

  jessica_gail2 said:

  Yes - I had pseudo tumor cerebri. It was where I had too much brain and spinal fluid, and the pressure caused my optic nerves to swell. It made me have a blind spot (that did go away) and when I would stand up, my vision would fade out for a few seconds. It ended up being caused by acne medicine I was on. I had a couple of spinal taps to remove fluid (which relieved the pressure) and was also on topamax. I worked with an ophthalmologist and a neurologist. I think they call it inter cranial hypertension now. It's typically characterized by intense headaches as wel. Let me know if you have any questions! I'm sure it could be anything - but that's what my issue was. Good luck!

  jessica_gail2 said:

  Yes - I had pseudo tumor cerebri. It was where I had too much brain and spinal fluid, and the pressure caused my optic nerves to swell. It made me have a blind spot (that did go away) and when I would stand up, my vision would fade out for a few seconds. It ended up being caused by acne medicine I was on. I had a couple of spinal taps to remove fluid (which relieved the pressure) and was also on topamax. I worked with an ophthalmologist and a neurologist. I think they call it inter cranial hypertension now. It's typically characterized by intense headaches as wel. Let me know if you have any questions! I'm sure it could be anything - but that's what my issue was. Good luck!

  He has absolutely no symptoms he feels fine so its bizarre.

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