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If you have lupus come in

SnowflakeBride06SnowflakeBride06 member
edited February 2014 in Secondary IF
I need a reality check. I am in the midst of a flare. I have only had one major flare in the last 2 years and then I get what I call mini-flares, ones that take me out for a couple of days, usually around O or before AF or when I am sick.  I am in a mini-flare, aching joints, sore muscles in one leg, malaise, fatigue, nausea.

Usually, I feel fine and like myself but when a flare hits, my mind goes to sh*t,I start feeling overwhelmed as I am not used to feeling so crappy and it is so random when I get a flare that when I feel great, everything is great, when I flare I feel bad. I have only had a dx of lupus for 1.5 years so this still feels new to me.

When I flare, I start second guess everything like having more kids or IVF. Does anyone else feel like this? When I feel better, I feel like I can conquer the world!


 6/09 right tube loss (fallopian torsion) 12/09 BFP #1 (DD born 9/10)
8/12 dx Lupus (ANA+/APA-), 12/12 BFP #2  natural m/c 6w 2d 
TTC#2  since 9/12  50mg Clomid/Ovidrel IUI #1 Beta 10/4=BFN
                             50mg Clomid/Ovidrel IUI #2 Beta 11/1= BFN
                                  100 mg Clomid/Ovidrel IUI #3 Beta 12/26=BFFN
100 mg Clomid/Ovidrel IUI #4 Beta 2/14= BFFN
Took a LONG Break
Lots of Luck and Love BFPB for life KOFMKG
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Re: If you have lupus come in

  • CheesyPeasCheesyPeas member
    I don't have lupus but wanted to offer you (hugs) and say that I hope your flare ends soon.
    November 2010 - 10.5 week loss  o:) 
    October 2011 - DS (7)  <3 
    July 2014 - Stillborn DD (24 weeks)  o:) 
    August 2015 - DD (3)  <3 
    April 2018 - 5 week loss o:) 

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  • SnowflakeBride06SnowflakeBride06 member
    Thanks @cheesyPeas you are so sweet


     6/09 right tube loss (fallopian torsion) 12/09 BFP #1 (DD born 9/10)
    8/12 dx Lupus (ANA+/APA-), 12/12 BFP #2  natural m/c 6w 2d 
    TTC#2  since 9/12  50mg Clomid/Ovidrel IUI #1 Beta 10/4=BFN
                                 50mg Clomid/Ovidrel IUI #2 Beta 11/1= BFN
                                      100 mg Clomid/Ovidrel IUI #3 Beta 12/26=BFFN
    100 mg Clomid/Ovidrel IUI #4 Beta 2/14= BFFN
    Took a LONG Break
    Lots of Luck and Love BFPB for life KOFMKG
    Report Reply
  • Jen071407Jen071407 member
    I'm sorry you're feeling awful, big ((hugs))!

    Two DDs 10/08 and 08/10, no primary IF
    TTC #3 since 10/2011 - dx unexplained/weak ovulation
     3 BFN clomid + TI cycles, 5 BFN clomid/gonal f IUIs, 1 mmc IUI
    2/19/2014 IVF #1 Unexpected low E2 (oversuppressed) -> increased to max doses = 3 or 4 follicles, converting to IUI
    BFFP Saw 1 beautiful heartbeat at 6w6d, follow up u/s at 9w showed mmc. Eff this.
    NTNP 5/2014-9/2014, OPKs and TI 10/2014 - 1/2015. 
    RPL testing all normal, AFC, AMH, and FSH all normal. 
    IVF 1.2 1/22/2014 natural cycle start, AFC 28, 300 gonal f/150menopur. 
    ER 2/3/15 14R 8M 3F w/ICSI Day 5 transfer on 2/8/15 of one "Grade A+" blast and have TWO frosties! 

     image

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  • annibesannibes member
    I don't have lupus but I've had fatigue issues for some time now and the thought of going through another pregnancy and having a newborn is really overwhelming sometimes. The desire to have another one helps me push through mentally, but physically sometimes all I can do is lie around and feel depressed that my house looks like crap.
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  • Jeffreysmom24Jeffreysmom24 member
    I am so sorry you are dealing with that and hope you feel better soon!
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  • annibesannibes member
    I hope this flare goes away soon and that you're feeling back to normal in no time!
    Report Reply
  • Momarazzi007Momarazzi007 member
    Echoing the sentiments that it gets better soon. I think we all have our moments of fear and worry about another one, but fear not- that will subside soon too! Great mommies always worry like that! (And the best ones- IMHO don't have a spotless house either ;) ) hugs and hope this flare subsides fast!
    January 2007- Stop BCP! Let's DO this!
    June 2010- MFI. BS. IVF! Ectopic. BS. image

    November 2010- FAILED FET! BS!
    January 2011- BFP FET! TWINS!     February 2011- lost twin. BS. image

    SEPTEMBER 2011- DD Born! Most awesome girl in the world!
    November 2013- FAILED FET! BS! (screw you November FETs)
    April Fresh Cycle, FAILED. Frozen embryos frozen for future FETs.
    FROZEN CYCLE JUNE! BFP
    BABY BOY VINCENT!
    image

    We can't wait to meet you!
    Conception:image    imageimage Potato Love!

    BabyFruit Ticker


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  • chrissynenachrissynena member
    Hope you feel better soon.

    TTC for 1.5 years with a crappy RE. 12 cycles with clomid (11 too many)
    New RE, 3 failed IUI's moving to IVF with ICSI
    IVF#1 BFP EDD 1/10/13
    Beta#1 51  Beta #2 148
    A/S 8/20/13 Team Pink
    Induced week 39 due to severe GD
    Baby girl born 1/4/13

           TTC #2 2 failed IUI's moving on to FET 3/2014
    ET 3/25 
    Beta #1 127
    Beta #2 845
    U/s 4/22 It's TWINS!!
    Team Purple!!

            Baby Birthday Ticker Ticker          

                   image
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  • CeCe8579CeCe8579 member
    I have Lupus (I was diagnosed 13 years ago) and yes, I feel the same way but we are strong!!! We can do it! I'm here anytime and gentle hugs!
    Carly
    (Former UN: iloveshanej)

    Birdie born 05/01/2007
    Rainbow Surprise Baby due 05/26/2017                                          


    Potato Launcher


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  • designer303designer303 member
    Sending hugs your way and hope that you are feeling better, and I worry too, I think its totally natural.  I almost think we would be crazy if we didnt worry sometimes.  Take care and hope the flare is on its way out.

    TTC#1 May 2009- July 2010 on our own with no luck

    Started with RE in August 2010, dx with unexplained IF and then finally our 3rd IUI cycle using Follistim and Trigger resulted in our wonderful little man.  Born 12/2/11

    TTC#2 Never really prevented, but were careful early on as Dr. reccomended

    Surprise BFP 12/16/13, started progesterone immediately as first numbers came back low, but betas were good.  Progesterone wasnt enough. Natural MC 12/24/13.

    Back with RE as of January 2014...

    5/27/14- Chemical Pregnancy :(

    April 2015 IVF#1

    5/13/15- BFP, please stick LO!

    Oh and I'm a major Harry Potter Nerd :)

    Silly mugglesimage

    image 
      

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  • cerad5cerad5 member
    Hugs to you :) I have a good friend from HS that was recently diagnosed and she struggles with the same feelings. Is there someone you can talk to when you are having a flare? A counselor or someone?
    DD 12/1/2009
    TTC#2 Since May 2012
    Dx PCOS February 2013 on Metformin 1500 mg
    Met with RE October 2013, we've got a plan!
    Surprise BFP on "break cycle" 10/12/13. EDD 6/17/14.
    MMC discovered 11/25/13 at 10 weeks. D&C 11/27/13.
    BFP 2/8/14 Beta#1: 176, Prog 18! Beta#2:335, Prog, 19.5!
    EDD 10/16/2014

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