Babies: 9 - 12 Months

Chris qualified for EI services today

He's 15 months old and this is where he was at today: 

Cognative- 9 months

Communication- Receptive 6 months Expressive 7 months

Social Emotional 6-7 months

Gross Motor- Needs to be evaluated by a PT.  They felt there was muscle tone issues.

Perceptual/Fine Motor 10-11 months

Adaptive Self Help- 11 months

 

Needless to say Christopher qualifies all around for EI.  With his issues, I knew he would but to see on paper where he actually is functioning at makes me want to curl up in a ball and cry! 

Re: Chris qualified for EI services today

  • I'm glad you got the eval done and that he qualifies for the help he needs. I'm sure you'll be shocked how quickly he improves. Sometimes they take direction and learn so much better from someone other than a parent - even if you do the same kind of exercises with them.

    My bff is a pediatric OT and KNEW that her son had delays but when a third person actually told her, she was crushed and felt like you do. He's made very rapid progress in therapy.

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  • The thing is, however, that this is part of a workup of other things.  He had several seizures, is self stimming, etc.  We're seeing a neurologist and they felt he is somewhere on the autism spectrum and wanted us to get the EI help ASAP while they do all the things they need to go have the diagnosis. 

    We're seeing a neuropthomologist since his optic nerves are enlarged, the neurologist for the motor issues, having a hearing test to rule anything out that way, an in hospital EEG and go back in Feb when they will get us to a developmental pedi.

  • I have had to take Lucy in for tons of drs appointments because shes legally blind in her right eye.  We have had to get her blood drawn three times and gotten and MRI.

    She has very small optic nerves, and pretty much none in her right eye.   Maybe I should see if I can get  an appointment with a neuropthomologist for her.

    Anyway, my point is, if you have questions, page me or email me, vegaschik001@yahoo.com.

    We also seek EI services here for her. 

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  • Sounds a lot like my bff's son. When he was taken for all of these EI evaluations, the therapist kept saying "Has he been seen by a developmental pediatrician?". After the second one it dawned on her what they were saying, because she'd said the same thing to hundreds of parents. They all thought he had autism. As soon as she knew it, and before they got the official diagnosis, she started him on several therapies. She also radically changed his diet and eliminated all preservatives, casein and gluten. Within weeks of starting the diet, she saw a dramatic improvement. They also took him to a holistic doctor (odd for a certified OT but he had great references) who really helped them with the diet and also started him on probiotics and vitamins. It's only been about two months of the therapy and diet and they've seen marked improvement - he's gaining his skills back (he had lost skills), his behavior is better, etc. By the time they got to see the developmental pediatrician (took about two months to get in) he told them they were doing everything right and that they should keep up what they were doing. They did diagnose him with mild autism and put him at the "highly functioning" end of the spectrum.

    She doesn't get online much because she just delivered her second little one, but please feel free to page me if you have any questions I might know how she handled it or might be able to ask her (I'm careful about this because I'm not sure how she'd feel about me talking about her situation to a bunch of internet "strangers" since she's unfamiliar with the nest).

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  • I'm sorry, that would be really tough. I guess the good news is that you're finding this early and getting him the help he needs. I hope he isn't autistic, but if he is, my cousin's little boy was recently diagnosed at age 3 and he has gotten SO much better with therapy and the proper preschool setting (one for kids with special needs). It's amazing how far he has come in just a few months, actually. Hang in there.
  • I'm sorry that you have to go through this. But, as a speech therapist who used to do EI, I have seen many kids who make such remarkable progress, you'd never even know that they needed services at one time. It's so great that your son is getting the help he needs early on. Happy holidays to you and your family!
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