Special Needs

Mind if I join you ladies??

Hello everyone, I just noticed this board while mobile bumping during a night time nursing session and you ladies seem very supportive so I would like to introduce myself. I am a proud mother if 4 now, 3 biological children and a step daughter. My kids ages are Strp daughter is 10, son is almost 8, daughter is almost 6 and we have a newborn daughter that is 19 days old.
My son was diagnosed at 4 with ASD, ODD, OCD, an unknown mood disorder, PICA, and encopresis. My almost 6 year old daughter has an unknown seizure disorder and aS recently diagnosed by her neurologist with Tourette's and she has problems walking from pigeon toe. Which brings me to my newborn, she was born with bilateral clubbed feet and sees a pediatric orthopedic surgeon once a week for cast changes on her feet.

I feel like I can't catch a break, I love my children and would never trade any of them but at this point I feel like a complete failure, like there has to be something wrong with me because my kids are all special. Anyways I hope you ladies don't mind me joining your group :)

Re: Mind if I join you ladies??

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  • Welcome to the board!
  • Not responsible? I'm not sure what is meant by that, I take very good care of my kids and my husband and I are both working professionals with degrees and very good jobs.

    My son has come a long way and we are very proud of his accomplishments. In this last 3 years we have been able to get him to participate socially with peers and adults, we still have an issue with him eating in public but we are working on that. He has do many dxs because they said it was do prominent they needed to differentiate them from his ASD. He is incredibly intelligent and he wants to go to an aviation academy when he gets into high school to become an aviation engineer, we have one locally.

    As for my daughters T'S, I didn't realize it was common for siblings of ASD, thank you for letting me :). Also her ped doesn't want to do anything about her toe walking but I have a consult scheduled this week my the baby's ortho surgeon. When she was 2 she suddenly began having seizures at daycare and I have a suspicion that is what brought on the T'S but her neurologist has not confirmed by suspicion because he was unable to find a cause for the siezure activity.

    How old is your DS? That is great news he was able to get his foot corrected so well, I am hoping for an outcome like yours for her feet.
  • I misunderstood, I just feel responsible, as a mother it feels like it was something I did or something I are. It just gets overwhelming at times because I don't understand why they are special. I did not realize that field was crashing, he has a while to go maybe I can help him find another career. He is incredible with math and science not do much with reading as he has dyslexia. He does have sensory issues but he has gotten good at recognizing when he needs his coping skills or when he needs to let me know when he is getting overwhelmed. He has a counselor that goes to school with him everyday and he has helped my son come a long ways from where he started 4 years ago.
  • He is not getting specialized reading, I am going to look into those, thank you! His counselor is there to act as a para but he is also there to help him learn how to cope throughout the day. With his sensory issues he becomes overwhelmed and will hide under his desk or if he gets to much over stimulation his mood disorder kicks in and he becomes violent so we felt the need to make sure he had someone with him who can help him process.

    History is a good career path, how does he like it so far?
  • Welcome.

    My boys have a genetic disorder that causes intellectual disability, seizures, possible vision/hearing loss, and hypertonia.  DS1 is 3.5 and DS2 is 1.5

    I got DS1's diagnosis the day after I found out I was pregnant with DS2.  8 weeks later I found out that I was indeed a carrier.  When DS2 was 6w we found out that he has the same disorder despite presenting much different.

    I know the feeling of not being able to catch a break.  This board is a great group of ladies who have been some of the biggest supporters in the past 3.5 yrs for me.
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  • Do you mind if I ask what their genetic disorder is? How are your boys doing now with everything? How are you doing with it?
  • Do you mind if I ask what their genetic disorder is? How are your boys doing now with everything? How are you doing with it?

    They have a x-linked intellectual,disability. It is a teeny tiny mutation on their X chromosome. They are doing well. My 3.5 yo is getting close to walking. Neither of my boys talk or walk. They both function at about a 10-12 mo old level. But they keep making progress.
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  • I agree having a teacher on the spectrum could be very beneficial to the school system.

    My son does have breaks built in and he has a special box with manipulatives that calm him also. We have also integrated deep pressure therapy for when he needs it. He does have OT at school but he no longer has it at home because my insurance denied him to continue due to his progress. He also has group therapy at school and he loves Boy Scouts.
  • Welcome!
    WAY 2 Cool 4 School


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  • Hi! I recognize you from blended :-h
  • Think of it this way, God placed these beautiful children with you to be their mother. You are blessed to be granted these kiddos. I know it doesn't feel this way now, but you must be a great mom to be given 3 special babies. I am sending you hugs and know that you are not failing.
  • @mommytoconnor
    I'm not sure if I did that tag right but thank you! I am seriously in tears after reading your post, I really needed that after today. :)
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