Anyone else ?

rheavner · February 2014

I used to post a lot here early in my pregnancy but lost track midway through. Now I come back a lot to read and post some.
I just wanted to know if anyone else was going through the same thing I am.
First of all my DD was born on her due date 9/22. She is a happy and healthy baby.
On 10/8 when she had a check up we found out that her left eye is much smaller than her right. We were sent to The Eye Institute to have it checked out. Come to find out her optic nerve did not develop in her left eye. The right eye is perfect. An apt in 1/23 confirmed she would have little to no vision in the left eye.
We are now scheduled for an MRI of her eyes and brain. They want to make sure the brain developed correctly. The are going to have to use anethesia. I can't feed her 4 hours before the scan. I've never been through this before. Just wondering if anyone else had any words of advice. Thanks so much!

rheavner · February 2014

jdoud77 said:
I've never been through this before or have any advice but T&P to your LO.

Thanks that means a lot!!

HeatherMc78 · February 2014

My experience is not quite like yours. My oldest son was born with a short optic nerve in his left eye. He overcompensated with his right eye that he was not diagnosed until he was 3. He was legally blind in his left. He has a very strong prescription in his left lenses. They made us patch his right to force his left to work. It improved his vision greatly.
My two older sons recently had anesthesia for the first time this November. They were older than your LO but it is still stressful. I wish I could be more help but I can lend an ear if you need one. My thoughts are with your LO and hopefully the scan comes back fine.

rheavner · February 2014

HeatherMc78 said:
My experience is not quite like yours. My oldest son was born with a short optic nerve in his left eye. He overcompensated with his right eye that he was not diagnosed until he was 3. He was legally blind in his left. He has a very strong prescription in his left lenses. They made us patch his right to force his left to work. It improved his vision greatly.
My two older sons recently had anesthesia for the first time this November. They were older than your LO but it is still stressful. I wish I could be more help but I can lend an ear if you need one. My thoughts are with your LO and hopefully the scan comes back fine.</blockquote

Thank you for letting me know I'm not alone. They had originally talked about patching but they now say it will not help. I keep telling myself it will all be ok.

hilalk · February 2014

No such experience here but just wanted to wish you good luck. You and your LO will be in my T&P's.

JamieWM · February 2014

I also have no experience w this but thinking of you.

ejb23 · February 2014

Just wanted to send t&ps for you and your LO

bermybabe68 · February 2014

No experience either but thoughts and prays to you and LO. Hope all goes well and keep us posted.

sapphire0228 · February 2014

Wow I couldn't imagine what you are going through. I have no advice or experience but you will absolutely be in my thoughts and prayers.

All pp's left great advice. Find your ways to cope and get the stress out instead of trying to just hold it all together all the time. It is ok to ask a lot of questions and it is ok to cry, it does not mean you are weak. You are doing what is best for your LO and there is nothing stronger than that.

Good luck to you and LO.

TKtravels · February 2014

I have no experience, but I'm sorry that you and your LO are having to deal with this.

Good luck and update us when you can!

rheavner · February 2014

Thank you all! I really appreciate everything. The blanket is a great idea. Her appointment is at 8:15, so I'm hoping if we are there early they will take us on in. I'll update you when we know more.

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