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March 2014 Moms
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Any STM+ that had HELLP Syndrome?

cmb2cmb2 member
in March 2014 Moms

Just seeing if there are any other moms out there that had HELLP syndrome?  Want to share your story/how you decided to have #2+/what your concerns are?

I had planned a natural birth center birth with DD...due to suspected IUGR, I had to have NSTs twice a week starting at 34wks to make sure DD was doing ok.  The night of 35w6d, I couldn't sleep and had been having TERRIBLE rib pain that whole night and the whole next day, but I just thought I should suck it up, DD was just in my ribs, I'd have to deal with it until the end.  Other than that, I had loved being pregnant and had no issues the whole pregnancy besides mild swelling.  So I went to my scheduled NST at 36w the next day, and the nurse was concerned about my BP which was slightly elevated.  I also told her that I was having rib pain, during our conversation.  She convinced the reluctant dr to do a blood test "just in case".  Turns out I had HELLP and my liver was failing and my platelets were to 129k at that point.

 I transferred to my hospital (thats a whole other story!, and they did another blood test (about 2 hours later) to see if they could just induce me, or if I had to have a c-section.  My platelets had gone down to 79k - I was crashing fast.  They told my husband (which he told me later) "your wife is dying".  So, I had to have an emergency csection, and they almost had to do a blood transfusion.  They told me basically that if I hadn't had my NST that day, and had just gone home and gone to sleep, I would have died.  I was in denial for a long time, I think because it all happened so quickly.  The nurses kept telling me how lucky I was, because they had just lost a colleague and her baby the week before to HELLP.

Luckily DD was healthy at 5lb 7oz and only had to spend 3 hours in the NICU due to some breathing issues in the beginning.

It was tough when DH and I were deciding to have another baby, but I had a "pre-conception" dr visit to discuss my concerns, and they said the chances of me having it again with close pregnancies and the same partner are low (but still there) and I will just have to be monitored more closely, and start coming in for weekly visits at 32wks or beginning in 3rd tri (since thats when it usually occurs).  Plus now I feel like I know what factors to look out for within my own body.  Praying for a full term healthy pregnancy this 2nd time around!

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Re: Any STM+ that had HELLP Syndrome?

  • Megan5413Megan5413 member
    My best friend just lost her baby Saturday to HELLP at 25 weeks. She's 36 and this was her first pregnancy and is truly concerned she can't try again. I'd appreciate it if you could keep me in the loop if you find anything out. Thanks
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  • toohappy11toohappy11 member
    Hi I had HELLP syndrome in my first and I'm pregnant with my second. I would love to hear how things turned out or if you have any advice. 

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  • babylimasbabylimas member
    I don't have any personal experience but had 2 close friends with HELLP. One had a very similar experience to you and has since had 2 other babies with no complications but constant monitoring. The 2nd had a much worse time and ended up with some very serious complications and can't have another. Good luck to you and I hope this pregnancy goes very smoothly! T&Ps for a healthy pregnancy.
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  • AwfanninAwfannin member
    I had HELLP syndrome with my first/last pregnancy. It came out of nowhere. Woke up one day to pain on my right side and pain when taking a breath. I was in the hospital for 2 days until they decided I needed to have an emergency csection. I was exactly 26 weeks in Nov 2011 and my son, Cullen who only weighed 13.4 oz due to several factors was born at 10:35am. He only lived for an hour & 25 minutes. This pregnancy has been 100% different. I am 30+4 weeks today with a little girl and everything is great. This wasn't a planned pregnancy like our first. I had to take clomid the first time around due to ovulation problems, this time it happened on its own. I never thought it would happen naturally and after our loss, I kept on putting off trying again. I am not sure how long I would've waited if it wouldn't have happened anyways.
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