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Babies: 0 - 3 Months
carmenmiller07
member
Hey
everyone, I'm a first time mom, our daughter was born on nov 18 2013, i was faced
with finding out my daughter was DS, however i had a perfect pregnancy
and had no clue. Our baby girl has CAV canal defect and requires open heart surgery
anywhere from3-6months age,we were finally able to take her home after spending her first month of life in the NICU. I was wondering if anyone had to go through
this surgery and how long was the recovery and of course from a moms
point of view I know what the drs tell us but its nice to hear from
someone in our shoes. or have someone who can relate.
Diganoised with Downs, were on in our 20's complete shock.
carmenmiller07
member
Hey
everyone, I'm a first time mom, our daughter was born on nov 18 2013, i was faced
with finding out my daughter was DS, however i had a perfect pregnancy
and had no clue. Our baby girl has CAV canal defect and requires open heart surgery
anywhere from3-6months age,we were finally able to take her home after spending her first month of life in the NICU. I was wondering if anyone had to go through
this surgery and how long was the recovery and of course from a moms
point of view I know what the drs tell us but its nice to hear from
someone in our shoes. or have someone who can relate.
Mrs.Louviere
This discussion has been closed.
Re: Diganoised with Downs, were on in our 20's complete shock.
Honestly, the first 6 months for them were really difficult. She had trouble gaining weight and was kind of lethargic.
Once she was 6 mos and had her surgery she improved tremendously. She had a great deal more energy and it was obvious she felt much better. She has healed beautifully and is almost walking on her own. They do Occupational Therapy a couple times a week and that has been very beneficial as far as helping her become somewhat mobile.
As I recall recovery took about a month and impeded her ability to crawl since her chest was still healing. Her scar is much smaller than what I would have imagined.
The heart repair was performed just over a year ago and she is the sweetest, most content little girl you could ever meet. She's so delightful and always smiling.
Good luck to you. There are a lot of resources out there and I would encourage you to find a support group if you can. It's helped my cousin meet other parents that share her experiences.
My BFP Chart
BFP 12/19/08 m/c 12/26/08 4 weeks 5 days BFP 10/12/12 m/c 11/19/12 9 weeks...love you forever my angel babies!
https://forums.thebump.com/categories/special-needs
Married 2012
DD: 3 yo
TTC #2 August 2017