Preemies

ROP screening today

LucyRicardo3LucyRicardo3 member
edited January 2014 in Preemies
Just got my morning phone update that little guy is going to be screened this evening for ROP since he has been on oxygen support for a month now. Im frustrsted that I may not be able to get there as my older kids are out of school today due to weather and I have nobody available to keep them todsy.
This separation is absolutely killing me :(
Thanks for letting me cry here a little while




Sorry for typos. Tablet won't let me go back and correct them.

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Re: ROP screening today

  • GL! FWIW, you probably don't want to be there for the screening. They use these awful tools (right out of Saw pick-your-sequel) to pry their eyes open -- my girls were hysterical during it. I watched them do a lot to my girls -- intubate them, insert PICC lines, catheterize, RSV test, etc -- but this one made my stomach turn. I opted to sit it out the second time they did it in the NICU, and had to keep myself from completely breaking down when I had no choice but to be present during the 3rd follow-up after discharge. 

    We have their annual check up this Friday. I hear they don't need to use those awful tools this go-around, but I am still not looking forward to it one bit. Not. At. All.
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  • Sorry you can't be there!

    We had a very different experience than @brummy14 and DD just hung out and didn't cry at all. She was more upset about being held down than the actual exam. It made me feel better that even though it looked horrendous and as if she was being tortured, it wasn't as bad as it looked. Hopefully it won't be awful for your LO and he manages well.

    Hoping for good results!!
  • Sending warm thoughts your way. I know how stressful those exams can be, especially when you can't be there. Hope everything looks good.
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  • ROP exam made me nervous. Not the exam but what the findings might be. I hope things went well. (Or go well). I was there for both exams for my DD and the worst part was her crying. FWIW if the brith weight was high(er) and the oxygen is low chances are slim. Good luck!
  • I'm sorry you had such a tough day!
    Any time I felt that I had no control of the situation like that was really hard.
    FWIW, the Dr made me leave during DS's exam. Praying that tomorrow is a better day for you!
  • Good luck today! I wasn't at the first ROP screening either, and I know it really sucks to not be able to be there for your baby all the times that you want to be. Hope you get good results :)
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  • thanks, ladies, for the helpful info, support, and encouragement!

    The test was last night, and I got there just after the ophthalmologist had left. The NICU nurse said LO didn't fuss too much, and hushed as soon as it was finished. He was snoozing comfortably when I got there..
    This morning when the NP called for morning updates, she confirmed that the screening only showed "immaturity" and no indication of ROP. She said they will do a repeat in 2 weeks.

    Hoping to get to see him again later tonight. Oldest DS has his first soccer game with his school's team in an hour (first time he's ever played a sport, and behold, he actually made the team, SHOCKED).. So I have to be there for him. DH is supposed to meet me after he gets there from work, at the game, and tag out with the kids so I can go to the NICU. 

    one less day.....

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  • Glad to hear!! Hopefully the best exam shows maturity :)
  • Oh good to hear about the exam. I wasn't present for these in the NICU and just took my son for the follow up this week. It wasn't traumatic and he didn't cry at all. He slept a lot because his eyes were dilated. I think it's a good sign they are doing the exam now, hopefully you'll be getting discharged soon.
  • My son was constipated for days and the eye doctor's exam made him poop! Even some nurses say they don't like to be there when he's examining the babies.
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