My 5 1/2 mo old who was born at 33w 6d

anna2089 · January 2014

My big boy. I PPROMed at 30 w 1d and had him 3 weeks later, he was in the hospital for three weeks. He went through antibiotics, blood drawings, cpap, nasal cannula, when we got him home he lost color a couple times but he's my miracle baby, and it takes a special person to raise a preemie, my preemie was easy compared to most. My heart goes out to all the new moms of preemies. If any of you have question or just need someone to listen to. Message me. I'm all ears, and 'this too shall pass' I never worry about when I can hold him now, or whether he can breath ( unless he sticks his finger down his throat and chokes himself) your little hunny is sure going through it now but it's going to be okay, they will be home and in your arms and you can be there mommy ten times over. Keep your head up!

KTZ17 · January 2014

What a cutie! Welcome!

JoJoGee · January 2014

Forgive me for posting (I'm a lurker), and for being a debbie downer. But, while 'this too shall pass' is a nice sentiment, it's not always true. Sometimes, everything doesn't turn out okay. And, sometimes, having a preemie is for life. Don't get me wrong, I'm not saying it's all bad, and I'm happy that your little one seems to be doing well, but let's not pretend we all come home from the NICU with perfectly healthy bundles of joy.

anna2089 · January 2014

I guess I was just referring to having your baby in your arms. The worst part for me of having a NICU baby was that I waited 3 days to even hold him and 3weeks to be his mommy and take him home to take care of him. I watched all the nurses care for my baby and get to see them more than I did. It was all for the best of him, but it was difficult. I realize other obstacles may arise but to be there mommy is the greatest gift. You never know what you got til it's gone. When I'm reminded of the first time I held my baby, and the NICU process I'm much more grateful for my son. I'm sorry I offended you, I was merely trying to give hope to NICU moms, which I needed when I was PPROMed and up in the hospital, hope! Preemies may be for life but what a life to have your preemie alive!

jbranden12 · January 2014

Welcome! And ((hugs)) @JoJoGee. I get it.

LaciJaxx · January 2014

Thanks for posting Anna2089. He's a cutie!!!! We waited 67 long days to take ours home. He just turned 6 months! My how time flies!!!!

And, I guess it all depends on how you look at it. "This too shall pass" has never once failed me, nor will it ever. And trust me, I've been there and done that. You have to try to think positive and see the good in everything. It's not always easy nor does it always make sense but its the only way to keep moving.

But, if you want to look at it in the Debbie downer way, then so be it. I refuse to.

JoJoGee · January 2014

Don't get me wrong, my life is great. But, here are the facts...

My daughter was born at 26 weeks. At the time, I was convinced that she was going to be one of the lucky ones. One of the preemies that would overcome all the odds, because I heard and read so many success stories. So many people told me, "this too shall pass."

Fast forward 123 days, my DD came home from the hospital with a Trach, a G-Tube, on Oxygen and a 24/7 Pulse-Ox. A year and 1 month after her discharge, she was diagnosed with Cerebral Palsy.

Now, it's present day. We celebrated her 3rd birthday 4 days ago. She is absolutely lovable and smart as whip. But, she still has a G-tube and she will always have Cerebral Palsy. She will, likely, never walk. And, I simply don't know if she'll ever eat. But, what it comes down to is that her CP and her complex medical issues - of which there are many - will never "pass" (the realization of this 2 years ago nearly broke me). And, every single one of her issues can be traced back to her prematurity. That is what I meant.

Life is not all rainbows and sunshine, with temporary periods of insanity. It is an awesome, wonderful mix of good and bad, ups and downs, constantly. So, forgive me for telling it like it is. I know I sound like a Debbie downer, so that is how I referred to myself. But, please don't confuse my realism for self-pity.

anna2089 · January 2014

I'm so very sorry for what you must be going through and all the obstacles you must face daily. What a beautiful girl you have. God has every life and circumstance under his control, and although we will never understand we must have faith that he has our best interest in mind. God gave you the strength to go through this, and I probably don't have the same strength which is why he gave me what he did. We never know what our future holds but we have the strength to get through it! And you do. I think your amazing and you are an incredible mom to have raised such a healthy baby girl, keep hanging on, your doing a great job.

anna2089 · January 2014

Oh and I wanted to let you know too, my cousin was told he would never walk or talk, preemie at 24weeks with Down syndrome. His mom said "oh no he will" and would sit in the kitchen with him and as she cooked talked to him all the time. He now walks and talks. Society always deems Down syndrome as a down fall, and I'm society too but I've never met a child or adult with Down syndrome who doesn't have so much love and compassion for people. Isn't that really what life is about? Loving others. That's an awesome thing. I hope you are a little encouraged. I really just sense you going through a lot right now and need some encouragement, so I hope I'm not out of line! I don't believe life to be rainbows and sunshine, trust me it is NOT. Obviously having a preemie was the hardest thing in life I've ever had to do, but I'm glad I went through it now. I remember sitting in the Ronald McDonald room recliner waiting for shift change to be over so I could sit next to Trent in the NICU , so exhausted, my husband had to be at work bc he had exhausted all days off and I was alone. He was the only one who understood what it felt like and knew my pain and he was gone a lot. I remember thinking how will I pay for gas to keep coming up here bc it was a 30 min drive, how was I going to pay for all the bills we had accumulated, how was I going to eat when I couldn't go grocery shopping or pay to go out to eat. I want to be the help if I can bring a meal or give a gas card, or just be a listening ear. Bc I know the pain of being a NICU mom. I don't claim to know the aftermath ( your situation) I just want to do that, I hope you feel my heart, I in no way want to come against you preemie moms who fight a daily fight, I look up you guys!

JoJoGee · January 2014

I can tell your heart is in a good place. I just wanted to provide a different perspective, as I truly believe that if I had heard someone say, "Sometimes, it all doesn't turn out okay, but it is still wonderful" I would have been better prepared.

It is also nice of you to offer encouragement to me, but I really don't need it. I meant it when I said my life is great.

ashleymarie512 · January 2014

@jojogee I agree with you. I sometimes wished people would have just agreed with me that things were crappy and could have potential long term issues instead of blowing rainbows and lollipops up my a**. I know DH was also sick of hearing the sentiments of those with rose colored glasses.

Life is great--sometimes just goes different than our "plans". Makes me think of the poem "Welcome to Holland" a far as things not going to plan, but still being wonderful.

jbranden12 · January 2014

This is a great blog post: https://littlebabypierce.blogspot.com/2013/09/when-your-preemie-doesnt-defy-odds.html

Unlike the author, I absolutely do not believe God meant for Anna to have brain bleeds and hydrocephalus, but I understand the sentiment.

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My 5 1/2 mo old who was born at 33w 6d

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