Preemies

Expecting a preemie- what can I expect?

Hi all! I'm 31 weeks pregnant and being heavily monitored for absent end diastolic flow- I've been in the hospital for a week and I'll be here until LO makes his appearance.
My doctors are telling me that they don't know when they'll need to take him- I could have another couple weeks, or we could need to do it tomorrow. We don't know. My MFM told me today that she would be suprised if I made it past 34 weeks. I got steroid shots for his lungs at the beginning of last week, around 30 weeks.
I'm wondering from y'all- what should I expect in the nicu? Are there certain things I should be asking my ob or the neonatologist before baby comes? Is there a book or something I could read to help guide me through the nicu journey?

Thank you!!


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Re: Expecting a preemie- what can I expect?

  • Sorry you will be joining us..I agree with PP, a tour of the NICU will help! I was in labour for 4 days at 33w and during some downtime my DH toured the NICU, he then came back and told me all about it. It really helped to prepare us for what to expect, rules of the NICU etc.
    In all honesty, I think knowing ahead of time you will have a preemie is the best advantage you can have to prepare. Just mentally wrap your mind around it and know your LO could possibly be in there until your actual due date.
    We thought we were having a preemie ASAP on day 1 of labour, by day 4 we had time to ask questions, do the NICU tour, and really wrap our heads around what was happening.
    Goodluck and know that every baby is different! Yours could come out a little superstar and be in the NICU for no time! Best advice though is to remain realistic and keep in mind the outcome of a few weeks possible stay. Take each day one at a time and you'll be fine! And ask as many questions as you want!
    Hope your LO stays cooking :)
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  • Sorry you will be joining us. But know that modern medicine is a wonderous thing. I think you can expect not to expect. If that makes sense. The tour was nice but until your there it doesn't really hit you. You will see babies who are very sick and babies who are healthy an only thier for a few hours of observation. Just ask as many questions as you want to anyone you want. The nurses, doctors other parents, who ever. Nothing I could have read would have prepared me for a 52day NICU stay. To note; I am an RN. And even that didn't prepare me. My LO was born at 30w. She came home with a clean bill of health at just over 37weeks GA.
  • LucyRicardo3LucyRicardo3 member
    edited December 2013
    sorry you are going through this unexpectedly. My little guy was born at 30w2d due to a PPROM at 29w6d. He is still in the NICU.
    One mistake I made was telling people they could come visit him without making sure they've had their flu shots before bringing it up. So I've been on a lot of damage control, and have made some people mad, and I'm a very non-confrontational person. I should have kept my mouth shut. So hopefully you don't have to go through that.
    The other thing, is that the standard answer i've received from his doctors is that he will be there through his due date of Feb 15. He's been making awesome progress and it's hard to believe that he will truly be there that long. I've had to change my perspective that at the end of every day when I leave, that it is "one less day" for him to be there than it was when I arrived that morning, instead of trying to wrap my mind around "how many total more days" is a bit overwhelming.
    Best wishes to you and I hope you can continue your pregnancy as long as possible. Every day truly does make a difference!



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  • Sorry you're going through this. I think PPs covered what you can do to prepare. We spoke to our neonatologist before DD arrived but at that time we thought my BP would be stable enough to wait for 34 weeks and she was actually delivered at 31 weeks. I didn't think it was actually going to happen. I suggest that as LucyRicardo3 said, don't think about how many more days you'll be in the NICU. Just take it one day at a time. I think that made it easier for us instead of getting our hopes set on a particular time frame. I hope you're able to make it a few more weeks and I wish you a short & uneventful NICU stay!

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  • I echo everyone else's responses and wanted to share with you that one my twins had reversed end diastolic flow at 24 weeks and we made it 28 weeks.  After I was admitted and given steroids his blood flow improved and he returned to absent end diastolic flow for 4 more weeks.  I hope your little guy stays in safely a bit longer!  Keep us updated.
  • LucyRicardo3LucyRicardo3 member
    edited December 2013
    ziggy903 said:
    Is there a book or something I could read to help guide me through the nicu journey? Thank you!!
    I just realized this part of your question.  Our NICU has a bookshelf stocked with loaner copies of this guide
    https://www.amazon.com/Preemies-Second-Essential-Parents-Premature-ebook/dp/B00APJ7KXG/ref=sr_1_1?s=books&ie=UTF8&qid=1388436454&sr=1-1&keywords=preemies

    It's packed full of anything you could possibly want (and not want) to know about preemies. Your NICU may have copies to loan out, as well. It's one of those things that you don't want to read cover to cover, but by the topical index in the back according to what specific concern you may have. Like I said, DON'T read it cover to cover or it could really freak you out. It does a great job of explaining basics, as well. Especially when the drs or nurses start throwing out medical terminology you may not be familiar with....
    This board has already been very helpful to me, in just glancing over various threads.

    Also- check out the first thread on this board that will take you to a Preemie Resource Blog. It's been very informative to me, as well.
    Again, prayers and hugs through your journey!

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  • Sorry you're going through this and welcome! This board has always been so supportive and I hope you find the same.

    I had my daughter at 29w6d due to preeclampsia and HELLP syndrome. She was also measuring behind and was born at 2lb 3oz and 3%ile. We had a nine week NICU stay and came home about a week before due date, still on oxygen. Didn't get a chance to so steroid shots and I think it had a huge impact on her need for o2.

    The pps have covered most things, but wanted to add, don't ever hesitate to ask questions. I learned so much during our stay and it was because I always asked questions to get more info. Some neos and nurses were so helpful and informative, others weren't. It seemed so daunting and overwhelming to think we had a two and a half month hospital stay, but we fell into a routine and it eventually came to an end. It was our normal. Once she came home, we made a new normal and enjoy every second. Utilize your supports and don't hesitate to ask for help.

    Hang in there, I hope things go smooth and uneventful!
  • thank you guys so much! i've asked about touring the NICU, and the nurses are asking if i can- but it might be a HIPPA violation, since names and stuff is on their little bassinets.


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  • ziggy903 said:
    thank you guys so much! i've asked about touring the NICU, and the nurses are asking if i can- but it might be a HIPPA violation, since names and stuff is on their little bassinets.
    My hospital allowed me to tour the NICU twice and I actually got to see up close babies who were the same gestational age I was pregnant at the time.
  • It almost seems to vary from hospital to hospital. The NICU my twins were in was very strict about everything, but this hospital (a different state) was offering me a tour but I never got stable enough during my hospital bedrest to get there before he was born.

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  • ziggy903 said:

    thank you guys so much! i've asked about touring the NICU, and the nurses are asking if i can- but it might be a HIPPA violation, since names and stuff is on their little bassinets.

    My hospital allowed me to tour the NICU twice and I actually got to see up close babies who were the same gestational age I was pregnant at the time.


    Yeah, they're lookng into it for me. I would love to, but I know their hands may be tied. They may be wanting to "play it safe" even if it isn't a hippa violation, which I understand.


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  • Because NICU experiences can vary so much from baby to baby, it's hard for me to give any specific advice, but two good general suggestions that I like to share are these. They may seem like common sense, but being an overwhelmed FTM (learning parenting and NICU at the same time!) they helped me out. 

    Be familiar with all the resources available to you: the neonatologists, the nurses, the social worker, the lactation consultant (if you plan on breastfeeding), etc. The hospital that DD was at organized get together events for the current NICU families for socialization/companionship as well as providing additional information and aid regarding preemies and the NICU experience. I'm not sure if your hospital has something like that, but it could be helpful as well if you are into that sort of thing. 

    Understand that you are not just a visitor or an observer, but a crucial part of your baby's care. Don't be afraid to speak up and advocate for you and your baby. Take advantage of all the hands-on duties that you possibly can--diaper changes, feeds, kangaroo care, etc. The more thoroughly involved you are, the better your NICU experience will be, IMO. 

    Good luck! I hope your stay is short and uneventful. 
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  • I hope I'm not repeating anyone. I didn't have time to read through all the great responses. If your NICU nurse doesn't start a journal for you, then you should. She gave us a small note book to write things down in. The date, their weight, events from the day, the nurses name, questions to ask the neonatologist during rounds, as well as write letters to your baby. It was a very useful tool.
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