Mom's with Celiac/Gluten-free Households

alphalyrae · December 2013

DH has celiac disease, he was diagnosed 10+ years ago and has some pretty severe reactions to even the slightest cross contamination. Obviously, there are concerns that our children will inherit it since it tends to cluster within families and there are a handful of other family members who are diagnosed with celiac disease. The plan is for me to phase out foods with gluten in them over the next two months since I'll be BFing, and to transition all hygiene products as well in case of accidental exposure. I've had to forgo some of my favorite lip glosses in the past 3 years because DH would react after a kiss, he's that bad. He also reacts to some disposable diapers that have wheat products in them (although most are transitioning to not use wheat/gluten), we are using Gdiapers.

What products do you use to shampoo/wash/lotion your little ones?/Any additional tips you can share regarding products would be awesome. I've obviously googled and blogs are full of products with reviews but I'm a skeptic of blogs sometimes. So, enlighten me.

sthomas1222 · December 2013

I have Celiac, honestly I don't know if all of that is truly necessary. The only thing you can do reduce the risk is to be BFing while introducing gluten. And that only reduces the risk. But if you want to do all more power to you!

Our GI and allergist (DD has an egg allergy) have been really great in letting me introduce it when I feel I'm ready. We haven't yet but that's b/c we've weaned and I'm hoping she'll relatch when she sees new baby nursing if not she'll be getting pumped milk and we'll finally introduce it. But our donor milk has gluten in it and so far so good.

ETA: We use cloth diapers, Grovia also has disposable inserts if that's what you're wanting. When I use disposables rarely, I use Honest Co. for that too.

As far as shampoo & lotion my favorite is Angel Baby. I may be switching to Honest Company after we run out the ridiculous amount of Angel Baby we have (I bought in bulk). Honest is cheaper and sold at Costco (at least in my area lol).

https://www.celiaccenter.org/ (They've answered my crazy, hormone induced ranting emails even though we're not patients there! I hope to make the trip should DD be diagnosed.)

alphalyrae · December 2013

sthomas1222 said:

I have Celiac, honestly I don't know if all of that is truly necessary.

The only reason I want to make sure that the products are GF is primarily for consumption when they are mobile and playing in the bath tub, etc and more likely to ingest bits of water.

But, it's also a concern when DH reacts so strongly to the smallest cross contamination. He's also got some dairy allergies to contend with on top of it, not uncommon with celiac sufferers. I hadn't taken too much of a look at Grovia but thank you, I definitely will! I had seen The Honest Company at Costco, the shampoo and I think body wash and I was thinking about picking it up/ordering the sample collection to see if DH likes it too.

spinsoffresonance · December 2013

We use california baby super sensitive shampoo and body wash, which I believe is allergen free. But double check that because we don't actually have celiac or allergies in the family.

typeset · December 2013

@ABColeslaw

ABColeslaw · December 2013

We have our house on allergen lock down. I have celiac, but that isn't our biggest concern. However you can be highly reactive to gluten, though I am not to the level of your H, I get it. Being on high alert at least in the beginning is smart.

We use aquaphor wash with Asher and my H and while it isn't certified gluten free, it is. Neither of them have ever had an issue. While they don't have celiac, they have severe wheat allergies.

Asher had a very hard time with disposable dipes. I went through many brands before giving up and going to cloth. The thing is, many people don't realize with celiac you're probably talking about a grass root allergy as well because of the way crops are rotated on soil...nice huh? So a lot of disposable dipes do contain things that you won't want to expose and at risk baby to.

Most people with celiac are not that reactive, but I can tell you that my sister is. The key is to get an allergist on board that can help you with small exposures over time to lessen or eliminate sensitivity. Good luck!

alphalyrae · December 2013

ABColeslaw said:

We have our house on allergen lock down. I have celiac, but that isn't our biggest concern. However you can be highly reactive to gluten, though I am not to the level of your H, I get it. Being on high alert at least in the beginning is smart.

We use aquaphor wash with Asher and my H and while it isn't certified gluten free, it is. Neither of them have ever had an issue. While they don't have celiac, they have severe wheat allergies.

Asher had a very hard time with disposable dipes. I went through many brands before giving up and going to cloth. The thing is, many people don't realize with celiac you're probably talking about a grass root allergy as well because of the way crops are rotated on soil...nice huh? So a lot of disposable dipes do contain things that you won't want to expose and at risk baby to.

Most people with celiac are not that reactive, but I can tell you that my sister is. The key is to get an allergist on board that can help you with small exposures over time to lessen or eliminate sensitivity. Good luck!

I think DH might use aquaphor. I honestly don't pay attention to the products he uses, aside from knowing that it took him awhile to narrow down what he does and doesn't react to.

We realized there were concerns with disposable diapers when we would watch out niece frequently and DH would change a diaper. His hands would get bright red, and occasionally he'd get hives. So we definitely wanted to avoid that. It doesn't look like there's anything in the Gdiaper disposable inserts to be concerned with, but if we have any reaction, I'll switch strictly to the cloth inserts. I'm also going to take a look at Grovia as PP suggested and see what their disposable and cloth inserts look like.

We will be speaking with two pediatrician offices that came incredibly highly recommended from friends and family. Specifically asking if they have experience with celiac/allergies and also will be speaking with DH's Allergist and other doctors to make sure we are well prepared.

It took a lot of adjusting products I was using that came into contact with DH but we seem to have found a pretty safe balance at the moment. But obviously, it'll be even better when I transition Gluten and wheat products out of my diet, too. It's kind of a pain in the ass to brush my teeth after every single item I eat that isn't safe to touch his lips and potentially be ingested. I'm crossing my fingers that our daughter doesn't inherit celiac or any of DH's allergies/intolerance, he has a few more on top of the celiac and dairy intolerance but they are less of a concern but in my book it's better to be safe than sorry from the get go.

ABColeslaw · December 2013

alphalyrae said:

ABColeslaw said:

We have our house on allergen lock down. I have celiac, but that isn't our biggest concern. However you can be highly reactive to gluten, though I am not to the level of your H, I get it. Being on high alert at least in the beginning is smart.

We use aquaphor wash with Asher and my H and while it isn't certified gluten free, it is. Neither of them have ever had an issue. While they don't have celiac, they have severe wheat allergies.

Asher had a very hard time with disposable dipes. I went through many brands before giving up and going to cloth. The thing is, many people don't realize with celiac you're probably talking about a grass root allergy as well because of the way crops are rotated on soil...nice huh? So a lot of disposable dipes do contain things that you won't want to expose and at risk baby to.

Most people with celiac are not that reactive, but I can tell you that my sister is. The key is to get an allergist on board that can help you with small exposures over time to lessen or eliminate sensitivity. Good luck!

I think DH might use aquaphor. I honestly don't pay attention to the products he uses, aside from knowing that it took him awhile to narrow down what he does and doesn't react to.

We realized there were concerns with disposable diapers when we would watch out niece frequently and DH would change a diaper. His hands would get bright red, and occasionally he'd get hives. So we definitely wanted to avoid that. It doesn't look like there's anything in the Gdiaper disposable inserts to be concerned with, but if we have any reaction, I'll switch strictly to the cloth inserts. I'm also going to take a look at Grovia as PP suggested and see what their disposable and cloth inserts look like.

We will be speaking with two pediatrician offices that came incredibly highly recommended from friends and family. Specifically asking if they have experience with celiac/allergies and also will be speaking with DH's Allergist and other doctors to make sure we are well prepared.

It took a lot of adjusting products I was using that came into contact with DH but we seem to have found a pretty safe balance at the moment. But obviously, it'll be even better when I transition Gluten and wheat products out of my diet, too. It's kind of a pain in the ass to brush my teeth after every single item I eat that isn't safe to touch his lips and potentially be ingested. I'm crossing my fingers that our daughter doesn't inherit celiac or any of DH's allergies/intolerance, he has a few more on top of the celiac and dairy intolerance but they are less of a concern but in my book it's better to be safe than sorry from the get go.

@alphalyrae If it helps to know, aside from Celiac which is very prevalent in females, girls are far less to have several and severe allergies than boys, so you're already up on the battle. She may inherit some of it, but it is unlikely she'll get all of it.

My poor little boy

But I have hope for this next baby since she has less of a chance.

JAM85 · December 2013

I am gluten free and our household is so baby will automatically be so as I plan to EBF for 6 months before introducing solids and even then grains will be last on my list. But in terms of bath products- I use natural products that don't have gluten. It will say so on the bottle as well. DD won't get gluten essentially until she starts going to friends houses or sharing food and as my entire family had the allergy ill be very cautious but this should enable us to detect any issues earlier I am hoping. My DH only has gluten when we are out to eat and I am a bit of a health nut anyways so he knows I have certain preferences when it comes to peanuts diet.

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