January 2013 Moms

Health updates, again.

I feel like i just did this.. Unfortunately it appears that the heart condition is not the root of my symptoms, but rather, a symptoms itself. It appears, that i likely have MS. We are testing to confirm this week, but my neurologist is pretty certain at this point. I am trying to be positive, and educate myself, because honestly, until this week i didn't know much about the disease. But honestly.. Right now, i feel pretty hopeless. I'm scared, and i can't stop staring at my son wondering how much of ME he is going to get to know, how much i will change..  What this is going to do to mine and my husband's future.. Is he going to watch me change? Is he going to lose the person he married? We have been in love since i was 18.. Our son turns 1 in a month.. We just found out that it is possible for me to have kids again.. He is getting out of the Army, and we have been talking about buying a house. What is going to happen to our plans. Will i still be me in 20 years? 40? Will i be able to keep doing the things i love?

This probably sounds pretty petty.. But i am scared beyond words right now.
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7/5/11 MC at 8 weeks. 5/17/12 BFP, twins EDD 1/20/13! 6/20/12 Baby B's heart has stopped beating. 8/31/12 Baby A is a boy! And is perfectly healthy and thriving. 1/19/2013 emergency c-section, Thoren is perfect. 3/1/2013 told i will never be able to conceive again. 12/16/13 told they were wrong! 


Re: Health updates, again.

  • That doesn't sound petty, our personal fears are always valid no matter how small or big. Please keep us updated, my thoughts are with you and try to enjoy the holidays as much as possible.
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  • I'm sorry you are going through this. The good news is that MS can be treated and you can live a long healthy life. I hope you and your family can enjoy this amazing holiday season. It's easier said than done, but enjoy this as much as you can.
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  • I'm so sorry that you have had to deal with so many ups and downs. The uncertainty must be really stressful. I agree with @OhBaby+2013 that you can live a long and happy life with MS. My cousin has MS and his parents say that the medical advances are snowballing these days. 

    You are in my thoughts. Sending a big hug.

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      "It is better to light a candle than curse the darkness." - Eleanor Roosevelt


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  • I'm so sorry you have had to deal with all of this. I will be praying for you. Try to enjoy the holidays with your son and focus on him rather than what's going on. I will be thinking of you all. Just know that you will have a support system here for whatever you need!
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  • This truly sucks and I'm sorry that you're dealing with these health problems.  Like PP said, now that you have an accurate diagnosis,  you can be treated effectively.  Hopefully you will have short lasting flares and long periods of remission.  

     

  • I'm so sorry! It is a peace of mind to know you are diagnosed correctly though. Sending T&P your way!

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  • Thoughts and prayers to you and your family. I'm sorry to hear this and it's not petty at all!
    I have a friend with MS and she is currently pregnant with her 4th. The doctors have told her that since they were able to catch it early she should be able to continue to live her life as normal. I hope your diagnosis can be similar!

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  • You are far from petty, I couldn't imagine going through this. Thoughts and prayers your way.
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  • I am so sorry! As PP have said MS is different in everyone. I know 3 people with MS and tthy are living perfectly normal lives minus a couple flare ups. The medical advancements right now keep getting better and better. Prayers sent your way!
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  • It's a lot to take in so give yourself some credit. Know your family and friends love you dearly (I'm sure) and will be right there with you through it all. There are so many great resources on MS and like PP said there are many people who live normal, healthy lives with MS. (((Hugs)))

    Henry Cavill...You're welcome!

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    BFP #3: EDD 1/10/13 **DS born 12/30/12!!!**
    BFP #2: MC 7/2/11 @ 12 weeks
    **Missing our February '12 LoveBug**
    BFP #1: MMC discovered on 12/6/10

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  • One of my dear friends has MS and ran a marathon this year AND just had a beautiful, healthy daughter. Keep your chin up. We are all here for you!
    Our little Samosa arrives in January!
  • (Hugs). It is not petty at all. I hope the do find the root of your problems soon.
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    Paige 8/5/99, Kara 7/22/03 and Benjamin 1/19/13
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    10 losses 1996-1998, 2 losses 2001-2002, 3 losses 2010-2012, loss 1/2014
  • So sorry to hear this your are in my prayers
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  • You are not being petty at all!  That is a scary diagnosis, and I will definitely be keeping you in our thoughts in prayers.  

    I'm sure you're being bombarded with information, but here's my very limited experience, we have a member at our gym that was diagnosed with MS a couple years ago, and he's found great relief is daily exercise and an Auto-Immune diet (gluten free, grain free, dairy free, nightshade free, suger and food dye free), it helps with keeping the inflammation in the myelin tissue down.  When he joined, he walked with a cane, he now lifts weights, rides bike, and uses the arc-trainer at least 3 times a week. 
    Me: unexplained infertility - annovulatory DH: testicular cancer survivor!! TTC since June 2009 BFP May 11, 2012 EDD January 24, 2013 June 1, 2012 - first u/s, heartbeat 124 BPM!! June 22, 2012 - heard the heartbeat 9w1d 181 BPM!! 24 hours of labor, 4 1/2 hours of pushing, and IT'S A BOY! Welcome to the world my miracle, we prayed and prayed for you, and we can't believe you're here!
  • I'm sorry you have to go through this. I don't think it's petty at all to be scared. I can't imagine how hard it must be. Hopefully when you get more information you can get a better idea of what's ahead. I don't have any personal experience but I do know several people who have managed to live high functioning lives with MS. Like PP said modern medicine and lifestyle choices do a lot.

    Thoughts and prayers for you and your fam and hoping for answers for you soon.
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  • So sorry. Whatever the outcome, I hope that you get better.
  • Don't ever feel like you are being petty expressing your worries here. While we won't always have advice, we all will support you as we can as fellow mamas. Praying for you and thinking of you in these hard times!

    BFP #1: 05/2012 DS born 12/30/12

    BFP #2: 02/2014 Natural M/C 03/2014 @ 7 weeks

    BFP #3: 06/2014 EDD: 02/17/2015 M/C @ 7w2d, D&E 7/15/14


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  • bennikki said:

    You are not being petty at all!  That is a scary diagnosis, and I will definitely be keeping you in our thoughts in prayers.  


    I'm sure you're being bombarded with information, but here's my very limited experience, we have a member at our gym that was diagnosed with MS a couple years ago, and he's found great relief is daily exercise and an Auto-Immune diet (gluten free, grain free, dairy free, nightshade free, suger and food dye free), it helps with keeping the inflammation in the myelin tissue down.  When he joined, he walked with a cane, he now lifts weights, rides bike, and uses the arc-trainer at least 3 times a week. 
    Also, I have a best friend who has RA, which although is very different, is an autoimmune disease. She was initially told she would be in a wheelchair before 30, but changed her diet and exercise routine and is actually now a competitive weightlifter. Try to stay positive!

    BFP #1: 05/2012 DS born 12/30/12

    BFP #2: 02/2014 Natural M/C 03/2014 @ 7 weeks

    BFP #3: 06/2014 EDD: 02/17/2015 M/C @ 7w2d, D&E 7/15/14


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