Trouble TTC

AW Alert: WTF Appointment...

RunCC37RunCC37 member
edited December 2013 in Trouble TTC
Hi Girls, sorry to be such a PW lately. There really is no point to this post... Just putting it out there in the hopes that it'll make me feel a little better. It's been a little (a lot) rough around here as we do our best to pick up the pieces after Monday... getting canceled before ET was/is a horrible blow. We are still heartbroken and stunned. 

We had our WTF appointment yesterday... feel free to read about it in my blog (link in siggy or mobile bumpies click here). The cliff notes version: Doc thinks egg quality is our issue and offered three options (IVF with PGD, IUI+injects, donor eggs). We got a copy of our records (that file is THICK! A lot of paper!!) and have appointments set up with three other clinics to get a second (third & fourth) opinion. We are not going to move forward with IVF#3 until we have a rock solid plan and a decent amount of hope to go on. In the meantime, we are going to do another IUI with our current doctor. 

I cannot believe this is happening... I'm just praying for our miracle to come along... I don't care how, just want it to happen before my heart can't be glued back together anymore. I'm sending a lot of love and luck out to everyone here hoping that our miracles are on the way very, very soon.
**SIGGY WARNING**

Me: 32 DH: 35  TTC#1 since March 2012
Dx: Poor Embryo Quality, Arcuate Uterus, Poor Uterine Blood Flow, Mild Endo, 
       Protein S Deficiency, Sjorgen's Syndrome 

IUI #1-5: BFN
Laparoscopy & Hysteroscopy: minimal endo, partial septoplasty
IVF #1: 10R/6M/6F ~ Day 3 ET = BFN
IVF #2: 14R/9M/5F ~ transfer canceled ~ all embryos arrested at 1-2 cell stage
IVF #3: 9R/5M/5F ~ 1 frosty!
IVF #4 (FET #1): BFN

IVF #5 (DE IVF #1 with Dr. KK protocol): Currently PREGNANT!!!!!!
Synthroid + Prednisone + Metformin + Baby Aspirin + Supplements Galore = 15+ pills a day
Lupron + Lovenox + Delestrogen + IVIG + B/W = 2-5 pokes a day
19R, 17M, 17F - transferred two Grade A blasts 11/16, four frosties!!!
Beta #1 11/24 (13dpo/8dp5dt) = 367 ~ Beta #2 11/26 (15dpo/10dp5dt) = 709
Beta #3 11/29 (18dpo/13dp5dt) = 1,997 ~ Beta #4 12/1 (20dpo/15dp5dt) = 3,403

imageimageimage

My Blog: Running and Dreaming for Two ~ All are Welcome!

Re: AW Alert: WTF Appointment...

  • tigger99 said:
    You linked back to your own post!! Silly!
    <3 you!
    here is the link to her blog!
    Grrrrrr!!! (directed toward TB, not you Tigger!!) Fixed it (I hope!), thanks for the catch!
    **SIGGY WARNING**

    Me: 32 DH: 35  TTC#1 since March 2012
    Dx: Poor Embryo Quality, Arcuate Uterus, Poor Uterine Blood Flow, Mild Endo, 
           Protein S Deficiency, Sjorgen's Syndrome 

    IUI #1-5: BFN
    Laparoscopy & Hysteroscopy: minimal endo, partial septoplasty
    IVF #1: 10R/6M/6F ~ Day 3 ET = BFN
    IVF #2: 14R/9M/5F ~ transfer canceled ~ all embryos arrested at 1-2 cell stage
    IVF #3: 9R/5M/5F ~ 1 frosty!
    IVF #4 (FET #1): BFN

    IVF #5 (DE IVF #1 with Dr. KK protocol): Currently PREGNANT!!!!!!
    Synthroid + Prednisone + Metformin + Baby Aspirin + Supplements Galore = 15+ pills a day
    Lupron + Lovenox + Delestrogen + IVIG + B/W = 2-5 pokes a day
    19R, 17M, 17F - transferred two Grade A blasts 11/16, four frosties!!!
    Beta #1 11/24 (13dpo/8dp5dt) = 367 ~ Beta #2 11/26 (15dpo/10dp5dt) = 709
    Beta #3 11/29 (18dpo/13dp5dt) = 1,997 ~ Beta #4 12/1 (20dpo/15dp5dt) = 3,403

    imageimageimage

    My Blog: Running and Dreaming for Two ~ All are Welcome!
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  • I'm glad that you have a plan for your next cycle, and that you have some consults set up for more opinions. I started taking coq10 after my mc because I've been wondering/concerned about egg quality too. Hope your IUI works and you don't need to worry about the second opinions!

    Baby Birthday Ticker Ticker

    TTC since Sept 2011, Unexplained IF
    Oct 12 - Jan 14: 3 clomid/TI cycles, 2 hysteroscopies, 2 IUIs, 1 BFP (MMC @ 12w), 2 more IUIs
    Feb 14: Gonal-f + IUI #5 = BFP! (EDD 11/4/14)
    Baby boy arrived 11/13/14!

  • @calindi, thanks for mentioning the L-Arginine, I've never heard of it! I've been on CoQ10 ever since my WTF from IVF#1... hopefully it's helping. I actually asked my current doctor about mini-IVF and he said that was a possibility for us. Before moving forward with another round of IVF, I want to consult several doctors so I can get lots of opinions. So, for now, IUI it is!
    **SIGGY WARNING**

    Me: 32 DH: 35  TTC#1 since March 2012
    Dx: Poor Embryo Quality, Arcuate Uterus, Poor Uterine Blood Flow, Mild Endo, 
           Protein S Deficiency, Sjorgen's Syndrome 

    IUI #1-5: BFN
    Laparoscopy & Hysteroscopy: minimal endo, partial septoplasty
    IVF #1: 10R/6M/6F ~ Day 3 ET = BFN
    IVF #2: 14R/9M/5F ~ transfer canceled ~ all embryos arrested at 1-2 cell stage
    IVF #3: 9R/5M/5F ~ 1 frosty!
    IVF #4 (FET #1): BFN

    IVF #5 (DE IVF #1 with Dr. KK protocol): Currently PREGNANT!!!!!!
    Synthroid + Prednisone + Metformin + Baby Aspirin + Supplements Galore = 15+ pills a day
    Lupron + Lovenox + Delestrogen + IVIG + B/W = 2-5 pokes a day
    19R, 17M, 17F - transferred two Grade A blasts 11/16, four frosties!!!
    Beta #1 11/24 (13dpo/8dp5dt) = 367 ~ Beta #2 11/26 (15dpo/10dp5dt) = 709
    Beta #3 11/29 (18dpo/13dp5dt) = 1,997 ~ Beta #4 12/1 (20dpo/15dp5dt) = 3,403

    imageimageimage

    My Blog: Running and Dreaming for Two ~ All are Welcome!
  • You have been super supportive since I joined here and I am glad to hear your updates. I am sorry you have had such a tough road. Good luck on your upcoming cycle!
    Me 29 DH 30 Unexplained IF TTC since wedding May 2012. IUI #1 11/5/13-BFN.  IUI #2 12/5/13-BFN. IUI #3-12/30/14. All three with Femara CD 3-7 and Ovidrel trigger. +HPT 1/13/14 First +ever!!! Beta #1 195 Beta #2 1/15-533. Ultrasound on 2/4 showed one bean. EDD 9/22/14. Team Green turned Team Blue-Baby Conner arrived on 9/19/14.



  • Good luck with your other consults...please let us know how they go! I hope you guys can get a solid game plan that you're comfortable with. GL!
    {Me:27, Dx:PCOS, LPD, & rob(14;15)}
    {DH:31 all clear, "super sperm"}
    Ecstatically married July 30, 2011--TTC since Jan 2013:::Baby #1 due 9/11, Conceived on cycle #5 of Femara + Hcg + IUI
    ~Love and Light to everyone~ 
    image image
    My furbabies--Mr. Bubbles and Miss Kitty <3
    imageBaby Birthday Ticker Ticker  

    image image
  • I've been thinking about you this week. I'm so glad that you have a short term plan and several options for a long term plan. I can relate to the frustration, but having any plan in place seems to help me start mentally moving forward.

    Just to offer the other side of the supplements story, I've been on DHEA, CoQ10, and L-Arganine since the beginning of September. Given my results last cycle, I'm not sure they're doing much for me, but it can't hurt!
    Pregnancy Ticker

    TTC #1 since June 2012
    Me (28) - DOR (AFC <10, undetectable AMH, >10 FSH), homozygous E429A MTHFR
    DH (29) - MFI low count and morphology

    September 2013 IUI#1 - Clomid + Trigger + IUI = BFN
    October 2013 IUI#2 - Letrozole + Menopur + Trigger + IUI = BFN

    Nov 2013 IVF/ICSI #1 - Protocol: BCP prep, high doses Menopur and Bravelle (12 days), ganirelex
    Results: 5 retrieved / mature, 4 fertilized, 1 arrested and 3 complex abnormal after day 3 PGS = Cancelled after ER
    Jan/Feb 2014 IVF/ICSI #2 - Protocol: Estrogen priming, high doses Menopur and Bravelle (11 days), microdose lupron
    Results: Cancelled after 11 days of stims due to low response and E2 levels
    Feb 2014 IVF/ICSI #3 - Protocol: No prep, low dose Menopur (6 days), ganirelex, Bravelle booster with trigger
    Results: 1 retrieved / 0 mature = Cancelled after ER

    Officially moving on to embryo adoption! We used and love Embryo Adoption Services of Cedar Park
    October 2014 FET #1 - BCP/Lupron/Estrace/Prometrium, transferred 2 of 4 from match #1, BFN
    December 2014 FET #2 - BCP/Lupron/Estrace/Prometrium, transferred 2 of 4 from match #1, BFN
    March 2015 FET #3 - BCP/Lupron/Estrace/Prometrium, transferred 2 of 6 from match #2, BFN
    May 2015 FET #4 - BCP/Lupron/Estrace/Prometrium, lost 2 to thaw, transferred 2 of 6 from match #2, BFN
    October 2015 FET #5 - Natural cycle, lost 1 from match #3 and 1 from clinic backup to thaw, transferred 1 backup, BFN
    February 2016 FET #6 - Natural cycle, transferred 1 from match #4, B FREAKING P!
    Beta 1 = 162, Beta 2 = 316, doubling just over 48 hours

     

  • Late to the party, but here is what supplements I am taking for "egg quality."

    300mg of ubiquinol (advanced form CoQ10)

    2000mg of L-Arginine

    Vitamin C (labeled dosage)

    Myo Inositol (I am taking powdered form that I found online at the labeled dosage)

    This is all in addition to my PNV and extra DHA.

    I will warn you that the L-Arginine that I bought tastes like crap (even though it is capsules) and gives me burps that taste like crap.  It's worth it though if it helps with my egg quality.

    imageimageimageimageimage

     

    image

    TTC #1 since August 2011

    My Blog

    September 2012: Start IF testing

    DH (32): SA is ok, slightly low morph, normal SCSA  Me (32): Slightly low progesterone, hostile CM, carrier for CF, Moderately high NKC, High TNFa, heterozyogous mutated Factor XIII, and +APA

    October 2012-May 2014: 4 failed IUIs, 3 failed IVFs, and 1 failed FETw/donor embryos

    November 2014: IVF w/ICSI #4 Agonist/Antagonist with EPP and Prednisone, Baby Aspirin, Lovenox, and IVIG for immune issues.  Converted to freeze all due to lining issues.  2 blasts frozen on day 6!

    January 2015: FET #2 Cancelled due to lining issues

    April 2015: FET #2.1


    PAIF/SAIF Welcome!

  • Late to the party, but here is what supplements I am taking for "egg quality."

    300mg of ubiquinol (advanced form CoQ10)

    2000mg of L-Arginine

    Vitamin C (labeled dosage)

    Myo Inositol (I am taking powdered form that I found online at the labeled dosage)

    This is all in addition to my PNV and extra DHA.

    I will warn you that the L-Arginine that I bought tastes like crap (even though it is capsules) and gives me burps that taste like crap.  It's worth it though if it helps with my egg quality.

    @Twinkie0612, thank you SO MUCH for sharing your list of supplements. I'll be in touch with you soon to pick your brain some more, if you don't mind. ((Hugs)) to you, girl. It seems we are on a very similar boat. It sucks!!!
    **SIGGY WARNING**

    Me: 32 DH: 35  TTC#1 since March 2012
    Dx: Poor Embryo Quality, Arcuate Uterus, Poor Uterine Blood Flow, Mild Endo, 
           Protein S Deficiency, Sjorgen's Syndrome 

    IUI #1-5: BFN
    Laparoscopy & Hysteroscopy: minimal endo, partial septoplasty
    IVF #1: 10R/6M/6F ~ Day 3 ET = BFN
    IVF #2: 14R/9M/5F ~ transfer canceled ~ all embryos arrested at 1-2 cell stage
    IVF #3: 9R/5M/5F ~ 1 frosty!
    IVF #4 (FET #1): BFN

    IVF #5 (DE IVF #1 with Dr. KK protocol): Currently PREGNANT!!!!!!
    Synthroid + Prednisone + Metformin + Baby Aspirin + Supplements Galore = 15+ pills a day
    Lupron + Lovenox + Delestrogen + IVIG + B/W = 2-5 pokes a day
    19R, 17M, 17F - transferred two Grade A blasts 11/16, four frosties!!!
    Beta #1 11/24 (13dpo/8dp5dt) = 367 ~ Beta #2 11/26 (15dpo/10dp5dt) = 709
    Beta #3 11/29 (18dpo/13dp5dt) = 1,997 ~ Beta #4 12/1 (20dpo/15dp5dt) = 3,403

    imageimageimage

    My Blog: Running and Dreaming for Two ~ All are Welcome!
  • RunCC37 said:

    Late to the party, but here is what supplements I am taking for "egg quality."

    300mg of ubiquinol (advanced form CoQ10)

    2000mg of L-Arginine

    Vitamin C (labeled dosage)

    Myo Inositol (I am taking powdered form that I found online at the labeled dosage)

    This is all in addition to my PNV and extra DHA.

    I will warn you that the L-Arginine that I bought tastes like crap (even though it is capsules) and gives me burps that taste like crap.  It's worth it though if it helps with my egg quality.

    @Twinkie0612, thank you SO MUCH for sharing your list of supplements. I'll be in touch with you soon to pick your brain some more, if you don't mind. ((Hugs)) to you, girl. It seems we are on a very similar boat. It sucks!!!


    No problem.  Most of my supplements came as suggestions from @calindi and my own research, my clinic isn't big on supplements.  I ran most of them through my RE (or nurse) to get the ok before starting them.

    Another supplement I am going to take is melatonin, but only during my cycle (I usually take it during down regulation anyway because lupron + bcp gives me insomnia).  I have read that long term melatonin use isn't a great idea.

    imageimageimageimageimage

     

    image

    TTC #1 since August 2011

    My Blog

    September 2012: Start IF testing

    DH (32): SA is ok, slightly low morph, normal SCSA  Me (32): Slightly low progesterone, hostile CM, carrier for CF, Moderately high NKC, High TNFa, heterozyogous mutated Factor XIII, and +APA

    October 2012-May 2014: 4 failed IUIs, 3 failed IVFs, and 1 failed FETw/donor embryos

    November 2014: IVF w/ICSI #4 Agonist/Antagonist with EPP and Prednisone, Baby Aspirin, Lovenox, and IVIG for immune issues.  Converted to freeze all due to lining issues.  2 blasts frozen on day 6!

    January 2015: FET #2 Cancelled due to lining issues

    April 2015: FET #2.1


    PAIF/SAIF Welcome!

  • Keeping you and DH in my prayers. Appointments like that are never fun and take their toll!  Keep us posted.
    Me:28 DH:32 TTC#1 since 10/2012 
    D3 Blood work: Normal, D21 Blood work: 11.5 
    Me DX: Lutheal Phase Defect, Late ovulation, often several months with no ovulation, and thick uterine lining (15mm, CD 14) that keeps coming back and no medication has worked to keep it the size they want. 
    6 months of rotating cycles of BC: all BFN (it did restart my system for a total of 3 months) 
    1 cycle prometrium: BFN
    1st clomid cycle combined with prometirum: still waiting to test, no mature eggs at cd14 
    2nd Clomid Cycle: thick lining on CD 14 (15 mm) 2 huge eggs 25 mm and 30 mm (both on left side)
    3rd Clomid Cycle: Lining Still tick at 15 mm. Three eggs (one on right side at 13 mm and two on left side at 23 mm and 25 mm) 
    last cycle of clomid. Waiting on RE

  • I am so so sorry. I think it's a smart idea to seek a second, third and even fourth opinion. Sending you lots of love and luck. 

    Me and DH: 32, TTC since 2/2012
    Dx: lean PCOS, low hormone levels, 2 CP's before seeing RE, MTHFR heterozygous
    IUI #1 with clomid and ovidrel: BFN
    IUI #2 with clomid (unresponsive), femara, ovidrel and novarel: Possible CP
    IUI #3 with femara, ovidrel and novarel: BFN
    IUI #4 with Follistim (115 iu) and ovidrel= BFN, developed OHSS, benched- 2 weeks of birth control pills
    IUI #5 with Follistim (75iu) and ovidrel= BFN........Taking a medication break for a few months
    IUI #6 with Follistim (75iu) every other day, femara and Lupron trigger= BFN
    *Taking a long break to get healthy and research/prepare for IVF*
    Goal: gain 5 lbs, gluten/dairy/soy/nut free
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    3T June Siggy Challenge- Celebrity Crush: Woody Harrelson
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